New Books in Disability Studies

In contemporary China, people diagnosed with serious mental illnesses have long been placed under the guardianship of close relatives who decide on their hospitalization and treatment. Despite attempts at reforms to ensure patient rights, the 2013 Mental Health Law reinforced the family's rights and responsibilities. In Between Families and Institutions, Zhiying Ma examines how ideological, institutional, and technological processes shape families' complicated involvement in psychiatric care. Drawing on extensive ethnographic fieldwork in psychiatric hospitals, community mental health teams, social work centers, and family support groups as well as interviews with policymakers and activists, Ma maps the workings of what she calls "biopolitical paternalism"--a mode of governance that sees vulnerable individuals as sources of risk, frames risk management as the state's paternalistic intervention, and shifts responsibilities for care and management onto families. Ma outlines the ethical tensions, intimate vulnerabilities in households, and health disparities across the population that biopolitical paternalism produces. By exploring these implications, Ma demonstrates the myriad ways biopower enables, inhibits, and transforms medical care in China. Learn more about your ad choices. Visit megaphone.fm/adchoices

Through a thoughtful investigation, Disability in Ptolemaic Egypt and the Hellenistic World: Plato’s Stepchildren (Routledge, 2024) reveals often-overlooked narratives of disability within Ptolemaic Egypt and the larger Hellenistic world (332 BCE to 30 BCE). Chapters explore evidence of physical and intellectual disability, ranging from named individuals; representations of people and mythological figures with dwarfism, blindness and vision impairments; cerebral palsy; mobility impairments; spinal disability; and medicine, healing, and prosthetics. Morris examines the historiographical ways in which disability has been approached, and how ancient disability histories are (mis)represented in various contemporary spaces. It uses terminology informed by the disability community and offers guidance for disability inclusivity in curatorial and pedagogical museum and university contexts, as well as prioritizing disability as an essential area of research in ancient world studies and assisting readers with the identification of ancient disability artefacts.The first-book length treatment of the subject, Disability in Ptolemaic Egypt and the Hellenistic World provides a much-needed resource for students and scholars of ancient Egypt, Egyptology, Classics, Classical Studies, and disability in the ancient world. It is also suitable for researchers in Disability Studies, practitioners in broader Ancient World Studies, and museum and heritage professionals. It is accessible to disabled people curious about their own history, as well as nondisabled people interested in disability history and those interested in a more accurate view of ancient Egyptian history. Learn more about your ad choices. Visit megaphone.fm/adchoices

Michael Rembis, a history professor and director at the Center for Disability Studies, dives into the often hidden narratives of asylum inmates from 1830 to 1950. He reveals their writings that challenge the image of asylums as mere medical facilities, exposing them as venues of violence and abuse. Rembis highlights the impact of mad writers advocating for change, illustrating how their personal stories influenced perceptions of madness and mental health reforms. The discussion uncovers the struggle between medical authority and the voices of those labeled as mad.

In this conversation, Mary Zaborskis, an Assistant Professor at Penn State Harrisburg, explores the nuanced intersection of race, disability, and queerness in childhood experiences. She discusses how institutions like boarding schools historically shaped the identities of marginalized children, often enforcing control rather than reform. Zaborskis critically examines the legacy of the Virginia Industrial School and the implications of hygiene education on African-American youth. Her insights reveal the complex histories that intertwine disability, sexuality, and institutional power.

Whitney Dirks joins Jana Byars to talk about her new book, Monstrosity, Bodies, and Knowledge in Early Modern England: Curiosity to See and Behold (Amsterdam University Press, 2024). In 1680, the poor cottager Mary Herring gave birth to conjoined twins. At two weeks of age, they were kidnapped to be shown for money, and their deaths shortly thereafter gave rise to a four-year legal battle over ownership and income. The Herring twins' microhistory weaves throughout this book, as the chapter structure alternates between the family's ordeal and the broader cultural context of how so-called 'monstrous births' (a contemporary term for deformed humans and animals) were discussed in cheap print, exhibited in London's pubs and coffeehouses, examined by the Royal Society, portrayed in visual culture, and litigated in London's legal courts. This book ties together social and medical history, Disability Studies, and Monster Studies to argue that people discussed unusual bodies in early modern England because they provided newsworthy entertainment, revealed the will of God, and demonstrated the internal workings of Nature. Learn more about your ad choices. Visit megaphone.fm/adchoices

Jaipreet Virdi, a historian of medicine and disability, Mara Mills from NYU’s Center for Disability Studies, and Sarah Rose, an associate professor of history, dive into the intertwined narratives of disability and science. They discuss how scientific theories have historically influenced disabilities, particularly through war and colonialism. The trio explores the need for inclusive narratives, the impact of labor history on disability, and the evolution of terms like 'impairment,' advocating for recognition of disabled voices within scientific discourse.

