The Baffling Behavior Show {Parenting after Trauma}

Ep. 98: From the Inside Out- My husband's journey with a neuroimmune condition

Oct 18, 2022
Dive into the complexities of neuroimmune conditions as a husband shares his personal battles with a fragile nervous system. Discover what children facing these challenges often can't articulate and gain insight into effective caregiver responses. Explore the hidden emotional struggles within families and learn how these experiences can reshape perceptions of behavior. Emotional vulnerability and support emerge as essential themes, highlighting the need for compassion in navigating these tough journeys.
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ANECDOTE

Ed's Lyme Journey

  • Ed, Robyn's husband, recounts his experience with Lyme disease, likely contracted in his youth.
  • He describes challenges with word retrieval, mispronunciation, and emotional regulation, particularly rage.
INSIGHT

Acute vs. Chronic Onset

  • While Ed's neuroimmune disorder flared dramatically, it also had a long history, highlighting how "acute" onset can be misleading.
  • Robyn notes children's baffling behaviors might be misinterpreted as solely trauma-related, overlooking potential neuroimmune factors.
INSIGHT

Judging Behavior in Children vs Adults

  • Adults' baffling behaviors often trigger concern, while children's similar behaviors are sometimes dismissed as misbehavior.
  • This makes it harder to recognize underlying neurological issues in children.
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