New Books in Disability Studies

People with dementia are uniquely qualified to discuss the challenges of their condition and the features of effective support, but their voices are all too often drowned out in research and debates about policy. According to People with Dementia at the Heart of Research: Co-Producing Research through The Dementia Enquirers Model (Jessica Kingsley Publishers, 2024) by Rachael Litherland & Philly Hare, it's time for that to change.Dementia Enquirers is an ambitious and novel programme of work which has tested out what it means for people with dementia to lead research and has developed a new 'driving seat' approach to co-research.This ground-breaking book features 26 research projects led by groups of people with dementia, supported by group facilitators and academics, to make their voices heard. Topics include giving up driving, GP dementia reviews, living alone with dementia, and using AI platforms such as smart speakers. The book also describes how people with dementia shaped the entire programme, and addressed head-on issues such as ethics approval processes and complex research language. The book is a key read for anyone involved in dementia support, this research brings the voices of people with dementia to the fore to explore their experiences of researching the condition.This interview was conducted by Dr. Miranda Melcher whose new book focuses on post-conflict military integration, understanding treaty negotiation and implementation in civil war contexts, with qualitative analysis of the Angolan and Mozambican civil wars. Learn more about your ad choices. Visit megaphone.fm/adchoices

Johanna Hedva, a Korean American writer, artist, and musician, shares insights from their influential work on disability and pain. They delve into how chronic illness challenges the notion of productivity within capitalism and advocate for the revolutionary act of self-care. The conversation also explores intimacy in disability, including concepts of 'access intimacy' linked to kink and consent. Hedva emphasizes the need for greater recognition of queer and trans narratives in the disability dialogue, pushing for a more inclusive understanding of care and advocacy.

Peoples & Things host, Lee Vinsel, talks with Meryl Alper, Associate Professor of Communication Studies at Northeastern University, about her recent book, Kids Across the Spectrums: Growing Up Autistic in the Digital Age (MIT Press, 2023). In addition to being a professor, Alper is also an educational researcher who has worked over the past 20 years to make inclusive and accessible learning products with media organizations such as Sesame Workshop, Nickelodeon, and PBS KIDS. Vinsel and Alper talk about disability studies, the nature of Alper’s empirical work, the arc of Alper’s career, including her future projects. Learn more about your ad choices. Visit megaphone.fm/adchoices

Fitter, Happier: The Eugenic Strain in Twentieth-Century Cancer Rhetoric (U Alabama Press, 2024) is a thought-provoking exploration of the relationship between cancer rhetoric, American ideals, and eugenic influences in the twentieth century. This groundbreaking work delves into the paradoxical interplay between acknowledging the genuine threat of cancer and the ingrained American ethos of confidence and control.Agnew's meticulous research traces the topic's historical context, unveiling how cancer discourses evolved from a hushed personal concern to a public issue thanks to the rise of cancer research centers and advocacy organizations. However, she unearths a troubling dimension to these discussions--subtle yet persistent eugenic ideologies that taint cancer arguments and advocacy groups. By dissecting prevailing cancer narratives, Agnew brings into focus how ideals rooted in eliminating imperfections and embracing progress converge with concerns for safeguarding societal fitness.Fitter, Happier scrutinizes the military origins and metaphors that permeate government policies and medical research, the transformation of cancer's association with melancholy into a rallying cry for a positive outlook, and the nuanced implications of prevention-focused dialogues. Reflecting on the varied experiences of actual cancer patients, Agnew resists the neat assimilation of these stories into a eugenic framework. Agnew's insights prompt readers to contemplate the societal meanings of disease and disability as well as how language constructs our shared reality. Learn more about your ad choices. Visit megaphone.fm/adchoices

Peoples & Things host, Lee Vinsel, talks to Raquel Velho, Associate Professor of Science and Technology Studies at Rensselaer Polytechnic Institute, about her recent book, Hacking the Underground: Disability, Infrastructure, and London's Public Transport System (U Washington Press, 2023). Hacking the Underground provides a fascinating ethnographic investigation of how disabled people navigate a transportation system that is far from accessible. Velho finds disabled passengers constantly hacking and finding workarounds, including lots of fix-y maintenance tasks, to get from one place to another. While these workarounds involve obvious creativity, they are also the products of an unequal system and the failure to enact a more-thoroughgoing and radically-transformative redesigning of public transportation systems in the name of accessibility. Vinsel and Velho also touch on a wide range of other topics, including issues of theory and method, and they talk about what Velho is up to next. Learn more about your ad choices. Visit megaphone.fm/adchoices

In Menace to the Future: A Disability and Queer History of Carceral Eugenics (Duke UP, 2024), Jess Whatcott traces the link between US disability institutions and early twentieth-century eugenicist ideology, demonstrating how the legacy of those ideas continues to shape incarceration and detention today. Whatcott focuses on California, examining records from state institutions and reform organizations, newspapers, and state hospital museum exhibits. They reveal that state confinement, coercive treatment, care neglect, and forced sterilization were done out of the belief that the perceived unfitness of disabled, mad, and neurodivergent people was hereditary and thus posed a biological threat—a so-called menace to the future. Whatcott uncovers a history of disabled resistance to these institutions that predates disability rights movements, builds a genealogy of resistance, and tells a history of eugenics from below. Theorizing how what they call “carceral eugenics” informed state treatment of disabled, mad, and neurodivergent people a century ago, Whatcott shows not only how that same logic still exists in secure treatment facilities, state prisons, and immigration detention centers, but also why it must continue to be resisted. Learn more about your ad choices. Visit megaphone.fm/adchoices

Creating a Person-Centered Library: Best Practices for Supporting High-Needs Patrons (Bloomsbury, 2023) provides a comprehensive overview of various services, programs, and collaborations to help libraries serve high-needs patrons as well as strategies for supporting staff working with these individuals. While public libraries are struggling to address growing numbers of high-needs patrons experiencing homelessness, food insecurity, mental health problems, substance abuse, and poverty-related needs, this book will help librarians build or contribute to library services that will best address patrons' psychosocial needs. Beth Wahler and Sarah C. Johnson, experienced in both library and social work, begin by providing an overview of patrons' psychosocial needs, structural and societal reasons for the shift in these needs, and how these changes impact libraries and library staff. Chapters focus on best practices for libraries providing person-centered services and share lessons learned, including information about special considerations for certain patron populations that might be served by individual libraries. The book concludes with information about how library organizations can support public library staff. Librarians and library students who are concerned about both patrons and library staff will find the practical advice in this book invaluable.NBN can get 20% off Creating a Person-Centered Library by using the discount code NBN20 on the Blooomsbury.com US website.Beth Wahler, PhD, MSW is founder and principal consultant at Beth Wahler Consulting, LLC and affiliated research faculty and previous director of the School of Social Work at the University of North Carolina- Charlotte. Dr. Wahler is a social work consultant, researcher, and experienced administrator whose primary focus is trauma-informed librarianship, library strategies for addressing patrons’ or community psychosocial needs, supporting library staff with serving high-needs patrons and reducing work-related stress/trauma, and various kinds of collaborations, services, and programs to meet patron, staff, or community needs. She has also published and presented internationally on library patron and staff needs, trauma-informed librarianship, and library/social work collaborations. Sarah C. Johnson, MLIS, LMSW, is an Adjunct Lecturer at the School of Information Sciences at the University of Illinois at Urbana-Champaign where she teaches a graduate course on Library Social Work. As a researcher and educator, Sarah is the creator and host of the Library Social Work podcast which aims to inform the public about interdisciplinary collaborations between social service providers and public libraries.Dr. Michael LaMagna is the Information Literacy Program & Library Services Coordinator and Professor of Library Services at Delaware County Community College. Learn more about your ad choices. Visit megaphone.fm/adchoices

Asylum Ways of Seeing: Psychiatric Patients, American Thought and Culture (University of Pennsylvania Press, 2021) by Dr. Heather Murray is a cultural and intellectual history of people with mental illnesses in the twentieth-century United States. While acknowledging the fraught, and often violent, histories of American psychiatric hospitals, Heather Murray also suggests that it is in these hospitals that patients became more intense observers: they gave more conscious consideration to institutional and broader kinds of citizenship, to the nature and needs of communities versus those of individuals, to scientific modernity, and to human rights and solidarities among the suffering. All of these ideas have animated twentieth-century America, and, as Dr. Murray shows, have not just flowed into psychiatric hospitals but outward from them as well. These themes are especially clear within patients' intimate, creative, and political correspondence, writings, and drawings, as well as in hospital publications and films.This way of thinking and imagining contrasts with more common images of the patient—as passive, resigned, and absented from the world in the cloistered setting of the hospital—that have animated psychiatry over the course of the twentieth century. Asylum Ways of Seeing traces how it is that patient resignation went from being interpreted as wisdom in the early twentieth century, to being understood as a capitulation in scientific and political sources by mid-century, to being seen as a profound violation of selfhood and individual rights by the century's end. In so doing, it makes a call to reconsider the philosophical possibilities within resignation. This interview was conducted by Dr. Miranda Melcher whose new book focuses on post-conflict military integration, understanding treaty negotiation and implementation in civil war contexts, with qualitative analysis of the Angolan and Mozambican civil wars. Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode, Dr Pierce Salguero sits down with Dr Theodora Wildcroft, a researcher, anthropologist, and long-time teacher of what she calls “post-lineage yoga.” We discuss Theo's ethnographic research on yoga in the UK, focusing on its connections with animism, paganism, and other somatic practices. We also dive into Theo’s personal approach to yoga as a liberatory practice that allows diverse bodies and minds to thrive. Along the way, we touch on disability, neuro-divergence, cultural appropriation, and the inescapable influence of colonialism for contemporary yogis.Remember, if you want to hear from more experts on Buddhism, Asian medicine, and embodied spirituality, subscribe to Blue Beryl for monthly episodes. Please enjoy!Resources mentioned in this episode: Theodora Wildcroft, Post Lineage Yoga: From Guru to #MeToo (2020) Theo Wildcroft & Harriet Mcatee, The Yoga Teacher's Survival Guide: Social Justice, Science, Politics, and Power (2024) Barbora Sojkova & Theodora Wildcroft, Yoga Studies in 5 Minutes (2025) Theo’s website: https://theowildcroft.com Pierce Salguero is a transdisciplinary scholar of health humanities who is fascinated by historical and contemporary intersections between Buddhism, medicine, and crosscultural exchange. He has a Ph.D. in History of Medicine from the Johns Hopkins School of Medicine (2010), and teaches Asian history, medicine, and religion at Penn State University’s Abington College, located near Philadelphia. www.piercesalguero.com. Learn more about your ad choices. Visit megaphone.fm/adchoices

Ella Houston's book Advertising Disability (Routledge, 2024) invites Cultural Disability Studies to consider how advertising, as one of the most ubiquitous forms of popular culture, shapes attitudes towards disability.The research presented in the book provides a much-needed examination of the ways in which disability and mental health issues are depicted in different types of advertising, including charity 'sadvertisements', direct-to-consumer pharmaceutical advertisements and 'pro-diversity' brand campaigns. Textual analyses of advertisements from the eighteenth century onwards reveal how advertising reinforces barriers facing disabled people, such as stigmatising attitudes, ableist beauty 'ideals', inclusionism and the unstable crutch of charity.As well as investigating how socio-cultural meanings associated with disability are influenced by multimodal forms of communication in advertising, insights from empirical research conducted with disabled women in the United Kingdom and the United States are provided. Moving beyond traditional textual approaches to analysing cultural representations, the book emphasises how disabled people and activists develop counternarratives informed by their personal experiences of disability, challenging ableist messages promoted by advertisements. From start to finish, activist concepts developed by the Disabled People's Movement and individuals' embodied knowledge surrounding disability, impairments and mental health issues inform critiques of advertisements.Its critically informed approach to analysing portrayals of disability is relevant to advertisers, scholars and students in advertising studies and media studies who are interested in portraying diversity in marketing and promotional materials as well as scholars and students of disability studies and sociology more broadly. Learn more about your ad choices. Visit megaphone.fm/adchoices