Living with Long covid

Send us a textAfter a run of amazing guests I find myself alone on the podcast today, I wanted to talk about the impact the past, present and future has on every day. A memory popped up on my social media, a picture of me pre Long Covid. I looked at the picture and remembered, it  was a beautiful day, the fun I had with a good friend, the good food and drink, the laughs we had, and then I went off to the gym, and that was the selfie that I had captured, the picture evoked such strong feelings, memories of days gone by, and I felt loss, grief, anger and frustration. I really don't want to feel like that, but I understand we have to lean into all of our feelings. I tried to work through my feelings and revisited the picture several times. I started to feel gratitude for that day, for the memories, and I opened myself up to allow myself to take a gentle walk around other memories I have, and enjoy thinking of those. I wanted to share this and much more with you guys on the podcast today, as I feel embracing the past, present and future is important when you are working towards living your best life, with chronic illness. I hope you find this episode useful; as always please take care. My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textIn this episode of the podcast I talk with guest Rachel Jessey who is the owner of BeNourished. Rachel has been in clinical practice for 13 years and over the last 3 years has been heavily involved in the long covid space. Rachel talks about how her interest developed in the oral, nasal and gut microbiome, and how her son was effected after being hospitalised with sepsis. Rachel discusses how the various species within the gut microbiome have important functions within the body and how when these are depleted they have an adverse effect on immune function. Rachel explains how the viral persistence from the gut systemically affects inflammation and platelets, and gives some information on what we can do to help our microbiome. We discuss vedicinals, current research and detox protocols that Rachel is involved in, and this research will be available soon. Rachel talks about the vagus nerve and its role within the body and how the vagus nerve can be supported along with other tips to help digestion and so much more.This is a really interesting and informative episode. I hope you enjoy the podcast, and as always thank you for listening and take care. Links from todays episode:https://timehealth.co.ukhttps://www.benourisehed.co.ukEmail:rachel@benourished.co.ukMy Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textIn this episode of the podcast I am please to have another great guest join me, Reema Ahmad is a Neuro linguistics programming (NLP), trauma and relationship counsellor and also a life coach. Reema is also an author of the book;  un-parenting: sharing awkward truths with curious kids and a two time guest for Ted talks. Reema has long covid, and talks openly with me on this episode, about her experience of having Long Covid in India. Reema is the sister of the fantastic, Dr Asad Khan and she explains how her brother helped and supported her, while managing his own journey with Long Covid. We also discuss, trauma, culture and how to consider the body, mind and soul and letting go. Reema talks openly around her own suicide attempt, how she approached this and used her experience to began to understand how important it is to accept help. Reema discusses how the physical, emotional and mental elements affect the body and how to be curious about your body. I hope you enjoy this episode and as always take care. Links from today's episode:Rheema Ahmad; Un-parenting: Sharing awkward truths with curious kidshttps://www.amazon.in/dp/0143447769Of dry tongues and brave hearts - first book Rheema editedhttps://amzn.eu/d/iEWC5WW TED talks; Reema Ahmad, being comfortable with discomforthttps://youtu.be/XRiTo64W8elMy Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Gez Medinger, an investigative science journalist and patient advocate for long COVID, shares his personal journey with this condition. He discusses the importance of raising awareness and building a supportive community for those affected. Gez talks about his YouTube channel dedicated to educating others and his collaboration on The Long COVID Handbook with Professor Danny Altmann. Together, they explore symptom management and the emotional aspects of acceptance while navigating life with long COVID, offering insights and hope for recovery.

