

Long Covid Podcast
Jackie Baxter
The Podcast by and for Long Covid sufferers. Long Covid is estimated to affect at least 1 in 5 people infected with Covid-19. Many of these people were fit & healthy, many were successfully managing other conditions. Some people recover within a few months, but there are many who have been suffering for much much longer.Although there is currently no "cure" for Long Covid, and the millions of people still ill have been searching for answers for a long time, in this podcast I hope to explore the many things that can be done to help, through a mix of medical experts, researchers, personal experience & recovery stories. Bringing together the practical & the hopeful - "what CAN we do?"The Long Covid Podcast is currently self-funded. This podcast will always remain free, but if you like what you hear and are able to, please head along to www.buymeacoffee.com/longcovidpod to help me cover costs. ~ Follow me on: Facebook @longcovidpodcast ~ Instagram @longcovidpod ~ Twitter @longcovidpod ~ Website www.LongCovidPodcast.com ~ Please do get in touch with feedback and suggestions, either via the social media links or at longcovidpodcast@gmail.com - I'd love to hear from you. The Long Covid podcast is entirely self-funded and relies on donations - if you've found it useful and are able to, please go to www.buymeacoffee.com/longcovidpod to help me cover the costs of hosting.
Episodes
Mentioned books

Dec 21, 2021 • 35min
14 - Long Covid Creativity 2021
Episode 14 of the Long Covid Podcast is a bit different - I am focusing on creativity and these wonderful people who have made something beautiful out of something horrible. Rather than having just one guest, today I am joined by a whole host of wonderfully talented people, all suffering from Long Covid. Artwork mentioned in the podcast, as well as links to visual elements are featured on this page on the podcast website Brighid O’ Dochartaigh – "Recovery Is A Long Time Coming" was published on the Scottish Poetry Library website hereJohn Kennedy - "Long Covid Rhyme" Twitter @j_b_kennedy Chiara Berardelli - "Tyrannosaurus" - see more of Chiara's work at www.chiaraberardelli.com and listen to her Long Covid experiences in Episode 3 of the podcast. Callum O’Dwyer – "Professional Time waster" can also be viewed as video hereRuby Engel - "The Ties that Bind" (poem) and "The Twelve Months of Covid" performed by Shaula Salathe (Instagram @ladyshaula ) and available as video here Emilie von Wijnbergen - Cartooning Long Covid Check out her cartoons on the Podcast Website Creativity page (Instagram @cartooninglongcovid )Shereen Smith - "Dear Me" - this poem was also featured in a documentary called "The Long Haul" and if you're interested, it can be watched for free Daphne in Stockings – “I Forgot” – see more of Daphne’s work and her blog here. You can see the visual of her poem on the podcast wMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Dec 13, 2021 • 57min
13 - AJ - "Finding My Sparkle"
Episode 13 of the Long Covid Podcast is a conversation with AJ who has been living with Post Concussion Syndrome for over 3 years, following a brain injury in 2018. Similar to many suffering with Long Covid, AJ lived a very full and active life until her accident when everything changed in a moment. Since then, she has had to adjust her expectations and the way she approaches everything as well as coping with many varying and unpredictable symptoms. In this episode we talk about some of the ways that she has learned to manage her symptoms (some of which are surprisingly similar to Long Covid), strategies she has used to help as well as how she has mentally managed to be so tough and remain positive. AJ is so inspiring to all of us and hopefully some of what she talks about might be helpful to you as well.Useful links:Website: https://findingmysparkle.co.uk/Instagram: https://www.instagram.com/findingmysparkleajYouTube: https://www.youtube.com/c/findingmysparkleInsight Timer app: https://insighttimer.com/en-gbI especially like listening to Bethany Auriel-Hagan as she has a really soothing voice. https://insighttimer.com/crystaltreeroad~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagrMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Dec 6, 2021 • 50min
12 - Kelly Mitchell, the Breathing PT
In this insightful conversation, Kelly Mitchell, a specialist respiratory physiotherapist, shares her expertise on breathing pattern disorders and their crucial link to Long Covid. She uncovers how poor breathing can exacerbate unexpected symptoms and highlights the significance of proper respiratory practices. Kelly discusses effective breathing techniques for symptom relief and the physiological effects of hyperventilation. She also emphasizes the importance of personalized routines, genuine relaxation, and rebuilding confidence post-relapse, offering practical strategies to improve overall health.

Nov 25, 2021 • 32min
11 - "My partner has a chronic illness" - Iain with some tips
A heartfelt conversation unfolds as Iain shares his insights on supporting a partner with chronic fatigue. The duo navigates the emotional landscape of love and illness, emphasizing communication and adaptability. Practical coping strategies are discussed, highlighting the importance of teamwork in their relationship. They address the challenges of seeking adequate medical support and the complexities of navigating benefits for invisible conditions. Through personal stories, listeners gain valuable advice on maintaining balance and emotional well-being.

Nov 19, 2021 • 48min
10 - Amanda Finley - Covid-19 Long-Haulers
Episode 10 of the Long Covid Podcast is a conversation with Amanda Finley from the USA. Amanda caught Covid right at the start of the pandemic before developing Long Covid and since then has been a real force of nature helping those with Long Covid. We talk about her initial illness, how it progressed and how things in the USA are very different to my experiences in the UK. Amanda has crossed paths with and helped so many people, despite being ill and dealing with many of her own struggles, and it's really inspiring and humbling to hear her speak.Amanda was an absolute joy to speak to, so I hope you enjoy listening as much as I did.~ Covid-19 LongHaulers Facebook Support group: https://www.facebook.com/groups/COVIDLongHaulers Twitter @Covid19LongHaulers ~ Patient led research through Body Politic – Hannah Davis, Elisa Perego, Lisa McCorkell https://www.wearebodypolitic.com/ Follow on Twitter: @patientled @itsbodypolitic @ahandvanish @elisaperego78 @LisaAMcCorkell ~ Long Covid Documentary https://www.youtube.com/watch?v=Hfp_jPMPCBE produced & filmed by Alexey Brazhnikov through RT ~ Ziyad Al-Aly (50% of Covid infections develop LC study) https://www.nature.com/articles/s41586-021-03553-9 Twitter @Zalaly ~ Melissa Lynch – Long Covid Kids www.longcovidkids.org ~ Ed Yong https://www.theatlantic.com/health/archive/2020/08/long-haulers-covid-19-recognition-support-groups-symptoms/615382/ Twitter @edyong209 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Nov 10, 2021 • 46min
09 - Claire Hastie - founder of Long Covid Support, & advocate
Episode 09 of the Long Covid Podcast is a conversation with Claire Hastie. Claire became ill with Covid right at the start of the first wave in the UK and like so many of us, is still suffering the effects of Long Covid. She started the Long Covid Support Group on Facebook in early May 2020 which has grown into a real force to be reckoned with.We talk about her experiences, how the group came to be and what they are fighting for - there have been some really fantastic accomplishments, but sadly there is so much more that we need. Claire is an inspiration and was incredibly interesting to chat to, so I hope you enjoy as much as I did. www.longcovidsupport.org has many useful resources, a link to the private Facebook Support group and also a "DONATE" button if you have any spare monies. If you are interested in joining the Long Covid Choir, you can find more information here: www.longcovidchoir.org~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.comMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Oct 27, 2021 • 1h
08 - Rachel Whitfield on her Long Covid Recovery
Episode 08 of the Long Covid Podcast is a conversation with Rachel Whitfield. Rachel has recovered from Long Covid and we talk through some of her experiences and what she thinks has helped her to recover. It gives us all a little bit of hope!It goes without saying (but I'll say it anyway) that neither of us are medical professionals and although the things that Rachel talks about have helped her, there is no guarantee that they will work for everyone. Everyone's journey is different, so please do seek medical advice before trying anything. Rachel’s Blog: https://mylongcovidjourney.wordpress.comThe Lightning Process: https://lightningprocess.com/Nicole Sachs – The Cure for Chronic Pain - Youtube: https://www.youtube.com/channel/UC-tz1Du69PhcBkC3-9_Mgmw & Podcast: https://podcasts.apple.com/us/podcast/the-cure-for-chronic-pain-with-nicole-sachs-lcsw/id1439580309Alex Howard - Optimal Health Clinic https://www.theoptimumhealthclinic.com/ Books: The Intelligent Body by Kyle L. DaviesBreathe – James Nestor Anthony Greenfield – the 5 forces of change~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailiMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Oct 19, 2021 • 59min
07 - Suzy Bolt - healing your mind, body & soul
Episode 07 of the Long Covid Podcast is a conversation with Suzy Bolt from 360 Mind Body Soul. Suzy has recovered from Long Covid - it's both inspiring and useful to hear what has helped her to recover and how she used her knowledge as a Yoga teacher & NLP coach as well as experience with talking therapies to aid recovery. Suzy is now using her experiences to help others - hear about her Rest, Repair, Recover program for Long Covid sufferers, the research & interviews she has done and how the mind, body and soul are interconnected. Listening to Suzy gave me so many "lightbulb" moments about my recovery - I hope it will for you too.360 Mind Body Soul website: https://www.360mindbodysoul.co.uk/ Suzy's Facebook group: https://www.facebook.com/groups/1095053437543132& Youtube channel: https://www.youtube.com/channel/UCdUIN1Pu42E4SNTFKz51mkAStasis breathing https://www.stasis.life/Nicole Sachs – The Cure for Chronic Pain - Youtube: https://www.youtube.com/channel/UC-tz1Du69PhcBkC3-9_Mgmw & Podcast: https://podcasts.apple.com/us/podcast/the-cure-for-chronic-pain-with-nicole-sachs-lcsw/id1439580309~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Oct 11, 2021 • 42min
06 - Professor Nick Sculthorpe - Long Covid Research Projects at UWS
Episode 06 of the Long Covid Podcast is a conversation with Nick Sculthorpe, Professor of Clinical Exercise Physiology at the University of the West of Scotland. We talk about the two Long Covid studies they have been given funding for - Tracking Persistent Symptoms in Scotland (TraPSS for short) & the NIHR Pacing Study. We talk first about the TraPPS study - skip to 22 minutes to hear about Pacing Study only. Pacing study information (now recruiting): https://drive.google.com/file/d/1ZZmitbIbKaocYTBAL6yksfTCqzsqvLG9/view?usp=sharing TraPSS - https://www.cso.scot.nhs.uk/outputs/cso-funded-research/long-covid-call/NIHR - https://www.nihr.ac.uk/news/196-million-awarded-to-new-research-studies-to-help-diagnose-and-treat-long-covid/28205Scotsman article on the NIHR pacing study: https://www.scotsman.com/health/long-covid-study-launched-to-reduce-symptoms-of-extreme-fatigue-3314155Follow Nick on Twitter - @UWSNick @UWSlongCOVID ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.comMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Sep 27, 2021 • 39min
05 - Dr Amy Small - GP, long-hauler & advocate
Episode 05 of the Long Covid Podcast is a conversation with Dr Amy Small. Amy has had Long Covid having caught Covid-19 at work and has been heavily involved in advocating for those who are not able to advocate for themselves. Her combination of medical knowledge & lived experience gives her a unique ability to help and perspective on the situation.Call CHSS freephone Advice Line Nurses: 0808 801 0899~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.comMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**


