Living with Long covid

Send us a textIn today's episode I am extremely lucky to have another fantastic guest; Dr Binita Kane. Dr Kane is a consultant respiratory physician at Manchester University Foundation Trust. A Long Covid advocate and Long Covid kids champion and also the co founder of South Asian heritage month. It was a pleasure and a privilege to talk to Dr Kane about her personal Long Covid journey with her daughter, and how this has inspired her journey and development as a doctor as well as a mum and advocate. Dr Kane is leading the way for research on Long Covid and we talk about the work she has undertaken so far and the hope for the future. This is an inspiring and interesting podcast. I hope you enjoy the episode, as always take care.Links from today's episode:https://www.linktr.ee/binitakanehttps://www.southasianheritage.org.ukBBC1 player - my family partition and mehttps://bbc.co.uk.myfamilypartitionandmeMy social media and link tree links:https://www.linktr.ee/joulesthttps://twitter.com/julieTa58407536https://www.facebook.com/julie.taylor.528316https://www.facebook.com/livingwithlongcovid/https://www.instagram.com/julietaylor9545My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textThis episode of the podcast comes from the heart. I wanted to talk about how becoming unwell has taken my sense of purpose, almost my full identity however it has also encourage me to get to know and appreciate myself in so many ways. I am hoping you can resonate. I discuss how I/we are not Long Covid, we are not a long term condition, we are so much more than that. Words often have a deeper impact on how I feel which is of course a blessing and a curse, but either way they make me reflect and this is not a bad thing. I wanted to use the podcast to highlight how important it is to give yourself a break and to understand you have purpose and are so much more then a condition and its symptoms. I hope you enjoy the episode, as always take care. Link for support from The samaritans:https://www.samaritans.orgMy social media and link tree links:https://www.instagram.com/juietaylor9545https://www.facebook.com/livingwithlongcovid/https://www.facebook.com/julie.taylor.528316https://twitter.com/julieTa58407536https://www.linktr.ee/joulestMy Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textIn this podcast episode I talk about returning to work, and how life needs to be much more than a process of work, rest, recover, repeat. In my personal experience I have found this approach impacts the mental, emotional and social health requirements of a good quality of life. I reflect on what I have learnt following my relapse in March and how I hope to approach a return to work. I also discuss the importance of understanding your feelings and owning them, understanding your value and how important it is to take care of your own wellbeing, ensuring a work life balance can be achieved. I hope you enjoy this episode. I will share my return to work journey in future episodes. I have attached links below, if you have any questions, comments or advice, please feel free to contact me. Take care, see you on the next podcast. If you would like to be a guest on the podcast DM me in the first instance, thank you.Supportive links from today's episode:https://www.citizensadvice.org.ukhttps://www.nhsemployers.org - NHS terms and conditions service handbookhttps://www.rcn.org.uk/Get-help/RCN-advice/sickness - sickness and advice guidesSocial media and link tree: https://www.linktr.ee/joulesthttps://twitter.com/julieTa58407536https://www.facebook.com/julie.taylor.528316https://www.facebook.com/livingwithlongcovid/https://www.instagram.com/julietaylor9545My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textI have recently been on holiday, this is usually a time of excitement, looking forward to family time, exploring new places, eating delicious food and drink and having some downtime from general life. Now don't get me wrong many of the above have and are still the case for me, however living with long term conditions has forced me to think more, plan more and learn how to navigate challenges. This episode discusses the challenges and wins of taking a holiday. I share my personal experiences of trying to manage my symptoms and what I did not consider. This follows on from last weeks episode with Cass and I hope you find it useful. Please get in touch with any questions you may have; I always enjoy hearing from you guys and I appreciate you sharing your experiences with me. As always take care. Social Media links:https:linktr.ee/joulesthttps://www.instagram.com/julietaylor9545https://www.facebook.com/livingwithlongcovid/https://www.facebook.com/julie.taylor.528316https://twitter.com/julieTa58407536My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textIn todays episode I talk with returning guest Cass. I have recently been away and prior to going I had so many fears and reservations, learning to live with chronic conditions will do that to you!Cass, was really supportive and offered out her own experiences and lots of tips to support planning and taking a trip or holiday. I found so much value in these tips, Cass kindly agreed to come and share with you guys on the podcast. I hope you find it as useful as I have, and don't forget to checkout Cass Blog post full of travelling tips, the link is below. On the next episode I will share my experiences of taking a holiday, the challenges and wins and what to consider when returning from your trip away. As always thanks for listening and take care. Follow and connect with me on social media; why not subscribe to my link tree: