
Long Covid Podcast
The Podcast by and for Long Covid sufferers. Long Covid is estimated to affect at least 1 in 5 people infected with Covid-19. Many of these people were fit & healthy, many were successfully managing other conditions. Some people recover within a few months, but there are many who have been suffering for much much longer.Although there is currently no "cure" for Long Covid, and the millions of people still ill have been searching for answers for a long time, in this podcast I hope to explore the many things that can be done to help, through a mix of medical experts, researchers, personal experience & recovery stories. Bringing together the practical & the hopeful - "what CAN we do?"The Long Covid Podcast is currently self-funded. This podcast will always remain free, but if you like what you hear and are able to, please head along to www.buymeacoffee.com/longcovidpod to help me cover costs. ~ Follow me on: Facebook @longcovidpodcast ~ Instagram @longcovidpod ~ Twitter @longcovidpod ~ Website www.LongCovidPodcast.com ~ Please do get in touch with feedback and suggestions, either via the social media links or at longcovidpodcast@gmail.com - I'd love to hear from you. The Long Covid podcast is entirely self-funded and relies on donations - if you've found it useful and are able to, please go to www.buymeacoffee.com/longcovidpod to help me cover the costs of hosting.
Latest episodes

Feb 8, 2023 • 42min
71 - Nic Wray on Tinnitus - what is it, and what can I do?
Episode 71 of the Long Covid Podcast is a chat with Nic Wray from Tinnitus UK (formerly the British Tinnitus Association) about all things Tinnitus. We chat about possible triggers, the ups and downs, what can be done about it and research that is ongoing into the condition.This episode ties in with Tinnitus Week which is this week - February 6-10 2023. More information in the episode, or the links below.Tinnitus UK Your Covid Recovery tinnitus information Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Feb 2, 2023 • 59min
70 - Lorrie Rivers - Reclaiming life from chronic illness & helping others do the same
Episode 70 of the Long Covid Podcast is a chat with the fabulous Lorrie Rivers. Lorrie has herself recovered from Me/CFS as well as Long Covid & Fibromyalgia and is helping others to do the same. Lorrie has been helping people manage their illnesses for years and has seen a lot of success stories, but feels she has made a break-through recently which she is really excited to share.Useful links below:What’s the Root Cause of My Illness? Lorrie Rivers - Living from InspirationJoin Facebook groupLorrie is also offering a few free workshops with sex and relationship therapists in February about Sex, Pleasure and Intimacy with Long Covid and ME/CFS and how to navigate it (for people who are single or in a couple). At least one of the workshops will be live and participants can submit their questions beforehand or during the session. The first is February 14 at 1pm Eastern US (New York time) on her IG channel (lorrierivers_). More details via the website link above.Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Jan 25, 2023 • 58min
69 - Fiona Lowenstein - Journalist, Writer, Body Politic Founder & Long Covid Advocate
Episode 69 of the Long Covid Podcast is a chat with Fiona Lowenstein, Journalist, writer, Long Covid Advocate and now author/editor of "The Long Covid Survival Guide". We chat through Fiona's early experiences of Covid & Long Covid which led them to create the Body Politic support group which is such a lifeline to so many. We also discuss the book and the idea behind it, as well as so much more. Purchase "The Long Covid Survival Guide"Long COVID Survival Guide book exchangeThe book's page on Fiona's website (has an updated list of upcoming and past book talks people can attend or watch recorded videos of)Jennifer Brea "Unrest"Headshot - credit JJ GeigerMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Jan 18, 2023 • 56min
68 - Dr David Saperstein - links in Long Covid, MCAS, Dysautonomia, EDS & more
