I invited an adult with a neuroimmune condition onto the podcast to discuss his experience and provide listeners with some insight on what children with PANS/PANDAS and other neuroimmune conditions may not have the words to describe. This special guest happens to be my husband, Ed. This episode is part 2 in a 3 part series. Next week, you'll hear me discuss my experience as a caregiver.
In this episode, you’ll learn:
- What a child with a vulnerable nervous system may long for you to know, but doesn't have the ability to tell you verbally
- What kind of caregiver response really helps (sometimes)
- How the Dysregulation - Shame Cycle feels
Read a summary or the full transcript on my website: https://robyngobbel.com/neuroimmuneinsideout
Resources
PANDAS physician network https://www.pandasppn.org/
Neuroimmune Foundation https://neuroimmune.org/
ASPIRE: The Alliance to Solve PANS and Immune Related Encephalopathies https://aspire.care/
Monster in Me Documentary: https://www.themonsterinsideme.com/
The Club is welcoming new members starting next Tuesday! Set yourself a calendar reminder and then head to RobynGobbel.com/TheClub on Tuesday so you can get instant access to a community, resources, and the change to pick Robyn's brain!
Check Out All Robyn's Free Resources!
You can download all sorts of free resources, including webinars, eBook, and infographics about topics such as lying, boundaries, and co-regulation!
RobynGobbel.com/FreeResources
Applications for the 2026 cohorts of the Baffling Behavior Training Institute's Professional Immersion Program are now open! You MUST be on the waiting list to apply! Get on the waiting list at RobynGobbel.com/immersion
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Grab a copy of my book Raising Kids with Big, Baffling Behaviors robyngobbel.com/book
Join us in The Club for more support! robyngobbel.com/TheClub
Apply for the Baffling Behavior Training Institute's Professional Immersion Program (formerly Being With) robyngobbel.com/Immersion
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Over on my website you can find:
Webinar and eBook on Focus on the Nervous System to Change Behavior (FREE)
eBook on The Brilliance of Attachment (FREE)
LOTS & LOTS of FREE Resources
Ongoing support, connection, and co-regulation for struggling parents: The Club
Year-Long Immersive & Holistic Training Program for Parenting Professionals: The Baffling Behavior Training Institute’s (BBTI) Professional Immersion Program (formerly Being With)
