I invited an adult with a neuroimmune condition onto the podcast to discuss his experience and provide listeners with some insight on what children with PANS/PANDAS and other neuroimmune conditions may not have the words to describe. This special guest happens to be my husband, Ed. This episode is part 2 in a 3 part series. Next week, you'll hear me discuss my experience as a caregiver.
In this episode, you’ll learn:
- What a child with a vulnerable nervous system may long for you to know, but doesn't have the ability to tell you verbally
- What kind of caregiver response really helps (sometimes)
- How the Dysregulation - Shame Cycle feels
Read a summary or the full transcript on my website: https://robyngobbel.com/neuroimmuneinsideout
Resources
PANDAS physician network https://www.pandasppn.org/
Neuroimmune Foundation https://neuroimmune.org/
ASPIRE: The Alliance to Solve PANS and Immune Related Encephalopathies https://aspire.care/
Monster in Me Documentary: https://www.themonsterinsideme.com/
We have a few spots remaining in the professional, retreat style workshop Presence in Practice in Durango, CO March 5-7, 2026. Head to RobynGobbel.com/Durango for details and registration
Check out RobynGobbel.com/Trainings for the professional trainings scheduled around the US in 2026.
Get access to over 25+ free resources in our brand, new Free Resource Hub! RobynGobbel.com/FreeResourceHub
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Grab a copy of USA Today Best Selling book Raising Kids with Big, Baffling Behaviors robyngobbel.com/book
Join us in The Club for more support! robyngobbel.com/TheClub
Sign up on the waiting list for the 2027 Cohorts of the Baffling Behavior Training Institute's Immersion Program for Professionals robyngobbel.com/Immersion
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Over on my website you can find:
Webinar and eBook on Focus on the Nervous System to Change Behavior (FREE)
eBook on The Brilliance of Attachment (FREE)
LOTS & LOTS of FREE Resources
Ongoing support, connection, and co-regulation for struggling parents: The Club
Year-Long Immersive & Holistic Training Program for Parenting Professionals: The Baffling Behavior Training Institute’s (BBTI) Professional Immersion Program (formerly Being With)