http://linker.ee/jouesthttps://twitter.com/julieTa58407536https://www.facebook.com/julie.taylor.528316https://www.facebook.com/livingwithlongcovid/https://www.instagram.com/julietaylor9545Links for todays guest Cass: https://www.alifeslightlylessordinary.blogspot.comhttps://tiktok@perfectlyimperfect7505https://twitter@cm_7505https://instagramcaramac1975My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textOn todays episode I discuss how the way you look does not often reflect how you feel. I talk about invisible illness and chronic conditions, how the fluctuating symptoms and invisible symptoms lead to assumption, often "are you better now then, because you look great". I hope this podcast can support those living with Long Covid and other long term conditions and hidden disability, however I also hope it raises awareness and understanding to those who don't understand. So, if you know of people who struggle to understand, save your energy and point them in the direction of todays' podcast. I hope this is helpful. take carewhy not follow me on social media and subscribe to my link tree: https://linktr.ee/joulesthttps://www.instagram.com/julietaylor9545https://www.facebook.com/livingwithlongcovid/https://www.facebook.com/julie.taylor.528316https://twitter.com/julieTa58407536My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textOn todays episode I discuss the self that was and the self that is, with my guest Dr Anna Robson. Anna is an emergency medicine trainee and is living with Long Covid. Working through the pandemic, Anna has taken care of people in ICU, so is only too familiar with the impact of acute covid. I discuss with Anna her covid and Long Covid journey as she reflects upon how different her life looks post pandemic. Thank you for listening to the podcast, take careWhy not follow me on social media, you can also subscribe to my link tree:https://linktr.ee/joulesthttps://www.instagram.com/julietaylor9545https://www.facebook.com/livingwithlongcovid/https://www.facebook.com/julie.taylor.528316https://twitter.com/julieTa58407536My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textIn todays episode I discuss the issue of guilt. Living with a long term condition has evoked this feeling in so many areas of my life and I personally find it difficult to shake off. I have used the episode to reach out and find out if I am alone in this feeling or if others experience the feelings of misplaced guilt. I give examples of how guilt has engulfed my life and how I find this a challenge, I also talk about how I am trying to manage this and share how I am working on the feelings of guilt...yes it is a task master. I hope this episode is useful, please reach out and let me know if this is something you relate too. I always enjoy hearing from you guys, the links from todays show are below. Take care. Show links: https://www.humberstreetsesh.co.ukhttps://www.facebook.com/@feverbandukhttps://www.instagram.com/alexander_hairWhy not follow me on social media or subscribe to my link tree: https://linker.ee/joulesthttp://twitter.com/julieTa58407536https://www.facebook.com/julie.taylor.528316https://www.facebook.com/livingwithlongcovid/https://www.instagram.com/julietaylor9545My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textFatigue is often mistaken for being tired, needing to sleep or rest. I discuss the misconception on this episode and talk around the differences between fatigue and being tired. I talk about my own experiences and the various levels of fatigue and how this brings challenges to daily life. Fatigue can be life changing, disabling it effects the physical, emotional and cognition. I aim to clarify the difference between fatigue and tiredness. Thank you for joining me. Take careWhy not follow me on social media, or check out my link tree, you can press subscribe to get alerts when I add new content. Social media and Linktree: https://www.linktr.ee/joulesthttps://twitter.com/julieTa58407536https://www.facebook.com/julie.taylor.528316https://www.facebook.com/livingwithlongcovid/https://www.instagram.com/julietaylor9545https://youtu.be/x-Tgln39ehl - 4Ps how to videoMy Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textI have a guest on today's podcast, Cass is a fellow nurse and lives with Long Covid, they contracted covid in April 2020. They had prior experience of being disabled, with hidden conditions before that and has a lot of experience of working and living with the challenge of ableism and unconscious bias, before and since the pandemic , Cass has been advocating for colleagues and others with Long Covid and other chronic conditions and disabilities on social media. Cass and I discuss their experience of unconscious bias and ableism, advocacy and being part of Long Covid nurses and midwives UK, thank you for joining us.Take careSocial media links for my guest Cass:https://tiktok@perfectlyimperfect7505https://www.twitter@cm_7505https://www.instagram.com/caramac1975Link to Long Covid nurses and midwives UK (LCNMUK) https://www.lcnmuk.co.ukLCNMUK Trusted partners:https://longcovidphysiohttps://longcovidscotlandhttps://longsoshttps://longcovidkidshttps://longcovidwalesSuggested scrubs episode: "My five stages" episode 13- season 5 Why not follow me on social media? please feel free to message me, I appreciate all of your kind comments and feedback on the podcast. I also am happy to answer any questionsSocial media:https://www.instagram.com/julietaylor9545https://www.facebook.com/livingwithlongcovid/https://www.facebook.com/julie.taylor.528316https://twitter.com/julieTa58407536My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc