Long Covid Podcast
Jackie Baxter
The Podcast by and for Long Covid sufferers. Long Covid is estimated to affect at least 1 in 5 people infected with Covid-19. Many of these people were fit & healthy, many were successfully managing other conditions. Some people recover within a few months, but there are many who have been suffering for much much longer.Although there is currently no "cure" for Long Covid, and the millions of people still ill have been searching for answers for a long time, in this podcast I hope to explore the many things that can be done to help, through a mix of medical experts, researchers, personal experience & recovery stories. Bringing together the practical & the hopeful - "what CAN we do?"The Long Covid Podcast is currently self-funded. This podcast will always remain free, but if you like what you hear and are able to, please head along to www.buymeacoffee.com/longcovidpod to help me cover costs. ~ Follow me on: Facebook @longcovidpodcast ~ Instagram @longcovidpod ~ Twitter @longcovidpod ~ Website www.LongCovidPodcast.com ~ Please do get in touch with feedback and suggestions, either via the social media links or at longcovidpodcast@gmail.com - I'd love to hear from you. The Long Covid podcast is entirely self-funded and relies on donations - if you've found it useful and are able to, please go to www.buymeacoffee.com/longcovidpod to help me cover the costs of hosting.
Episodes
Mentioned books
May 25, 2022 • 44min
36 - Dr Mark Faghy
Episode 36 of the Long Covid Podcast is a chat with Dr Mark Faghy about the work he and his team are doing to support rehabilitation for Long Covid, based at the university of Derby.The project has many arms and he explains all the different bits they are looking into, and how important listening to the patient voice is. Although all things take time - it's good that Mark & his team are looking to do things right - and I'm looking forward to seeing how things go forward.~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.comMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
May 18, 2022 • 37min
35 - Axcella Therapeutics - AXA1125
Episode 35 of the Long Covid Podcast is a chat with Dr. Margaret Koziel, Chief Medical Officer and Bill Hinshaw, CEO from Axcella Therapeutics. Axcella Therapeutics is a biotech company based in Boston and they are currently working in collaboration with Oxford University on a clinical trial testing the impact of Long Covid on overall mitochondrial function, particularly the ongoing fatigue and brain fog symptoms.Links:Axcella Therapeutics Announces Initiation of AXA1125 Long COVID Phase 2a Clinical Trial – Axcella Therapeutics (axcellatx.com)Axcella Therapeutics Launches Clinical Program to Develop Treatment for Patients with Long COVID – Axcella Therapeutics (axcellatx.com)~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.comMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
May 11, 2022 • 39min
34 - Sam Munslow - author & the "Covid Coach"
Episode 34 of the Long Covid Podcast is a chat with Sam Munslow about her experiences with Covid and then Long Covid, and how that led to her new book "We Will Covive" and her becoming The Covid Coach.Sam's book is written with diary entries followed by reflections and it was fascinating reading it because I saw so many parallels from my own experiences, and had had similar reflections myself! We also talk about how our thoughts can be harmful and how "mental self-harming" adds even more nastiness on top of the physical experience of Long Covid.Links:Check out Sam's book "We Will Covive" Website HERE & buy the book HERE Sam's Blue Monkey Coaching website HERE~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.comMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
May 4, 2022 • 47min
33 - Resia Pretorius & Douglas Kell - Microclots
Episode 33 of the Long Covid Podcast is a chat with Professors Resia Pretorius & Douglas Kell about their discovery of microclots & hyperactive platelets in the blood of people with Long Covid, what this means and more about their research into this. We cover a whole load of amazing stuff from causes to possible treatments - I hope you enjoy listening as much as I enjoyed speaking to them! Links:Doug's Clots website: http://dbkgroup.org/longcovid/ Resia's article in the Guardian HEREThe hashtag #TeamClots on Twitter ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.comMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
Apr 27, 2022 • 41min
32 - Esther's Recovery Story
Episode 32 of the Long Covid Podcast is a chat with Esther about her Long Covid journey and eventual recovery. I think it's important to hear that people have recovered as it gives those of us who are still suffering a bit of hope. We talk about what helped her (and what didn't!) and although everyone's journey will be different, hopefully some of what we talk about will be helpful to you.Of course, neither myself or Esther are medical experts so make sure you listen to your body & consult your own health practitioners as Esther's strategies may not be appropriate for everyone.Links:Long Covid Cured website: longcovidcured.comNicole Sachs podcast HEREDr Schubiner "Unlearn you pain" HERE~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.comMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
