Let's Talk About The POTS life Understanding POTS and Misdiagnosis with Dr. Erin Nance | Let’s Talk About the POTS Life
4 snips
Nov 11, 2025 Dr. Erin Nance, an orthopedic hand surgeon and patient advocate known as @littlemissdiagnosed, dives into the complexities of POTS and the struggles of misdiagnosis. She shares her personal journey that sparked her advocacy for chronic illnesses. Topics include the emotional rollercoaster of misdiagnosis, the importance of health literacy, and how social media can promote understanding of conditions. Dr. Nance also introduces her innovative platform, FeelBetr, aimed at empowering patients with reliable health information and community support.
AI Snips
Chapters
Transcript
Episode notes
Viral DM Led To LittleMisdiagnosed
- Dr. Erin Nance started LittleMisdiagnosed after a DM about a 10-year fingernail pain that turned out to be a glomus tumor.
- That viral case showed how fast a single observation from a physician can end long diagnostic journeys.
Subjective Words Need Objective Dots
- Patients often lack the clinical vocabulary to describe symptoms that clinicians expect.
- Combining subjective experience with objective data like heart rate helps clinicians take symptoms seriously.
Bring Objective Vitals To Visits
- Do collect objective vitals at home (heart rate, blood pressure) and bring them to visits to help diagnosis.
- Use symptom patterns from peers to ask your doctor directly, e.g., 'Do you think I could have POTS?'