Let's Talk About The POTS life

In this episode of 'Let's Talk about the POTS Life,' the hosts welcome Ashley Schuetz, a dual-certified Family and Psychiatric Mental Health Nurse Practitioner. Ashley shares her journey from cosmetology to the medical field and her extensive experience working in the Pittsburgh Public Schools. The discussion dives into the intersections of mental health and chronic illness, particularly POTS, emphasizing the importance of validating symptoms, the struggles of navigating multiple diagnoses, and the crucial role of community and support. The conversation also highlights the increase in diagnoses of ADHD, OCD, and anxiety, especially post-COVID, and provides advice for parents on advocating for their children's health. Tune in for valuable insights on managing chronic illnesses and mental health holistically.00:00 Introduction to the POTS Life Podcast00:23 Meet Our Guest: Ashley Schuetz, CRNP00:59 Ashley's Journey into Nursing02:55 Mental Health and COVID-1904:45 Challenges in Diagnosing Chronic Illnesses06:53 Supporting Children with Chronic Illnesses08:09 The Importance of Validation and Advocacy10:54 Navigating the Medical System16:39 The Role of Community and Support19:30 Post-COVID Mental Health Trends21:41 Understanding OCD and ADHD Symptoms22:21 The Importance of Treating Symptoms, Not Diagnoses22:44 The Impact of Mental Health on Daily Life23:36 The Role of Therapy and Medication25:24 Breaking the Stigma Around Mental Health26:30 The Necessity of Mental Health Professionals28:07 The Benefits of Comprehensive Care31:08 Specialized Care for Students33:47 Raising Awareness About POTS35:19 Final Thoughts and Contact InformationConnect with Ashley:Ashley Schuetz, CRNP | Fine Tune Psychiatry Psychiatric Care for Children, Teens & Adults | Fine Tune Psychiatry Connect with Us:Our WebsiteFacebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

Dive into the complexities of the Tilt Table Test, a key procedure for diagnosing POTS. Learn who typically orders the test and what it involves, from IVs to gradual tilting. Discover personal experiences and essential tips for preparation and managing aftereffects. The discussion highlights alternative diagnostic methods and the importance of finding the right healthcare provider. Gain insights into treatment planning and lifestyle management for long-term well-being.

Welcome to a special holiday edition of 'Let's Talk About the POTS Life.' In this episode, we share essential tips and tricks to navigate the holiday season while managing Postural Orthostatic Tachycardia Syndrome (POTS). We discuss the importance of maintaining routines, prioritizing exercise, staying hydrated, and eating consistent small meals. Additionally, we emphasize the significance of self-care and flexibility during this festive yet chaotic time. Join us for practical advice to keep your POTS symptoms at bay and learn about our supportive POTS Life Program to start the new year strong.00:00 Welcome to the POTS Life Holiday Edition00:35 Managing Holiday Stress with POTS01:08 Maintaining Routines and Exercise02:21 Importance of Hydration and Nutrition05:07 Grace and Flexibility During the Holidays05:41 Join the POTS Life Program in the New Year06:45 Conclusion and Holiday WishesConnect with us!The POTS LifeFacebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

In this episode of 'Let's Talk About the POTS Life,' Lindsey, a graduate of the POTS Life program, shares her journey from a sudden onset of symptoms to diagnosis and eventual recovery. Diagnosed post-Thanksgiving 2023, Lindsey recounts her struggles with various symptoms, misdiagnoses, and numerous doctor visits before finding the POTS Life program. Lindsey discusses her initial skepticism, the challenges, and the support she found within the community. She emphasizes the importance of consistency, even when feeling unwell, and shares the progress she made through the program. Offering hope and encouragement, Lindsey's story highlights the potential for improvement and a changed perspective on life after managing POTS.00:00 Introduction and Welcome00:23 Meet Lindsey: A POTS Life Graduate01:41 Lindsey's Journey to Diagnosis04:09 Life Before and After POTS Diagnosis08:26 The POTS Life Program Experience12:52 Overcoming Setbacks and Finding Support18:56 Advice for Newcomers and Final Thoughts23:20 Conclusion and FarewellConnect with us: thepotslife.comFacebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

