Long Covid Podcast
Jackie Baxter
The Podcast by and for Long Covid sufferers. Long Covid is estimated to affect at least 1 in 5 people infected with Covid-19. Many of these people were fit & healthy, many were successfully managing other conditions. Some people recover within a few months, but there are many who have been suffering for much much longer.Although there is currently no "cure" for Long Covid, and the millions of people still ill have been searching for answers for a long time, in this podcast I hope to explore the many things that can be done to help, through a mix of medical experts, researchers, personal experience & recovery stories. Bringing together the practical & the hopeful - "what CAN we do?"The Long Covid Podcast is currently self-funded. This podcast will always remain free, but if you like what you hear and are able to, please head along to www.buymeacoffee.com/longcovidpod to help me cover costs. ~ Follow me on: Facebook @longcovidpodcast ~ Instagram @longcovidpod ~ Twitter @longcovidpod ~ Website www.LongCovidPodcast.com ~ Please do get in touch with feedback and suggestions, either via the social media links or at longcovidpodcast@gmail.com - I'd love to hear from you. The Long Covid podcast is entirely self-funded and relies on donations - if you've found it useful and are able to, please go to www.buymeacoffee.com/longcovidpod to help me cover the costs of hosting.
Episodes
Mentioned books
May 4, 2022 • 47min
33 - Resia Pretorius & Douglas Kell - Microclots
Episode 33 of the Long Covid Podcast is a chat with Professors Resia Pretorius & Douglas Kell about their discovery of microclots & hyperactive platelets in the blood of people with Long Covid, what this means and more about their research into this. We cover a whole load of amazing stuff from causes to possible treatments - I hope you enjoy listening as much as I enjoyed speaking to them! Links:Doug's Clots website: http://dbkgroup.org/longcovid/ Resia's article in the Guardian HEREThe hashtag #TeamClots on Twitter ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.comMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
Apr 27, 2022 • 41min
32 - Esther's Recovery Story
Episode 32 of the Long Covid Podcast is a chat with Esther about her Long Covid journey and eventual recovery. I think it's important to hear that people have recovered as it gives those of us who are still suffering a bit of hope. We talk about what helped her (and what didn't!) and although everyone's journey will be different, hopefully some of what we talk about will be helpful to you.Of course, neither myself or Esther are medical experts so make sure you listen to your body & consult your own health practitioners as Esther's strategies may not be appropriate for everyone.Links:Long Covid Cured website: longcovidcured.comNicole Sachs podcast HEREDr Schubiner "Unlearn you pain" HERE~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.comMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
Apr 20, 2022 • 38min
31 - Zoe Challenor & Long Covid Choir
Episode 31 of the Long Covid Podcast is a chat with Zoe Challenor - Zoe is a musician and singer who caught Covid early in the pandemic and went on to develop Long Covid. She has used her experiences of both Long Covid and singing to set up the Long Covid Choir - an online choir bringing together Long Covid sufferers from around the globe.We chat a bit about Zoe's experiences with Covid & Long Covid - I'm sure many of you will be able to relate - as well as how she set up the choir and what everyone gets out of it. The Long Covid Choir welcomes new members of any age and experience, whether you think you can sing or not - links below.Links: Long Covid Choir website: www.longcovidchoir.orgLong Covid Choir Facebook group: https://www.facebook.com/groups/longcovidchoir.org/B'Opera website: www.bopera.co.uk The short film about little ones separated from older relatives during lockdown - the soundtrack is made of the little ones' voices woven into the soundtrack: https://www.bopera.co.uk/stolen-moments~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love tMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
Apr 13, 2022 • 34min
30 - Dr Gavin Francis, GP & author
Episode 30 of the Long Covid Podcast is a chat with Dr Gavin Francis, a GP and writer whose new book "Recovery - the Lost Art of Convalescence" strikes a chord with many Long Covid sufferers.We chat about the book as well as his thoughts on long term illnesses such as Long Covid. I really enjoyed speaking with him, so I hope you do too. Links:Recovery - Profile Books Gavin Francis: doctor & writer~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.comMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
Apr 6, 2022 • 41min
29 - Lorna Nicholson - PoTS & Breathing
Lorna Nicholson, a nurse-turned-Pilates teacher and founder of PoTS UK, shares her expertise on Postural Tachycardia Syndrome (PoTS) and breathing recovery strategies. She explains PoTS signs and its overlap with Long COVID, emphasizing the role of autonomic dysfunction. Lorna dives into managing PoTS through lifestyle changes, medications, and the vital importance of breathing patterns. She offers practical tips like mindfulness and slow breathing to calm the nervous system, making the complex condition more approachable for those affected.
