Let's Talk About The POTS life

In this episode, Ryenn shares her journey from misdiagnosis to managing POTS and vascular conditions, highlighting the importance of persistence, proper diagnosis, and lifestyle modifications. Her story offers hope and practical insights for others navigating similar health challenges.In this episode, Ryenn shares her journey from misdiagnosis to managing POTS and vascular conditions, highlighting the importance of persistence, proper diagnosis, and lifestyle modifications. Her story offers hope and practical insights for others navigating similar health challenges.This episode is sponsored by Re-Lyte Hydration Electrolyte Powder.Click on the link below and use the code: KELSEY to receive 15% off your first order.redmond.com/kelseyIf you want more information about what Dr. Kelsey can do for your POTS journey:https://thepotslife.com/This podcast was produced and edited by Ashlyne Blue at Small Batch Sound.https://www.smallbatchsound.com/

Kelsey and Cale open up about a decade-long POTS diagnosis journey and the daily realities of treatment, recovery, and parenting. They explore how the condition reshaped marriage, childcare, household responsibilities, travel, and family memories, while sharing the emotional challenges of frightening flares, asking for help, and building a healthier new normal.

Dr. Linda Bluestein, a board-certified physician who founded HypermobilityMD and hosts the Bendy Bodies podcast, discusses links between hypermobility, EDS, POTS, mast cell issues, and chronic pain. She shares her diagnostic journey, clinical approach, and the MEN'S PMMS framework. Conversation covers pediatric red flags, virtual care, and realistic, patient-centered strategies.

Receiving a POTS diagnosis can be both validating and overwhelming. After finally getting answers, many people are surprised to learn there isn't a quick fix and that managing POTS often requires consistent lifestyle changes over time.In this episode, we talk about the emotional side of life after diagnosis, including grieving your old life, learning to let go of constantly pushing through, and building a support system that truly understands what you're going through. We also discuss practical strategies for focusing on what you can control, including hydration, electrolytes, gradual exercise, and creating habits that support long-term improvement.If you're newly diagnosed or still learning to navigate life with POTS, this episode is a reminder that you're not alone and that while the journey isn't easy, it can get better.Connect with Us:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Our Website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

Dr. Marie-Claire Seeley is a registered nurse, researcher, Founder and Volunteer CEO of the Australian POTS Foundation, and one of the leading voices advancing POTS research, education, and advocacy.In this episode of Let's Talk About the POTS Life, Kelsey sits down with Dr. Seeley to discuss her journey from developing POTS after a post-viral illness in 1993 to helping change the future of care for people living with POTS and dysautonomia around the world.Together, they discuss:Dr. Seeley's personal journey with POTSWhy so many patients are dismissed or misdiagnosedThe connection between POTS, Ehlers-Danlos syndrome (EDS), and hypermobilityWhy women with POTS often face unique challenges in healthcareWhy we're experiencing an "epidemic of recognition," not an epidemic of POTSThe future of POTS research, advocacy, and patient careWhether you're newly diagnosed or have been living with POTS for years, this conversation offers insight, validation, and hope from someone who understands the condition from every perspective as a patient, clinician, researcher, and advocate.Learn more about the Australian POTS Foundation: https://potsfoundation.org.auConnect with Us:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Our Website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

How do you start trusting your body again after a POTS diagnosis?In this episode, Kelsey and Brit talk about the fear of doing everyday activities when your symptoms feel unpredictable. From weddings and travel to summer events and driving, they discuss practical ways to prepare, pace yourself, and build confidence as your body changes and improves.They also dive into the connection between POTS and anxiety, why progress isn't always linear, and how small wins can help you regain trust in yourself over time.Whether you're newly diagnosed or further along in your journey, this episode is a reminder that fear doesn't have to make the decisions.Connect with Us:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Our Website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

What is the connection between POTS, hypermobile Ehlers-Danlos syndrome (hEDS), and hypermobility?In this episode, I sit down with Dr. Cohen Solomon, board-certified pediatrician, educator, and patient living with hEDS and dysautonomia. We discuss the overlap between POTS, EDS, chronic pain, fatigue, GI symptoms, and why so many patients struggle to find answers.We also talk about recognizing early signs of hypermobility, building the right healthcare team, advocating for yourself, and why validation matters when living with a complex chronic illness.Whether you're a patient, parent, or healthcare provider, this episode offers practical insights and hope for navigating the journey.Follow Dr. Solomon: @thebendypediatricianLearn More: https://thebendypediatrician.com/Connect with Us:⁠⁠⁠⁠⁠⁠⁠⁠⁠Our Website⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslifeTimestamps00:00 Introduction03:16 Living with hEDS & Dysautonomia05:43 Early Signs of Hypermobility in Children10:36 Understanding EDS & Hypermobility12:14 Pain, Fatigue & Invisible Illness22:32 The Connection Between POTS & EDS23:22 Why Patients Need a Healthcare "Quarterback"28:58 GI Symptoms, Dysmotility & EDS31:51 The Importance of Validation33:51 Building the Right Care Team36:33 Tips for Advocating for Yourself41:40 The UVA EDS & Hypermobility Clinic46:05 Advice for Newly Diagnosed Patients47:20 Finding Hope

In this episode of Let’s Talk About The POTS Life, we sit down with Joanna Behm, occupational therapist, dysautonomia advocate, and co-author of The Dysautonomia Workbook. Joanna shares her personal journey to diagnosis, the challenges of living with POTS, MCAS, and hEDS, and the work she does through the Dysautonomia Support Network (DSN) to help others feel more supported and informed.We also talk about practical tools for managing daily life with dysautonomia, including pacing, symptom tracking, accommodations, mental health, and building a better quality of life while navigating chronic illness.About DSN: Dysautonomia Support Network is a nonprofit dedicated to supporting and empowering those with dysautonomia through education, resources, and community. Learn more at dysautonomiasupport.org.Workbook:The Dysautonomia Workbook: A Guide to Empowered Livinghttps://www.dysautonomiasupport.org/product/the-dysautonomia-workbook-a-guide-to-empowered-living/Follow DSN:Instagram: @dyssupportYouTube: @DysSupportFacebook: Dysautonomia Support NetworkConnect with Joanna:LinkedIn: Joanna Behm

Practical advice on what to focus on after a POTS diagnosis, from hydration to movement. Clear discussion of sodium versus plain water and which electrolyte options actually help. Warnings about quick diet overhauls and tips for gentle, graded exercise. Suggestions for tracking food triggers and finding sustainable support and structure.

GI symptoms, pain clues, and why a consult mattersIn this episode of Let’s Talk About the POTS Life, we break down the connection between POTS and pelvic floor dysfunction and why it’s often overlooked.We cover common “beige flags” like GI issues (IBS, bloating, constipation/diarrhea cycles, gastroparesis), bladder symptoms (chronic UTIs, straining to pee), and unexplained pelvic or low back pain. We also touch on tension patterns (like teeth grinding) and conditions like endometriosis and hypermobility.This episode highlights how pelvic floor therapy can fit into a bigger picture approach alongside POTS care, GI support, and mental health.If you feel like your symptoms aren’t fully adding up, this might be a missing piece.Episode breakdown:00:00 Pelvic Floor Meets POTS00:40 Why They Overlap02:09 GI Red Flags Explained03:59 Tension and Constipation Cycle05:13 Movement and Digestion Tips06:45 UTIs and Peeing Strain09:03 Pain, Endo, and Hypermobility11:06 Consults and Team Approach13:02 Finding the Right PT14:10 Program Modifications Together14:50 Wrap Up