In this episode of 'Let's Talk about the POTS Life,' the hosts discuss the importance of balancing rest and activity for those living with Postural Orthostatic Tachycardia Syndrome (POTS). The episode highlights why excessive rest can be detrimental and provides practical tips for gradually increasing activity levels. They share real-life examples of patients who have improved their conditions by incorporating small, structured movements and making lifestyle adjustments. Emphasizing the need for personalized approaches, the hosts offer advice on how to rest effectively, manage fatigue, and integrate gradual physical activity to improve overall well-being.00:00 Introduction to the POTS Life Podcast00:24 The Importance of Rest01:58 Understanding Fatigue in POTS03:16 Personal Stories and Progress04:41 Tips for Managing POTS07:14 The Role of Sleep and Napping14:40 Small Steps to Improvement19:39 Final Thoughts and Encouragement20:00 Closing RemarksFollow us:Facebook & Tik Tok: The POTS LifeInstagram: @thepotslife_www.thepotslife.com

In this episode of 'Let's Talk About the POTS Life,' we dive into the intersection of living with POTS and planning a Disney vacation. The hosts share personal experiences and practical advice for preparing, traveling, and enjoying Disney while managing POTS symptoms. Topics include packing essentials, hydration strategies, handling stress and adrenaline, and ensuring you stay on track with your health routines. Whether you're a first-time traveler or a Disney regular, these tips aim to help you make the most of your trip without sacrificing your wellbeing.00:00 Introduction to the POTS Life Podcast00:32 Preparing for a Disney Trip with POTS02:36 Managing Symptoms and Enjoying Disney03:28 Travel Tips and Personal Experiences04:48 Packing and Hydration Strategies09:12 Navigating Disney with POTS13:15 Rides and Sensory Experiences15:20 Discussing Ride Preferences and Disney Experiences16:31 Tips for Staying Hydrated at Disney17:14 Importance of Regular Meals and Snacks18:15 Managing Exercise and Activity Levels19:43 The Value of a Buffer Day After Vacation24:30 Encouragement to Travel Despite Health Concerns26:51 Final Thoughts and Encouragement

In this Thanksgiving episode of 'Let's Talk About the POTS Life,' the hosts share practical tips for managing the holiday season while living with POTS. They discuss the importance of eating small, balanced meals throughout the day, staying hydrated, and maintaining a manageable routine. They also highlight the need for moderation, especially when it comes to alcohol, and the value of communicating your needs with family. The episode emphasizes enjoying the moment, not striving for perfection, and giving yourself grace if things don't go as planned.00:00 Introduction and Welcome00:27 Navigating Holiday Stress01:27 Thanksgiving Tips and Tricks01:46 Moderation and Nutrition05:02 Hydration and Sensory Overload05:56 Alcohol and Socializing08:29 Exercise and Routine10:04 Final Thoughts and Encouragement11:09 Conclusion and FarewellConnect with us: The POTS LifeInstagram: @thepotslife_Facebook & Tik Tok: The POTS Life | thepotslife

In this episode of 'Let's Talk About the POTS Life,' the hosts discuss why recumbent exercise is a fundamental part of the POTS Life program. They explain the scientific reasoning and practical benefits behind starting with recumbent biking instead of more traditional forms of exercise. They also discuss how the program can be customized to meet various needs, answer common questions about modifications, and emphasize the importance of adapting the plan to individual circumstances. Whether you're a seasoned athlete or just beginning your journey with POTS, this episode provides valuable insights and encouragement for managing the condition effectively.00:00 Introduction to the POTS Life Podcast00:25 Understanding the Importance of Recumbent Exercise01:11 Challenges and Misconceptions in POTS Treatment05:49 The Role of Biking in POTS Recovery10:44 Customizing Your POTS Life Program16:39 Conclusion and How to Get StartedConnect with The POTS LifeWebsite: www.thepotslife.comInstagram: @thepotslife_Facebook & TikTok: The POTS Life

Dr. Erin Nance, an orthopedic hand surgeon and patient advocate known as @littlemissdiagnosed, dives into the complexities of POTS and the struggles of misdiagnosis. She shares her personal journey that sparked her advocacy for chronic illnesses. Topics include the emotional rollercoaster of misdiagnosis, the importance of health literacy, and how social media can promote understanding of conditions. Dr. Nance also introduces her innovative platform, FeelBetr, aimed at empowering patients with reliable health information and community support.

Megan shares her journey from years of confusing POTS symptoms to a clear diagnosis and empowering recovery. She discusses the challenges of daily activities feeling exhausting and her emotional reactions to scaling back exercises. Biking played a vital role in her rehabilitation, helping improve blood flow and mood. Megan provides practical tips for managing travel and high-demand days while staying consistent through setbacks. Her insights focus on seeking support, establishing routines, and embracing personal growth after recovery.