Living with Long covid

Send us a textIn this episode of the podcast I thought it would be useful to discuss planning and preparing for a return to work. I wanted to share my lived experience of returning to work and what process needs to be considered and completed prior to returning to work. I tried to fumble through the process of returning to work after an extensive period of time off, and with a long term condition/disability. This in itself is hard work, so I thought this would be a useful podcast. I have also created a short document/notebook and return to work process chart, to support others returning to work. I will share this with you guys across my social media platform and place it on my link tree. I discuss the richness of experience workplaces are losing by dismissing people with Long Covid and how the government needs to re-evaluate this and put funding into Long Covid, as this is just adding to an already depleted workforce. It is also leaving people financially vulnerable and trying to manage a condition resulting from the pandemic with no treatment or cure. Supportive links from today's episode:https://acas.org.uk - UK employment lawhttps://equalityandhumanrights.comhttps://hse.gov.uk - Principles to support disabled workers and workers with long-term health conditions in workhttps://tuc.org.uk - Reasonable adjustments disability passporthttps://som.org.uk - Long Covid and return to work- what workshttps://www.gov.uk- access to workMy Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textI have another inspirational guest on the podcast today. Emma is a nurse who has Long Covid with multiple organ damage. Emma lost her NHS job and experienced gaslighting at a time when she needed medical professional help and support the most. Suffering an inability to take care of herself and having bedsores among the multitude of symptoms Emma is living with. Emma advises her and her husband where married only 6 months prior to the pandemic, they both had covid and Long Covid and in these first months where not able to take care of each other. It took lots of phone calls and distress to get any support. Emma states she wants to share her journey in the hope it will help others and educate those who do not understand what Long Covid is and how it effects every element of you life. I hope you find today's podcast helpful. As always take care. Link to Emma's TikTok: https://www.tiktok.com@emmabenyon?_t=8Zs9aEr2PqA&_r=1Visible App:https://apps.apple.com/gb/app/visible-long-covid-me-cfs/id16244749919My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Discover how chronic illness, like long COVID, reshapes relationships with partners, family, and friends. Explore the ups and downs of these connections and the importance of self-acceptance. Reflect on personal growth through challenges and the power of emotional support in navigating difficult times. Hear about valuing oneself on this journey, as recovery also means learning to love and respect your own body.

Send us a textOn this episode I have a guest, Kerry is a fellow nurse and advocate for Long Covid. A founding and current member of LCNMUK (Long Covid, Nurses and Midwives UK). Kerry and I discuss the impact of Long Covid, the varying symptoms and how these effect everyday life. Kerry explains she initially had over 30 symptoms, ranging from body rashes, temperatures to cognitive and speech issues. We discuss gaslighting and also the positive professional support Kerry has received. We also discuss what is needed going forward. Kerry explains her journey and how isolated she has felt due to her symptoms, which can make a simple everyday task a momentous challenge. We discuss the Long Covid community and the support and solidarity we are seeing, Kerry and I credit many people who have supported or are advocating for Long Covid, including Dr Binita Kane, Dr Wes Ely and Prof Louise Cummings and so many more, we are grateful to and thankful for. I have added all of these support groups/ people to the show note links. Thank you for listening, I hope you enjoy this episode, as always take care.Links from this episode:https:teamlcnmuk.wixsite.com/lcnmuk - Long Covid nurses and midwives UKhttps://longcovidsos.org- Long Covid SOShttps://longcovid.physio - Long Covid Physiohttps://longcovidkids- Long Covid kidshttps://longcovid.org - Long Covid Supporthttps://change.org - Keyworker petition https://lcd4a.com - Long Covid doctors for actionhttps://polyu.edu.hk- Prof.Louise Cummingshttps://longcovid.scot - Long Covid Scotlandhttps://fifthsense.org.uk - Fifth sense; smell, taste, lifehttps://covidactionscotland.org- Zero covidhttps://longcovidwork.co.uk- Long Covid workhttps://otforlc.com - Occupational Therapy for Long CovidMy Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textIn this episode I talk with Heidi Baseler neuroscientist at the university of York in the Hull York medical school. We talk about the brain, micro clots research and Long Covid. How these could be acutely and chronically effecting the brain. The symptom overlap with ME/CFS and other post viral conditions. Heidi discusses a research/study paper that she has had published "The negative impact of covid 19 on working memory revealed using a rapid online quiz" what the findings are, and the current and future plans for further studies. We discuss how these studies can support possible future treatments. Thank you for listening to the podcast and as always, take care. Link and email from todays episode:Heidi.Baseler@hyms.ac.ukhttps://journals.plos.org/plosone/article?d=10.1371/journal.pone.0269353https://twitter.com/HullYorkMedMy Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textThis is an extra podcast ahead of the Panorama podcast this evening 'Forgotten Heroes of the Covid Front Line. I am lucky to have a special guest Rachel, founder along with her friends and colleagues, Cass and Sarah of the Keyworker petition group. If you haven't signed the petition yet, please do, you will find the link below. Rachel and her family feature in the panorama program, we talk about Rachel's journey, why she is advocation for Long Covid. The impact of living with Long Covid, the grief cycle, suicide and why Rachel, Cass and Sarah decided to start the keyworker petition.Rachel explains what the intention of the petition is and who the group is advocating for, this is a special edition of the podcast and certainly one you want to listen to, and don't forget to watch the  BBC Panorama program 30/1/2023 8pm.Thank you for joining us, please find useful links from todays show below, if you would like to contact the keyworker petition group, the email address is below, thank and as always take care. Email: keyworkerpetitionuk@gmail.comhttps://@keyworkerpetukhttps://change.org - sign the keyworker petitionhttps://m.facebook.com/keyworkerpetitionhttps://@BBCPanoramaNational suicide prevention helpline UK - 0800 6895652https://andymansclub.co.ukhttps://befrienders.org - Link to an international tool- search by country for emotional support and helplineshttps://www.samaritans.orgMy Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textIn this episode I talk about symptom overlap with other conditions. What is what? this can be so confusing and cause symptoms to not be investigated or afforded any potential treatment. I specifically look at Long Covid, peri-menopause, menopause, Testosterone and POTS. I explore some of the research and guidance relation to these conditions and Long Covid. I explain how I worked out I had POTS and subsequently had tests and was diagnosed, I may not have had this diagnosis had I not monitored my symptoms and researched. There are over 200 symptoms of long covid, and of course these overlap with other health conditions, and have the potential to offer symptom treatment or management therefore all symptoms should be investigated individually and holistically. I hope you find this episode helpful, as always thank you for listening and please do take care. Links from todays episode:https://cks.nice.org.ukhttps://bjgp.org/content/72/714/8https://centreformenshealth.co.ukhttps://pubmed.ncbi.nlm.nih.govhttps://www.nhsinform.scot/healthy-living/womens-health/later-years-around-50-years-and-over/menopause-ans-post-menopause-health/menopausehttps://thefemalehealthclinic.co.ukhttps://www.nih.govMy Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textThis is episode 50! I can't quite believe it, however it has inspired me to record this episode "The journey so far!" I never thought I would be podcasting, and definitely not while trying to navigate a newly diagnosed chronic condition. It has been quite a journey which continues to be like an out of control rollercoaster. I have learnt a lot throughout my Long Covid journey about all elements of my life. This has been heartbreaking, frustrating, disappointing and painful but also inspiring, educational and valuable.It is often hard to take the positives from something so destructive, I have never had initially, my life hang in the balance, and subsequently my whole world as I know it, change beyond my recognition. Learning to live with long term conditions, manage symptoms, take judgement, experience gaslighting and learn to pace are challenging task masters. It is all a journey and a learning curve for 65 million of us across the globe. I am taking it one day at a time, thank you for joining me, I hope you enjoy this episode. As always, take care. My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textI never thought I would need to get to know myself, or a new version of me due to the impact of a long term condition. In this episode I talk about how living with Long Covid and POTS has changed how I see myself, how the physical impact has changed or limited the things I use to do and/or enjoy. I talk about reflecting upon myself and times when I have not recognised the person in the mirror. I reflect on how this effects relationships, confidence and the person I once felt I weasand liked being. I have always held on to positivity and I discuss how this has supported my quest to get to know me again. To embrace where I am at this point in my life and look at what the art of the possible is, rather than what I can no longer do. It is a taskmaster too except such changes, to embrace them but it is important for emotional and mental health. I hope you find this episode helpful, as always thank you for listening and take care. My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textThis episode is part two of my return to work journey. We have had the Christmas break and I took some annual leave. I was on week 6 of my return to work journey before the Christmas break. I had built up to 7 hours of work per week at this point. I was doing 3.5 hours over two days. I discuss the difficulty of returning to work, factors to consider and provide my top 10 tips for starting a return to work process. I have included some links to employment support services below. Covering from employment law, to support with access to work ie (equipment, travel etc) these cover the UK, if you are outside of the UK please access your local networks. I will be starting week 7 return to work this week, I will keep you all updated and will continue to do return to work videos, please access these via my link tree: https://linktr.ee/joulestPlease contact me with any questions, and as always take care. https://www.acas.org.uk - work and employment law advicehttps://www.citizensadvice.org.ukhttps://www.gov.uk - Access to workMy Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc