Kids Across the Spectrums: Growing Up Autistic in the Digital Age
Oct 21, 2024
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In this conversation, Meryl Alper, an expert in communication studies and educational research, shares insights from her new book on the experiences of autistic youth in the digital era. They discuss the impact of technology on social interactions, emphasizing both challenges and opportunities. Alper highlights the importance of inclusive media representation and listening to the voices from disability studies. She also offers empirical insights on communication preferences among autistic children and advocates for a deeper understanding of their emotional expressions.
The podcast underscores the importance of integrating disability studies into discussions around technology to better represent disabled individuals' needs.
Meryl Alper's research reveals how race, class, and access impact the experiences of neurodivergent children with media and technology.
The conversation highlights media's role in shaping identity for autistic youth, while addressing the challenges posed by limited parental control and access.
Deep dives
The Importance of Disability Studies
The podcast emphasizes the significance of including scholars from disability studies in mainstream conversations about technology and society. It highlights the common oversight in which the needs and perspectives of disabled individuals are often assumed rather than inquired about directly. This has led to a rich body of empirical research dedicated to reconstructing disabled people's experiences through accessible media, literature, and personal narratives. For example, the discussion recalls previous episodes that explored specific barriers faced by disabled individuals, such as challenges in public transportation, demonstrating the essential role of lived experiences in informing broader societal understanding.
Research on Neurodivergent Children
The conversation centers around Meryl Alper’s book, which draws insights from research involving over 60 neurodivergent children. The research considers various factors, such as race, class, and access to resources, which significantly impact the support these children receive. Alper's objective is to understand how these intersections shape their experiences with media and technology. This nuanced exploration highlights the importance of considering diverse backgrounds to fully appreciate the educational and social contexts of neurodivergent youth.
Challenging Stereotypes Surrounding Autism
Alper discusses prevalent stereotypes about autism, especially the framing of autistic individuals as 'robotic' or emotionless. The podcast mentions the historical context provided by Bruno Bettelheim’s theories, which have influenced perceptions and interventions in autism. By examining these misconceptions, Alper aims to highlight the complexity of autistic identities and encourage more authentic representations of their social interactions and emotional expressions. This includes recognizing the unique ways in which they engage with media, which can facilitate connections and express individuality.
Influence of Media on Identity Development
A significant portion of the discussion revolves around how media influences identity development among neurodivergent youth. The conversation addresses the potential for children on the autism spectrum to express their identities through digital platforms, despite often living with gatekept aspects of their identities. Alper emphasizes the critical role media can play in fostering a sense of belonging and understanding, as well as the challenges that arise when parental perspectives limit a child's access to self-discovery. This delineation illustrates the importance of providing inclusive and contextually relevant media to support healthy identity formation.
Access to Resources and the Impact of Socioeconomic Factors
The podcast outlines the disparities in access to resources for families with neurodivergent children, particularly focusing on how socioeconomic factors come into play. Alper points out the challenges many families face in obtaining necessary therapy and educational support for their children. The discussion includes how this lack of access can lead to additional stress for parents and impact the child's development. It underscores the urgency for equitable service provision and policy reform to ensure that all neurodivergent individuals receive appropriate support regardless of their economic status.
Peoples & Things host, Lee Vinsel, talks with Meryl Alper, Associate Professor of Communication Studies at Northeastern University, about her recent book, Kids Across the Spectrums: Growing Up Autistic in the Digital Age (MIT Press, 2023). In addition to being a professor, Alper is also an educational researcher who has worked over the past 20 years to make inclusive and accessible learning products with media organizations such as Sesame Workshop, Nickelodeon, and PBS KIDS. Vinsel and Alper talk about disability studies, the nature of Alper’s empirical work, the arc of Alper’s career, including her future projects.