New Books in Disability Studies

In this conversation, Mary Zaborskis, an Assistant Professor at Penn State Harrisburg, explores the nuanced intersection of race, disability, and queerness in childhood experiences. She discusses how institutions like boarding schools historically shaped the identities of marginalized children, often enforcing control rather than reform. Zaborskis critically examines the legacy of the Virginia Industrial School and the implications of hygiene education on African-American youth. Her insights reveal the complex histories that intertwine disability, sexuality, and institutional power.

Whitney Dirks joins Jana Byars to talk about her new book, Monstrosity, Bodies, and Knowledge in Early Modern England: Curiosity to See and Behold (Amsterdam University Press, 2024). In 1680, the poor cottager Mary Herring gave birth to conjoined twins. At two weeks of age, they were kidnapped to be shown for money, and their deaths shortly thereafter gave rise to a four-year legal battle over ownership and income. The Herring twins' microhistory weaves throughout this book, as the chapter structure alternates between the family's ordeal and the broader cultural context of how so-called 'monstrous births' (a contemporary term for deformed humans and animals) were discussed in cheap print, exhibited in London's pubs and coffeehouses, examined by the Royal Society, portrayed in visual culture, and litigated in London's legal courts. This book ties together social and medical history, Disability Studies, and Monster Studies to argue that people discussed unusual bodies in early modern England because they provided newsworthy entertainment, revealed the will of God, and demonstrated the internal workings of Nature. Learn more about your ad choices. Visit megaphone.fm/adchoices

Jaipreet Virdi, a historian of medicine and disability, Mara Mills from NYU’s Center for Disability Studies, and Sarah Rose, an associate professor of history, dive into the intertwined narratives of disability and science. They discuss how scientific theories have historically influenced disabilities, particularly through war and colonialism. The trio explores the need for inclusive narratives, the impact of labor history on disability, and the evolution of terms like 'impairment,' advocating for recognition of disabled voices within scientific discourse.

Jonathan Sterne is one of the most influential scholars working on sound and listening. His 2003 book, The Audible Past: Cultural Origins of Sound Reproduction, had a formative influence on the then-nascent field of sound studies. His 2012 book, MP3: The Meaning of a Format, was both a fascinating cultural history and a deep meditation on the purpose of compression technology in capitalism. Today, Sterne talks to Phantom Power about his new book, Diminished Faculties: A Political Phenomenology of Impairment (Duke UP 2022). Specifically, he tells the story of the “Dork-o-phone,” a vocal amplifier he wears to give talks or communicate in loud spaces. Jonathan explains why he wears the Dork-o-phone, what it’s taught him about voice, technology, and disability, and how his experience informs Diminished Faculties’ “phenomenology of impairment.”This is the third and final part of our series, Voices. Although you don’t need to listen to the other episodes first to enjoy this one, here are the links to part one and part two.All of this episode’s sound art and music are performed by Jonathan Sterne and/or groups he appears in: Cancerscapes: Recordings made during Sterne’s thyroid cancer treatment Volte: An instrumental post rock band The Buddha Curtain: solo electronic music Jonathan Sterne is Professor and James McGill Chair in Culture and Technology at McGill University. He does research in sound studies; media theory and historiography; science and technology studies; new media; disability studies; music; and cultural studies.You can read Jonathan Sterne’s cancer diaries at https://www.cancerscapes.ca. Learn more about your ad choices. Visit megaphone.fm/adchoices

Deep below the ground in Tucson, Arizona, lies an aquifer forever altered by the detritus of a postwar Superfund site. Disabled Ecologies: Lessons From a Wounded Desert (U California Press, 2024) by Dr. Sunaura Taylor, tells the story of this contamination and its ripple effects through the largely Mexican-American community living above. Drawing on her own complex relationship to this long-ago injured landscape, Dr. Taylor takes us with her to follow the site's disabled ecology—the networks of disability, both human and wild, that are created when ecosystems are corrupted and profoundly altered. What Taylor finds is a story of entanglements that reach far beyond the Sonoran Desert. These stories tell of debilitating and sometimes life-ending injuries, but they also map out alternative modes of connection, solidarity, and resistance—an environmentalism of the injured. An original and deeply personal reflection on what disability means in an era of increasing multispecies disablement, Disabled Ecologies is a powerful call to reflect on the kinds of care, treatment, and assistance this age of disability requires.Our guest is: Dr. Sunaura Taylor, who is Assistant Professor of Environmental Science, Policy, and Management at the University of California, Berkeley, and author of the American Book Award–winning Beasts of Burden: Animal and Disability Liberation.Our host is: Dr. Christina Gessler, the producer of the Academic Life podcast. She holds a PhD in history, which she uses to explore what stories we tell and what happens to those we never tell.Playlist for listeners: A conversation about Sitting Pretty Pandemic Perspectives The Killer Whale Journals The Well-Gardened Mind Endless Forms Welcome to Academic Life, the podcast for your academic journey—and beyond! You can support the show by posting, assigning or sharing episodes. Join us again to learn from more experts inside and outside the academy, and around the world. Missed any of the 225+ Academic Life episodes? You’ll find them all archived here. Learn more about your ad choices. Visit megaphone.fm/adchoices

