BloodStream

We've got a new "SHEmophilia" audio segment brought to us by CHES, as well as Saverio Cimino featured in today's music and expression segment. Then, Patricks catches up with community member, Michael Bishop. A great episode! Show Notes: Subscribe: The BloodStream Podcast Saverio Cimino's Instagram Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. To support CHES's program for women with bleeding disorders, to attend CHES events for individuals and families in the inhibitor community. Or simply to get in touch with comments and ideas please reach out to us at www.ches.education Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Dr. Guy Young joins us for an overview on the newest non-factor replacement therapy for hemophilia A and B, still in clinical trials–Fitusiran. Maya Bloomberg, the HemeNP, is back and so is James Maple with a segment featuring community member and musical artist, Shelby Smoak. We'll also get a sneak peak of a brand new documentary featuring members of our community! Show Notes: Subscribe: The BloodStream Podcast Follow Maya Bloomberg @thehemenp Check out https://shelbysmoak.com/ to listen to more of Shelby Smoak Listen to PV Pod: Stories from the Marrow Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Segment is brought to you by Genentech. To read about the efficacy and safety profile of this treatment, visit http://treathemophilia.com Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Gunnar Esiason, son of NFL legend Boomer Esiason, shares his story of living with cystic fibrosis and becoming the advocate he is today. We also speak with Rich Gorman: ethicist (!) on the ethics of gene therapy. Josh reflects on the connection between physical and mental health on Let's Talk. A packed episode! Show Notes: Subscribe: The BloodStream Podcast Learn more about Gunnar Esiason and cystic fibrosis here! Listen to PV Pod: Stories from the Marrow! Check out the Elite Athletes documentary, REDEFINING IMPOSSIBLE trailer here! Follow the newest BloodStream contributor, Maya Bloomberg: @thehemenp Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

A stacked episode with a new Maya Bloomberg (@TheHemeNP !) segment, music from community member Tamar Mitchell, and Patrick sits down with Dr. Z (Zolotnitsky !) to discuss his PT work it the hemophilia community. All that, and more, on this World Hemophilia Day episode of BloodStream Podcast! Show Notes: Subscribe: The BloodStream Podcast Celebrate World Hemophilia Day on social media! Check out the Elite Athletes documentary, REDEFINING IMPOSSIBLE trailer here! Listen here to Tamar Mitchell's new EP: Instagram Apple Music Spotify Follow the newest BloodStream contributor, Maya Bloomberg: @thehemenp Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Patrick and Amy discuss the reaction to Patrick's viral Warning to the Community and we can all agree that we struck a nerve! Also, our first segment with Maya Bloomberg, the @HemeNP where she discusses anemia. Plus, Blood Brother John Christen sharing his work, Bleeding China and the latest installment of Let's Talk. Show Notes: Subscribe: The BloodStream Podcast Check out Bleeding China on Substack by Blood Brother, John Christen Follow the newest BloodStream contributor, Maya Bloomberg: @thehemenp Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Let's Talk shares tips on how to care for your own or someone you love's mental health and strives to eliminate the stigma associated with this discussion within the bleeding disorders community. Visit Letstalkmh.com and click Resources. Brought to you by Sanofi Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

What does taking ownership of your bleeding disorder look like? Patrick shares his thoughts and NHF's education staff, Brendan Hayes and Heather Hicks join us to debut a new program that could change the game. Also, we introduce Maya Bloomberg, a certified nurse practitioner, who is addressing blood disorders through social media. A can't miss episode! Show Notes: Subscribe: The BloodStream Podcast Take control of your health care with NHFs Own Your Path program! This app-based program will provide you with information to navigate life with a bleeding disorder. Being able to stay on top of your treatment is easier if you are able to manage your stress, get enough sleep, move your body, and stay on top of your nutrition. Follow the newest BloodStream contributor, Maya Bloomberg: @thehemenp Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Segment is made possible by Genentech. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

We recognize and celebrate Rare Disease Day on BloodStream! A day to raise awareness, share your story, and appreciate the community we find ourselves in. We'll also get an interview with community member, Murai Johnson, to honor of Black History Month and Josh is back with another Let's Talk: Living in the Almost. About The Infected Blood Inquiry - The Haemophilia Society Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

On this bonus episode, we continue to honor Black History Month with interviews with blood brother, Bobby Wiseman, and Dima Henricks, sickle cell advocate and founder of #ThroughThePain. Plus, a warning for the hemophilia community with care from Patrick and Amy. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

BloodStream welcomes back NHF Vice President of Public Policy, Nathan Schaefer to talk everything Washington Days and advocacy! Plus, an interview with community member and social worker, Mosi Williams and a new segment of The Well. Oh, and Amy and Patrick share some personal advocacy wins and bummers too! Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

BloodStream honors Black History Month with a series of interviews with community members and KOL's Join us for this pop-up episode with Connie Montgomery as she shares her perspective with James Maple. Plus, Josh Bragg is back with another Let's Talk featuring community member, Mike Hargett. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter