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America Dissected
What a life-changing cystic fibrosis drug teaches us about translating science into health
Aug 27, 2024
Dr. Michael Boyle, President and CEO of the Cystic Fibrosis Foundation, discusses the groundbreaking drug Trikafta, which has transformed cystic fibrosis treatment and extended life expectancy. He highlights the ethical dilemmas of its staggering $326,000 price tag and the ongoing fight for universal affordability. The conversation delves into the historical evolution of cystic fibrosis care, the challenges of access, and the exciting future of genetic therapies like CRISPR. Boyle also touches on the importance of advocacy in ensuring equitable healthcare for all.
51:13
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Quick takeaways
- Trikafta has revolutionized cystic fibrosis treatment, dramatically increasing life expectancy but poses a critical affordability challenge for patients.
- The cost of innovative drugs like Trikafta highlights the tension between pharmaceutical profit motives and equitable access to essential medicines.
Deep dives
Living Through Fascism
In the United States, many individuals already experience the impacts of fascism, particularly activists fighting for causes such as Palestinian rights, environmental health, and against the prison industrial complex. These activists often find themselves labeled as terrorists, highlighting a serious societal issue where the struggle for freedom is met with significant backlash. The urgency of fostering multiracial coalitions to combat these forces has never been more critical, especially for funders and supporters of democratic movements. Engaging in programs, such as the Summer School organized by the Marguerite Casey Foundation, provides political education to empower individuals and support collective solutions.
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Discover
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