People with dementia are uniquely qualified to discuss the challenges of their condition and the features of effective support, but their voices are all too often drowned out in research and debates about policy. According to People with Dementia at the Heart of Research: Co-Producing Research through The Dementia Enquirers Model (Jessica Kingsley Publishers, 2024) by Rachael Litherland & Philly Hare, it's time for that to change.Dementia Enquirers is an ambitious and novel programme of work which has tested out what it means for people with dementia to lead research and has developed a new 'driving seat' approach to co-research.This ground-breaking book features 26 research projects led by groups of people with dementia, supported by group facilitators and academics, to make their voices heard. Topics include giving up driving, GP dementia reviews, living alone with dementia, and using AI platforms such as smart speakers. The book also describes how people with dementia shaped the entire programme, and addressed head-on issues such as ethics approval processes and complex research language. The book is a key read for anyone involved in dementia support, this research brings the voices of people with dementia to the fore to explore their experiences of researching the condition.This interview was conducted by Dr. Miranda Melcher whose new book focuses on post-conflict military integration, understanding treaty negotiation and implementation in civil war contexts, with qualitative analysis of the Angolan and Mozambican civil wars. Learn more about your ad choices. Visit megaphone.fm/adchoices

Johanna Hedva, a Korean American writer, artist, and musician, shares insights from their influential work on disability and pain. They delve into how chronic illness challenges the notion of productivity within capitalism and advocate for the revolutionary act of self-care. The conversation also explores intimacy in disability, including concepts of 'access intimacy' linked to kink and consent. Hedva emphasizes the need for greater recognition of queer and trans narratives in the disability dialogue, pushing for a more inclusive understanding of care and advocacy.

Peoples & Things host, Lee Vinsel, talks with Meryl Alper, Associate Professor of Communication Studies at Northeastern University, about her recent book, Kids Across the Spectrums: Growing Up Autistic in the Digital Age (MIT Press, 2023). In addition to being a professor, Alper is also an educational researcher who has worked over the past 20 years to make inclusive and accessible learning products with media organizations such as Sesame Workshop, Nickelodeon, and PBS KIDS. Vinsel and Alper talk about disability studies, the nature of Alper’s empirical work, the arc of Alper’s career, including her future projects. Learn more about your ad choices. Visit megaphone.fm/adchoices

Fitter, Happier: The Eugenic Strain in Twentieth-Century Cancer Rhetoric (U Alabama Press, 2024) is a thought-provoking exploration of the relationship between cancer rhetoric, American ideals, and eugenic influences in the twentieth century. This groundbreaking work delves into the paradoxical interplay between acknowledging the genuine threat of cancer and the ingrained American ethos of confidence and control.Agnew's meticulous research traces the topic's historical context, unveiling how cancer discourses evolved from a hushed personal concern to a public issue thanks to the rise of cancer research centers and advocacy organizations. However, she unearths a troubling dimension to these discussions--subtle yet persistent eugenic ideologies that taint cancer arguments and advocacy groups. By dissecting prevailing cancer narratives, Agnew brings into focus how ideals rooted in eliminating imperfections and embracing progress converge with concerns for safeguarding societal fitness.Fitter, Happier scrutinizes the military origins and metaphors that permeate government policies and medical research, the transformation of cancer's association with melancholy into a rallying cry for a positive outlook, and the nuanced implications of prevention-focused dialogues. Reflecting on the varied experiences of actual cancer patients, Agnew resists the neat assimilation of these stories into a eugenic framework. Agnew's insights prompt readers to contemplate the societal meanings of disease and disability as well as how language constructs our shared reality. Learn more about your ad choices. Visit megaphone.fm/adchoices

Peoples & Things host, Lee Vinsel, talks to Raquel Velho, Associate Professor of Science and Technology Studies at Rensselaer Polytechnic Institute, about her recent book, Hacking the Underground: Disability, Infrastructure, and London's Public Transport System (U Washington Press, 2023). Hacking the Underground provides a fascinating ethnographic investigation of how disabled people navigate a transportation system that is far from accessible. Velho finds disabled passengers constantly hacking and finding workarounds, including lots of fix-y maintenance tasks, to get from one place to another. While these workarounds involve obvious creativity, they are also the products of an unequal system and the failure to enact a more-thoroughgoing and radically-transformative redesigning of public transportation systems in the name of accessibility. Vinsel and Velho also touch on a wide range of other topics, including issues of theory and method, and they talk about what Velho is up to next. Learn more about your ad choices. Visit megaphone.fm/adchoices