Jonathan Sterne is one of the most influential scholars working on sound and listening. His 2003 book, The Audible Past: Cultural Origins of Sound Reproduction, had a formative influence on the then-nascent field of sound studies. His 2012 book, MP3: The Meaning of a Format, was both a fascinating cultural history and a deep meditation on the purpose of compression technology in capitalism. Today, Sterne talks to Phantom Power about his new book, Diminished Faculties: A Political Phenomenology of Impairment (Duke UP 2022). Specifically, he tells the story of the “Dork-o-phone,” a vocal amplifier he wears to give talks or communicate in loud spaces. Jonathan explains why he wears the Dork-o-phone, what it’s taught him about voice, technology, and disability, and how his experience informs Diminished Faculties’ “phenomenology of impairment.”This is the third and final part of our series, Voices. Although you don’t need to listen to the other episodes first to enjoy this one, here are the links to part one and part two.All of this episode’s sound art and music are performed by Jonathan Sterne and/or groups he appears in: Cancerscapes: Recordings made during Sterne’s thyroid cancer treatment Volte: An instrumental post rock band The Buddha Curtain: solo electronic music Jonathan Sterne is Professor and James McGill Chair in Culture and Technology at McGill University. He does research in sound studies; media theory and historiography; science and technology studies; new media; disability studies; music; and cultural studies.You can read Jonathan Sterne’s cancer diaries at https://www.cancerscapes.ca. Learn more about your ad choices. Visit megaphone.fm/adchoices

Deep below the ground in Tucson, Arizona, lies an aquifer forever altered by the detritus of a postwar Superfund site. Disabled Ecologies: Lessons From a Wounded Desert (U California Press, 2024) by Dr. Sunaura Taylor, tells the story of this contamination and its ripple effects through the largely Mexican-American community living above. Drawing on her own complex relationship to this long-ago injured landscape, Dr. Taylor takes us with her to follow the site's disabled ecology—the networks of disability, both human and wild, that are created when ecosystems are corrupted and profoundly altered. What Taylor finds is a story of entanglements that reach far beyond the Sonoran Desert. These stories tell of debilitating and sometimes life-ending injuries, but they also map out alternative modes of connection, solidarity, and resistance—an environmentalism of the injured. An original and deeply personal reflection on what disability means in an era of increasing multispecies disablement, Disabled Ecologies is a powerful call to reflect on the kinds of care, treatment, and assistance this age of disability requires.Our guest is: Dr. Sunaura Taylor, who is Assistant Professor of Environmental Science, Policy, and Management at the University of California, Berkeley, and author of the American Book Award–winning Beasts of Burden: Animal and Disability Liberation.Our host is: Dr. Christina Gessler, the producer of the Academic Life podcast. She holds a PhD in history, which she uses to explore what stories we tell and what happens to those we never tell.Playlist for listeners: A conversation about Sitting Pretty Pandemic Perspectives The Killer Whale Journals The Well-Gardened Mind Endless Forms Welcome to Academic Life, the podcast for your academic journey—and beyond! You can support the show by posting, assigning or sharing episodes. Join us again to learn from more experts inside and outside the academy, and around the world. Missed any of the 225+ Academic Life episodes? You’ll find them all archived here. Learn more about your ad choices. Visit megaphone.fm/adchoices

People with dementia are uniquely qualified to discuss the challenges of their condition and the features of effective support, but their voices are all too often drowned out in research and debates about policy. According to People with Dementia at the Heart of Research: Co-Producing Research through The Dementia Enquirers Model (Jessica Kingsley Publishers, 2024) by Rachael Litherland & Philly Hare, it's time for that to change.Dementia Enquirers is an ambitious and novel programme of work which has tested out what it means for people with dementia to lead research and has developed a new 'driving seat' approach to co-research.This ground-breaking book features 26 research projects led by groups of people with dementia, supported by group facilitators and academics, to make their voices heard. Topics include giving up driving, GP dementia reviews, living alone with dementia, and using AI platforms such as smart speakers. The book also describes how people with dementia shaped the entire programme, and addressed head-on issues such as ethics approval processes and complex research language. The book is a key read for anyone involved in dementia support, this research brings the voices of people with dementia to the fore to explore their experiences of researching the condition.This interview was conducted by Dr. Miranda Melcher whose new book focuses on post-conflict military integration, understanding treaty negotiation and implementation in civil war contexts, with qualitative analysis of the Angolan and Mozambican civil wars. Learn more about your ad choices. Visit megaphone.fm/adchoices

Johanna Hedva, a Korean American writer, artist, and musician, shares insights from their influential work on disability and pain. They delve into how chronic illness challenges the notion of productivity within capitalism and advocate for the revolutionary act of self-care. The conversation also explores intimacy in disability, including concepts of 'access intimacy' linked to kink and consent. Hedva emphasizes the need for greater recognition of queer and trans narratives in the disability dialogue, pushing for a more inclusive understanding of care and advocacy.