Apr 20, 2022 • 38min
31 - Zoe Challenor & Long Covid Choir
Episode 31 of the Long Covid Podcast is a chat with Zoe Challenor - Zoe is a musician and singer who caught Covid early in the pandemic and went on to develop Long Covid. She has used her experiences of both Long Covid and singing to set up the Long Covid Choir - an online choir bringing together Long Covid sufferers from around the globe.We chat a bit about Zoe's experiences with Covid & Long Covid - I'm sure many of you will be able to relate - as well as how she set up the choir and what everyone gets out of it. The Long Covid Choir welcomes new members of any age and experience, whether you think you can sing or not - links below.Links: Long Covid Choir website: www.longcovidchoir.orgLong Covid Choir Facebook group: https://www.facebook.com/groups/longcovidchoir.org/B'Opera website: www.bopera.co.uk The short film about little ones separated from older relatives during lockdown - the soundtrack is made of the little ones' voices woven into the soundtrack: https://www.bopera.co.uk/stolen-moments~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
Apr 13, 2022 • 34min
30 - Dr Gavin Francis, GP & author
Episode 30 of the Long Covid Podcast is a chat with Dr Gavin Francis, a GP and writer whose new book "Recovery - the Lost Art of Convalescence" strikes a chord with many Long Covid sufferers.We chat about the book as well as his thoughts on long term illnesses such as Long Covid. I really enjoyed speaking with him, so I hope you do too. Links:Recovery - Profile Books Gavin Francis: doctor & writer~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.comMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
Apr 6, 2022 • 41min
29 - Lorna Nicholson - PoTS & Breathing
Episode 29 of the Long Covid Podcast is a chat with Lorna Nicholson, founder of PoTS UK and breathing aficionado.We try to de-mystify the condition of PoTS that so many people with Long Covid seem to have developed, as well as talking about my new favourite topic of breathing and how we can help our bodies. Lorna's experience of having PoTS means that she really gets what a lot of us are going through. I hope you enjoy listening to her as much as I did.Links:http://lornanpilates.co.uk/https://www.sirpa.org/https://podcasts.apple.com/gb/podcast/episode-159-recovery-from-long-covid-with-kurt/id1439580309?i=1000543810781https://podcasts.apple.com/gb/podcast/episode-122-recovery-from-covid-long-haul-with-lieke/id1439580309?i=1000510720985Long Covid - a mindbody perspective (1) video~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
Mar 30, 2022 • 46min
28 - Ziyad Al-Aly, Doctor & Researcher
Episode 28 of the Long Covid Podcast is a chat with Dr and researcher Ziyad Al-Aly who has been doing research into Long Covid based in St Louis, USA. We chat about his findings so far, his thoughts on the response to the pandemic as well as Long Covid, and his frustrations around the lack of research into post-viral conditions. Ziyad is an absolute wonder to chat to, so I hope you enjoy it as much as I did!Links:Ziyad's LinkedIn profileZiyad quoted in Guardian article "The WHO is letting down Long Covid patients"Paper published in Nature (November 2021)Paper published in Nature (April 2021)~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.comMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
Mar 23, 2022 • 48min
27 - Dr Jenny Ceolta-Smith: The Aftermath of Leaving Work
Episode 27 of the Long Covid Podcast is a chat with Dr Jenny Ceolta-Smith, Occupational Therapist and Co-Founder of Long Covid Work & Occupational Health for Long Covid.In this episode we discuss the situation in the UK that sadly a lot of people with Long Covid are now in - what happens when you have to leave work? What options might you have, and what can you do afterwards? We have plans to do another episode in the future, so if you have employment questions, please do get in touch and we'll do our best to answer them.Links:ACAS https://www.acas.org.uk https://www.acas.org.uk/long-covidNational law centres (GM law) https://www.lawcentres.org.uk https://www.gmlaw.org.ukEquality advisory service - https://www.equalityadvisoryservice.comGM law webinar "A Guide to Employment Law without Representation" https://www.youtube.com/watch?v=hykKCluupdk&t=4sLong Covid Work website https://longcovidwork.co.uk QMU podcasts https://www.qmu.ac.uk/research-and-knowledge-exchange/qmu-research/covid-19/support-after-covid-19/support-after-covid-study-podcast-series/Help with benefits https://www.citizensadvice.org.uk/benefits/ FAQ sheet from Solicitor specialising in employment law **coming soon**Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
