Living with Long covid

Send us a textOn this episode I explore the possibility of remission with Long Covid, and try to understand how the crash and relapse cycle works. Are better days remission? or can Long Covid go into a full blown longer phased remission? is that possible?I discuss my own experience and question if I have experienced a phase of remission last summer. I consider research for remission for people with ME/CFS, as this condition has been around a very longtime surely research on remission exists? I also discuss ME/CFS and the history behind the  "all in your head" theory, has a historical opinion and moment in time, prevented appropriate research and treatment? As always thank you for joining me, take care. https://www.jstor.org/stable/4455795 - Reviews of infectious diseases Vol 13, supplement 1 considerations the design of studies of chronic fatigue syndrome (Jan- feb 1991, pp. 52-57 Oxford university pressWhy not follow me on social media, the links are all below. Thank you for all of the messages and feedback, I really appreciate feedback on the podcast, and it is always great to know it is helping others. Social Media:https://www.instagram.com/julietaylor9545https://www.facebook.com/livingwithlongcovid/https://www.facebook.com/julie.taylor.528316https://twitter.com/JulieTa58407536My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textThis episode of the podcast explores what a day on the life living with Long Covid can look like, this was more challenging to put into words than I originally thought. That was due to the fluctuating symptoms and unpredictability of the condition. I always advocate taking one day at a time, although this is hard when you reflect on the previous life you led. It is also challenging when you have to factor in work or the stress and anxiety not being able to work can provoke. I discuss these challenges and reflect on how different life looks with a long term condition. I hope you find the podcast useful, on the next podcast I ask the question ' Can Long Covid go into remission?' I hope you continue to join me https://linktr.ee/joulesthttps://twitter.com/julieTa58407536https://www.facebook.com/julie.taylor.528316https://www.facebook.com/livingwithlongcovid/ - Long term conditions health and wellbeing pagehttps://www.instagram.com/julietaylor9545My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textThis episode explores the difference between Treatment and symptom management. How important are they? and is one more important than the other?I discuss how self care compliments symptom management and address negativity I received around my use of self care and symptom management. Not everything suits, or works for everyone and that is an important point in itself. Using a recent update as an example I discuss and explore treatment and symptom management. I also talk about the healthcare postcode lottery, I hope you enjoy the episode, use the links below to follow me on the social platforms and DM any questions or comments. As always take care, and thank you for listening. If you would like to be a guest on the podcast please email your request to: julietaylorwellbeingcoaching@gmail.com http://twitter.com/julieTa58407536https://www.facebook.com/julie.taylor.528316https://www.facebook.com/livingwithlongcovid/ - long term conditions health and wellbeing pagehttps://www.instagram.com/julietaylor9545My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textOn this weeks podcast I am talking about POTS (Postural orthostatic tachycardia syndrome), this is something as a nurse I have not come across, however there appears to be a link with POTS and Long Covid. I discuss how I have related some of my symptoms to other medical possibilities and of course Long Covid. I discuss the symptoms of POTS and how I monitored these symptoms prior to going to my GP. With over 200 symptoms of Long Covid they can become blended and confusing. I continue to try and separate the symptoms and implement self care strategies while seeking assessment, treatment and possible cures. I hope you find this episode helpful. Thank you for joining me and Take carehttp://www.nhs.ukposturaltachycardiasyndromeSocial Media Links:http://twitter.com/julieTa58407536https://www.facebook.com/julie.taylor.528316https://www.facebook.com/livingwithlongcovid/https://www.instagram.com/julietaylor9545My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textI am so excited to have my first ever guest on the podcast. Ian is a fellow long hauler and co creator of the 4th P, he is also an avid listener of the podcast. Ian contacted me after listening to one of my earlier episodes, where I talk about brain fog/injury, and how I feared it was early onset dementia. You will hear in this episode why this was a poignant moment for him. We have had many conversations since, many around pacing and of course the 4th P. Ian is kindly sharing his own experience of Long Covid and how this impacts him each day. While we all have similarities in our journey they are different and