Send us a textOn this episode of the podcast I am grateful to welcome guest Dr Sarah Glynne. Many of you have contacted me regarding hormones and the peri menopause/menopause, asking if this is a subject I could cover along with an expert, so I am positive this is going to be a useful and interesting podcast to many of you. Dr Glynne and I discuss the link between covid 19 and hormone imbalance, we talk about the disruption in menstrual cycle and the onset of peri menopause and the menopause. The potential treatment and how this can elevate symptoms, Dr Glynne acknowledges the blurred lines between some of the symptoms of Long Covid and hormone imbalance however we discuss how any symptom relief is important and should be explored. Dr Glynne tackles the myths around HRT and the dated and misrepresented information on the use and risks of HRT. We discuss the menstrual cycle and disruption in cycle to females of all ages and what treatment options may be suitable. This is an informative and interesting episode which holds value to patients, healthcare professionals and anyone with an interest in hormone imbalance and covid 19/Long Covid. I hope you enjoy this episode of the podcast and as always take care. Links from this episode:Pauls antihistamine paper:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8494538/Balance menopause testosterone resources:https://www.balance-menopause.com/?s=testosteroneLong covid, hormones and gut health:https://balance-menopause.com/uploads/2022/05/LC-diet-and-hormones-final.pdfLong covid and female hormones:https://www.balance-menopause.com/menopause-library/long-covid-and-female-hormones-factsheet/My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textIn this episode of the podcast I discuss making peace with a long term condition, how do you do that? have I made peace with mine?Why is making peace important, what value does that bring to your life?I discuss my feelings, my anger towards the Government the NHS and the psychologising of Long Covid, and how making peace with a long term condition does not mean accepting those things. I explain how peace can bring a better quality of life, living in the moment of where we are right now rather than where we have been or where we would like to be in the future. I talk about how gratitude helps me to have peace within myself however this does not over rule all of my varying emotions as having peace is allowing yourself to be truthful with how you feel as well as where you are physically, mentally and emotional in your journey. This episode may resonate with you, as always thank you for listening and as always please take care. My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textOn this episode of the podcast I discuss my Long Covid treatment and medical professional input from acute covid to the treatment I am having to date. I started treatment 6 months ago and I explain more about this and reflect upon my journey to getting to this point. Like many I have been unable to access any appropriate treatment or medical professional input via the NHS, this does seem to be a postcode lottery and Long Covid clinics I am advised more often then not are not fit for purpose. My experience with the Long Covid clinic in my area took 2 years to access, was brief and inappropriate, I discuss this on the episode. I talk about using my medical knowledge to manage my symptoms and to support getting a referral to cardiology and gaining a diagnosis of POTS.I explain how meeting Dr Binita Kane and interviewing her for the podcast opened a door for me to access treatment via the private sector route. I have now been on treatment for 6 months. I also discuss how this journey and following losing my NHS job has led me to have the opportunity to work alongside Dr Binita Kane, to find out more listen to this episode, as always please take care. Contact for Private, Long Covid Clinic: Dr Binita Kane and Julie Taylor longcovidclinic@howellmedical.co.uk Paper inclusive of Dr Asad Khan and Prof Pretorius et alLong Covid: Pathophysiological factors and abnormalities of coagulationhttps://www.sciencedirect.com/science/article/pii/s1043276023000553My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Discover the seven types of rest and how they can transform energy levels. The discussion dives into the difference between true restorative rest and simple inactivity, especially for those affected by long COVID. Learn about the importance of pacing and energy preservation to avoid the boom-and-bust cycle. Community support is emphasized, highlighting the value of shared experiences and connections in navigating fatigue. This insightful exploration could change the way you view rest and its impact on quality of life.

Send us a textOn this episode, I have a lovely guest, Shannon is a secondary school teacher from Perth, Western Australia. Shannon was working in an Australian university when she fell under the government vaccine mandate during the pandemic. Subsequently Shannon had an adverse reaction to the vaccine, and for the last 14 months has been living with vaccine injury induced Long Covid. Shannon has had to give up her dream job, losing her work contracts and permanent job role. Shannon has a two year old daughter and has struggled to maintain some normality in her family life, for her young daughter, Shannon has a very supportive husband but misses the life she once knew. Shannon has researched and searched to find treatments, therapeutics and/or support to help improve her health. Finding solitude within support groups and my podcast. Shannon speaks openly abut the vaccine mandate and how this made her feel, the medical gaslighting she has experienced since her vaccine injury and the lack of empathy following the acute phase of illness. Shannon wanted to be a guest on the podcast to raise awareness of vaccine injury and be a voice for those who feel silenced. I thank Shannon, and hope this episode is impactful and helpful, as always please take care. My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc

Send us a textOn this episode I am fortunate to have a guest; David Osborn is a health and safety consultant. David specialist area is hazardous substances, he became involved with health and safety concerned with the pandemic in January 2021, in the middle of the second wave, David is involved with the covid public inquiry through being a member of the Covid airborne transmission alliance (CATA). David and I talk about PPE (personal protective equipment) what this is and what it is not, the difference between FFP3 mask and alternatives versus a basic surgical mask, which David explains is not PPE. We discuss the lack of RIDDOR (Reporting of injuries, diseases and dangerous occurrences regulations) completed in the work place for frontline workers being infected by the virus. David has completed a blog which includes a form that can be completed and sent to your employer to request a RIDDOR is completed, David explains this is not time limited and therefore this can still be done and would help those living with Long Covid for any future support, David likens this to the armed forces compensation scheme. You can find the link to this below and is worth completing. We discuss CATA involvement with the covid and inquiry and much more.I hope this is a useful podcast, as always please take care. This blog contains the documents David discussed which can be completed to raise a RIDDOR and also send to your local MP: Forgotten héros - the sequel:a blog and resources from David Osbornhttps://www.pslhub.org/learn/coronavirus-covid19/questions-around-goverment-governance-on/forgotten-heros-%E2%80%93-the-sequel-a-blog-and-resources-from-david-osborn-r9277/My Links:Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcastLinktree:https://linktr.ee/joulestXhttps://twitter.com/julieTa58407536Facebook page:https://www.facebook.com/livingwithlongcovid/Instagram:https://www.instagram.com/julie_livingwithlongcovidPlanners:https://amzn.eu/d/9v9MP4vReturn to work planner:https://amzn.eu/d/1QVK8zn Well being planner:https://amzn.eu/d/a1Safxc