Long Covid Podcast

Join Dan Neufer, author of CFS Unraveled and creator of the ANS Rewire program, as he delves into the powerful influence of belief on healing from Long Covid and ME/CFS. He emphasizes that belief isn't just magical thinking; it's grounded in evidence and drives action. Discover why consistency and self-compassion are crucial for recovery, the importance of distinguishing acceptance from resignation, and how negative narratives can hold you back. Dan also shares insights on neuroplasticity and the significance of small wins in fostering momentum.

I'm joined today by Edmarie Guzman-Velez & Rudy Tanzi as we dig into a clinical trial of nicotinamide riboside for Long Covid, why NAD matters for cellular energy, and where the results show promise for fatigue, sleep, mood, and executive function. We share what worked, what did not, and the next steps.• Overview of NAD, mitochondria, and energy in brain and immune cells• Why Covid may deplete NAD and how NR restores it• Trial design using intra-individual crossover with placebo run-in• Dosing at 2,000 mg NR daily under IRB oversight• Serial NAD blood measurements confirming a threefold rise• Outcomes on fatigue, sleep quality, depressive symptoms, executive function• Limits of small samples and reinfection attrition• Safety, label guidance, and medical supervision for supplements• Plans for biomarkers of inflammation and activity data from wearables• Future research on symptom clusters, sex differences, and combinationsLinks:Full paper available HEREMore about Niagen Bioscience Dr. Tanzi is paid consultant for, and equity holder in Niagen Biosciences.Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

I am joined by Katie Brennan & Andrea Henkel Burke to share Katie’s Long Covid recovery, how nervous system work unlocked capacity, and why an Olympian’s playbook of pacing, breath, joint maps and cognitive drills can fit chronic illness. The theme is small, smart inputs that prevent crashes and build a stronger baseline.• early symptoms, second infection and severe brain fog• switching from push-through to deliberate pacing• vagus nerve, breath and eye movement drills• athlete mindset applied to recovery• gentle mobility plus cognitive tasks for safer gains• stacking tiny wins to raise baseline capacity• diet shifts for gut health and lower inflammation• redefining recovery through daily function and humour• practical advice to start small and self-assessConnect with Katie & Andrea: ThriveNinety Website: www.thriveninety.com Recovery Kitchen Essentials book: https://www.thriveninety.com/recovery-kitchen Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Ivor Clark, a Long Covid survivor and author, shares his transformative 15-month recovery journey. He discusses navigating the complexities of pacing, breathwork, and hyperbaric oxygen therapy after a COVID infection combined with a UTI. Ivor highlights the critical role of a supportive GP and the importance of self-advocacy. He emphasizes the value of structured routines, gradual return to work, and the mindset shift from illness to rebuilding confidence. Expect insights on practical strategies that foster resilience and well-being.

Explore the transformative idea of reclaiming agency in your recovery journey by seeing yourself as the pilot, not just a passenger. Discover the importance of micro-agency through small daily choices that nurture your well-being. Learn how sensory grounding techniques can create a safer environment and support emotional stability. Jackie emphasizes the power of rewriting your inner narrative and establishing boundaries to enhance healing. With practical tips on navigating setbacks, this episode offers validation and encouragement for anyone facing health challenges.

In this enlightening conversation, Kelly George, a recovery coach and former professor, shares her inspiring journey from debilitating Long Covid to reclaiming her identity. She discusses the vital role of pacing and activity management in her recovery, as well as the profound impact of community support and being listened to. Kelly highlights the challenges of isolation and relationship dynamics during her illness while offering practical advice on preventing crashes and redefining recovery. Her story is a testament to resilience and the power of finding hope in messy progress.

Dr. Leo Galland, a seasoned Internal Medicine Specialist with over 40 years of experience, dives deep into the complexities of Long COVID. He introduces the 'Web of Long COVID,' outlining ten interconnected strands that reveal the illness's mechanics, including ACE2 enzyme damage and mitochondrial dysfunction. Dr. Galland emphasizes the need for personalized, multi-step treatment approaches, linking long COVID to historical post-viral syndromes. He also discusses the significance of individual health history, emphasizing recovery is achievable through tailored interventions.

Technology offers unprecedented access to health information, but navigating it effectively requires understanding which tools serve our recovery and when to step away from screens. Jess from TurnTo shares insights on using AI and technology tools to support recovery from conditions like Long Covid and ME/CFS.• Different technology platforms have different agendas - social media optimizes for view time, search engines for quick clicks• Approximately 10,000 new updates emerge weekly about Long Covid and ME/CFS across research, expert interviews, and patient discussions• AI tools like ChatGPT can provide referenced health information when asked properly, often delivering more comprehensive answers than time-limited doctor appointments• Patient experiences remain undervalued as "weak data" despite containing rich insights that often precede formal research findings• TurnTo's new Personal Health Sidekick feature reads approximately one million words weekly, filtering information based on individual health concerns• AI works best for information gathering and making connections between disparate data points• Balance technology use with offline activities that support recovery - nature, human connection, and reducing nervous system activation• When using AI for health questions, always request references and specify what type of information you're seeking• Technology cannot replace human connection, empathy, and the physical examination healthcare professionals provideLearn more about TurnTo and their Personal Health Sidekick feature in the links below: Check out Turny here (use code "Jackie" for 10% off)Listen to our previous episode HERE Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Natalie Gould shares her journey from severe Long Covid to full recovery, revealing how nervous system regulation transformed not only her Long Covid symptoms but also pre-existing chronic conditions like psoriatic arthritis and migraines.• Life before illness included working as a CFO and living on a small farm• Initial Covid infection in July 2021 was mild but led to severe post-viral symptoms• Main symptoms included PoTS, tachycardia, severe insomnia, cognitive impairment and sound sensitivity• Within six months, she was essentially bedbound but continued working remotely• Stabilized symptoms through extreme pacing but remained severely ill for over a year• Found hope after hearing recovery stories and trying the ANS Rewire program• Leaving her stressful job was a turning point in her recovery journey• Used play and creativity as powerful tools for nervous system regulation• Created characters to personify stress patterns and developed dialogues with them• Recovery process led to healing of multiple pre-existing conditions• Now enjoys swing dancing and a fuller life than before illness• Continues nervous system regulation practices not out of necessity but enjoymentCheck out "Farm Stories" for more insights on recovery techniques & nervous system regulation.Links:https://www.sparrowcrowfarm.com/ https://sparrowcrowfarm.substack.com/ - Farm Storieshttps://www.youtube.com/watch?v=M2pSH8og5Ho&t=1981s - self recorded recovery videoMessage the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herewww.LongCovidPodcast.comFacebook Instagram Twitter Facebook Creativity GroupSubscribe to mailing listI love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Explore the intricate journey of recovery from Long Covid and ME/CFS, where finding a personalized path is key. Discover three phases of recovery that include denial, strategy-building, and gentle progress. Embrace the liminal space between illness and wellness for exploration without pressure. Celebrate small victories and recognize signs of recovery like laughing without crashing. Learn how to rebuild identity and safely engage with life again, focusing on consistent practices for long-term healing.