it is important to share with one and other. I appreciate Ian's sharing his journey so openly and I hope you all agree he is a great first guest. Thank you for joining us, Take care.PS: just a note to add, Ian provided some useful information links, I will put these in the bio (link tree) on my social media if you would like to check them out. You can press subscribe on my link tree platform to get alerts whenever I add something new. thank youSocial Media:https://www.twitter.com/julieta58407536https://www.facebook.com/julie.taylor.528316https://www.facebook.com/livingwithlongcovid/ - this is the long term conditions FB pagehttps://www.instagram.com/julietaylor9545My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textWhat is toxic positivity? In todays episode I discuss I discuss the difference between positivity and toxic positivity. I explore how toxic positivity can impact and subdue emotions. Toxic positivity is a form of gaslighting and something we can do to ourselves without awareness. I also share some exciting news about future podcasts and I hope you will continue to join me. https://www.instagram.com/julietaylor9545https://facebook.com/livingwithlongcovid/https://www.facebook.com/julie.taylor.528316http://twitter.com/julieTa58407536My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textThis episode discusses the emotional rollercoaster that is experienced when living with Long Covid. I reflect upon my emotions and how I have felt very alone at times. The multitude of emotions I feel.  I also discuss and  explore how external factors can have an impact on your emotions. I explore the factors of the grief cycle and how they feature in the Long Covid journey. This is a process  I continue to go through, moving around the spectrum of the grief cycle. I explain what the cycle is and how each element causes effect. I hope you enjoy the podcast, thank you for joining me.On the next podcast I will explore the difference between positivity and toxic positivity, I also have some exciting news. see you there, take carehttps://twitter.com/julieTa58407536https://www.facebook.com/julie.taylor.528316 https://www.facebook.com/livingwithlongcovid/ https://www.instagram.com/julietaylor9545Telephone - 116 123 (from any phone)http://samararitans.org My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textThis episode discusses what self care is, and why it is important to implement self care into your daily life. I discuss the guilt around taking time out for yourself and why we should not feel that way. Surely self care should be a part of our daily routine? but is it? why do we have guilt around taking time out for ourselves? I list 20 self care tips to get you started or expand on any self care routine you may already use. I hope you enjoy the episode. on the next episode I explore the "The Long Covid emotional rollercoaster" see you then. Take care.https://www.juliettesak.com - Very well mind: self care articlehttps://twitter.com/julieTa58407536https://www.facebook.com/julie.taylor.528316https://www.facebook.com/livingwithlongcovid/https://www.instagram.com/julietaylor9545My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textLife has changed in many ways for everyone due to the pandemic, and for sometime lockdown prevented any of us from going out. As the world has opened up, life with long covid has left me with many life restrictions and challenges. The social life I once knew is gone, making plans is a challenge or a risk, as I may need to cancel last minute. So what are the trials and tribulations of making plans, going out? have a listen to todays episode, where I share my experiences and some tips on how I pre plan, preserve my energy so I have a greater chance of getting to an event. Thanks for joining me. on the next episode I will be talking about self care, what it truly is and how important it is to practice self care, and I hope you continue to join me. Take careContact/follow me: https://www.instagram.com/julietaylor9545https://www.facebook.com/livingwithlongcovid/https://www.facebook.com/julie.taylor.528315http://twitter.com/julieTa58407536My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textOne of the challenges I have had since having Long Covid is sleep. I can either sleep for way too many hours or I have total insomnia or minimal sleep at best. This is a taskmaster and only exacerbates symptoms further; so what can you do if you sleep too much or not enough? Have a listen to the podcast for some tips and ideas on sleep hygiene and what I do to try to have a good nights sleep. Thank you for joining me. On the next podcast I will be discussing the trials and tribulations of making plans, cancelling arrangements last minute or forgetting to attend in the first place! I hope you will join me, take careContact/follow me:https://www.instagram.com/julietaylor9545https://www.facebook.com/livingwithlongcovid/https://www.facebook.com/julie.taylor.528316https://twitter.com/julieTa58407536My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc