Living with Long covid My treatment, rehab, and symptom management journey
On this episode of the podcast I discuss my Long Covid treatment and medical professional input from acute covid to the treatment I am having to date. I started treatment 6 months ago and I explain more about this and reflect upon my journey to getting to this point. Like many I have been unable to access any appropriate treatment or medical professional input via the NHS, this does seem to be a postcode lottery and Long Covid clinics I am advised more often then not are not fit for purpose. My experience with the Long Covid clinic in my area took 2 years to access, was brief and inappropriate, I discuss this on the episode.
I talk about using my medical knowledge to manage my symptoms and to support getting a referral to cardiology and gaining a diagnosis of POTS.
I explain how meeting Dr Binita Kane and interviewing her for the podcast opened a door for me to access treatment via the private sector route. I have now been on treatment for 6 months. I also discuss how this journey and following losing my NHS job has led me to have the opportunity to work alongside Dr Binita Kane, to find out more listen to this episode, as always please take care.
Contact for Private, Long Covid Clinic: Dr Binita Kane and Julie Taylor longcovidclinic@howellmedical.co.uk
Paper inclusive of Dr Asad Khan and Prof Pretorius et al
Long Covid: Pathophysiological factors and abnormalities of coagulation
https://www.sciencedirect.com/science/article/pii/s1043276023000553
My Links:
Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information
Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you
https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast
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