Mar 30, 2022 • 46min
28 - Ziyad Al-Aly, Doctor & Researcher
Episode 28 of the Long Covid Podcast is a chat with Dr and researcher Ziyad Al-Aly who has been doing research into Long Covid based in St Louis, USA. We chat about his findings so far, his thoughts on the response to the pandemic as well as Long Covid, and his frustrations around the lack of research into post-viral conditions. Ziyad is an absolute wonder to chat to, so I hope you enjoy it as much as I did!Links:Ziyad's LinkedIn profileZiyad quoted in Guardian article "The WHO is letting down Long Covid patients"Paper published in Nature (November 2021)Paper published in Nature (April 2021)~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.comMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
Mar 23, 2022 • 48min
27 - Dr Jenny Ceolta-Smith: The Aftermath of Leaving Work
Episode 27 of the Long Covid Podcast is a chat with Dr Jenny Ceolta-Smith, Occupational Therapist and Co-Founder of Long Covid Work & Occupational Health for Long Covid.In this episode we discuss the situation in the UK that sadly a lot of people with Long Covid are now in - what happens when you have to leave work? What options might you have, and what can you do afterwards? We have plans to do another episode in the future, so if you have employment questions, please do get in touch and we'll do our best to answer them.Links:ACAS https://www.acas.org.uk https://www.acas.org.uk/long-covidNational law centres (GM law) https://www.lawcentres.org.uk https://www.gmlaw.org.ukEquality advisory service - https://www.equalityadvisoryservice.comGM law webinar "A Guide to Employment Law without Representation" https://www.youtube.com/watch?v=hykKCluupdk&t=4sLong Covid Work website https://longcovidwork.co.uk QMU podcasts https://www.qmu.ac.uk/research-and-knowledge-exchange/qmu-research/covid-19/support-after-covid-19/support-after-covid-study-podcast-series/Help with benefits https://www.citizensadvice.org.uk/benefits/ FAQ sheet from Solicitor specialising in employment law **coming soon**Follow Jenny on Twitter @JCeoltaSmith Jenny's LinkedIn Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
Mar 18, 2022 • 22min
BONUS episode: 2 Years of Long Covid - what have I learned?
In this BONUS episode of the Long Covid Podcast, Jackie talks about what she has learned from her experiences of Long Covid over the past 2 years. Although recovery is not linear, frustrating and definitely not there yet, she discusses some of what has helped her so far, and what she's learned about Long Covid and herself. Hopefully some of this might help you, or someone you know, too.Disclaimer - as always - I am not a medical professional! This is what I have learned about myself through my own experiences. Always discuss treatments & therapies with your doctor first. Available as video on Youtube HERE - and check out some of the other videos of "My Long Covid" on the Youtube channel too~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.comSupport the show (https://www.buymeacoffee.com/longcovidpod) Message the podcast! - questions will be answered on my youtube channel :) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
Mar 16, 2022 • 33min
26 - Dr Jackie Maybin - Long Covid & Women's Reproductive Health
Episode 26 of the Long Covid Podcast is a chat with Dr Jacqueline Maybin, Senior Clinical Research Fellow and Consultant Gynaecologist at the MRC Centre for Reproductive Health at the University of Edinburgh. She is doing research into Long Covid and womens reproductive health funded by the royal society of Edinburgh. We chat about the studies that she is currently involved in - one that is currently at the analysing stage, and 2 that are actively recruiting - one UK-wide, and one a small tissue-based study in the Lothian area. It's a fascinating topic and I hope you are able to take something from it. If you're interested in participating, links are below (feel free to ping me a message if you're stuck) Links:UK-wide study (currently recruiting) www.tinyurl.com/long-covid-womans-health-study"Healthy optimal periods for everyone" menstrual health website www.ed.ac.uk/hope Posters for both recruiting studies are on the Podcast Research Page HERE~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.comMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
Mar 9, 2022 • 46min
25 - Scottish Opera's "Breath Cycle" for Long Covid
Episode 25 of the Long Covid Podcast is a chat with singer David Douglas and composer Gareth Williams about the work they are doing with Scottish Opera's Breath Cycle project which is designed around helping people with Long Covid.The project is currently in pilot stage and they hope to roll it out to a bigger group soon - but it sounds like a fabulous project, mixing together music making, creativity & social interaction with a wonderful team of musicians, as well as the health benefits.If you might be interested in getting involved, follow the first link below (or drop me a message and I'll direct you)Links:More info & how to join Breath Cycle press release Breath Cycle on NHS website~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link orMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