Episode 68 of the Long Covid Podcast is a chat with Dr David Saperstein from the Center of Complex Neurology, EDS & PoTS based in Phoenix, Arizona. Dr Saperstein has been working with complex conditions for over 20 years and is now also helping those with Long Covid and post-vaccine symptoms.This is a fascinating discussion about approaches to diagnoses & treatment, how certain conditions can affect one another as well as what can be done.I hope you enjoy as much as I did.Center for Complex Neurology Long Covid pageMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Jan 12, 2023 • 48min
67 - DecodeME - a chat with Prof Chris Ponting & Andy Devereux-Cooke
Episode 67 of the Long Covid Podcast is a chat with two wonderful people from the Decode ME genetics study – Professor Chris Ponting who is the lead on the study, and Andy Devereux-Cooke, co-founder of the Science for ME forum and also an investigator (PPI) on the DecodeME Management Group. We discuss the study itself as well as some of the background behind it.If you are interested in signing up (or would just like some more information about the study) please go to DecodeME.org.ukScience for ME ForumAction for MENICE guideline for ME/CFSMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Jan 4, 2023 • 43min
66 - Lauren Stiles - President & co-founder of Dysautonomia International
Episode 66 of the Long Covid Podcast is a chat with the fabulous Lauren Stiles, President & co-founder of Dysautonomia Internation. Lauren describes herself as a "very high functioning sick person" and has so much amazing knowledge to impart about all forms of Dysautonomia itself, as well as the diagnostic journeys that many of us find ourselves on. This was a hugely enjoyable conversation - I hope you enjoy it as much as I did!Dysautonomia International WebsiteDysautonomiainternational.org/doctorslongcovidresearchfund.orgMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Dec 20, 2022 • 35min
65 - Long Covid Creativity 2022
Episode 65 of the Long Covid Podcast is a wonderful collection of creativity inspired by Long Covid, from children to adults and all across the world. It's an inspiring listen as these talented people tell their own stories and perform their own work.If you're inspired - please get in touch - I always love to hear from you and do join the FB group - link below.Long Covid Choir - "When we sing together" by Vicky Jacobs (Sound engineer Nick Westoby) Julia's plants & artwork - see the Long Covid Podcast Creativity PageColin Pidgeon - "Stormy" (Follow Rosie on FB & Insta) Zara - "Thank you" music videoJanne Cecilie - "Long Covid" & "I'm so tired" Tabi - "You are not alone" collaboration reel with Rosie Pidgeon (hear Rosie speak in episode 61)Carol Barwick - "Choose Joy" "Long Covid is a frenemy" & "A Chronic Christmas Plea" Long Covid Kids Choir - "Winter Fantasy" by Jill GallinaLong Covid Kids websiteMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Dec 14, 2022 • 24min
64 - 2022 Reflections
Episode 64 of the Long Covid Podcast is some personal reflections on the last 6 months and this year. Things I've learned, and what has helped me. Of course, I am not a medical professional, and this is not advice.I'm not recovered yet, but have seen some improvement. Always very happy to hear from you - what's helped you and how are you doing?My Vedicinals blogFood Intolerance testEpisode 40 - Dr Boon LimEpisode 49 - Adrian & Leanne (wild swimming)Safe & Sound Protocol (SSP)Message the podcast! - questions will be answered on my youtube channel :) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Nov 30, 2022 • 50min
63 - Dr Michael Bagnell - Long Covid & the brain
Dr. Michael Bagnell, a Functional Neurologist, discusses brain-based healthcare for long COVID. He emphasizes the need for personalized care and a slower approach in medicine. Topics include treating dysautonomia, compensating for weaknesses, vagus nerve stimulation, and natural remedies for long COVID symptoms.

Nov 23, 2022 • 45min
62 - Nisreen Alwan - Professor of Public Health, Researcher & Long-hauler
Episode 62 of the Long Covid Podcast is a chat with the wonderful Professor Nisreen Alwan. We chat about her experiences with Long Covid as a first-waver, her ability to work and what made this possible. We also talk about social media, her experience of researching Long Covid as well as some thoughts about changes that should happen going forward. TED talkMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**