AI Snips
Chapters
Transcript
Episode notes
Jimmy's Sickle Cell Journey
- Jimmy Olaher suffered from sickle cell anemia, experiencing chronic pain and life disruptions.
- CRISPR gene editing cured his disease after a long process, allowing him to live pain-free.
Cost of Cures
- The CRISPR cure for sickle cell, like other gene therapies, will likely be expensive.
- A gene therapy for hemophilia set a record at $3.5 million, raising affordability concerns.
Cost of Care vs. Cure
- The cost of treating rare diseases over a lifetime can exceed the one-time cure cost.
- The $3.5 million hemophilia treatment is cheaper than lifelong care and lost life value.