BloodStream

Patrick and Amy recap all the happenings at the recent Bleeding Disorder Conference in DC live from The Science Fair! We'll discuss the rebrand to The National Bleeding Disorder Foundation (NBDF) and several sessions that caused interest, including two gene therapy patients with wildly different experiences. Also, we'll premiere the first Elite Athletes segment that highlights community members from the Redefining Impossible film. Show Notes: Subscribe: The BloodStream Podcast Watch Redefining Impossible for free HERE Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Elite Athletes segment presented by @Sanofi Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Don't worry, Amy was given only 3 minutes to share her experience of The Eras Tour and then we get to the good stuff! Maya Bloomberg, the @TheHemeNP, shares four specific pillars of successful disclosure and we debut our new segment, I'm Fine. This new segment aims to challenge our "normals" and truly consider the possibilities. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. I'm Fine presented by @Sanofi Take a deeper at LevelsMatter.com. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

The National Hemophilia Foundation has a major rebrand coming up and we spoke with outgoing CEO and President Len Valentino about that AND SHEmophilia is back with a story from community member Priscilla Oren. We also share some important Medicaid information - don't miss this one! Show Notes: Subscribe: The BloodStream Podcast You can do three practical things to help further the campaign for better treatment for women with bleeding disorders: 1) sign the petition at change.org: Demand Equity in Healthcare for Women 2) Head over to CHES to submit your recommendations for good doctors and hospitals 3) Sign the 'MASAC Document 264' recommendations at hemophilia.org Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Patrick calls in to discuss the first gene therapy for Hemophilia A approved in the United States, while Amy chats with Chris Bombardier and Dru Johnston about season 2 of The Final Summit and Maya Bloomberg shares 5 Tips for a Safe and Fun summer with a bleeding disorders. Show Notes: Subscribe: The BloodStream Podcast Listen to The Final Summit Season 2 Podcast! Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Jessica Lauren Richmond, co-host of the popular FLOW podcast, joins us to discuss all things menstrual health and Amy finally gets to ask –So, how's your FLOW? We also have James Maple back with a music and self-expression segment that spotlights on community member, Max Feinstein. Show Notes: Subscribe: The BloodStream Podcast Listen and Subscribe to the FLOW podcast! Share your FLOW story with us! How's Your Flow Calendly Tik Tok @howsyourflow Instagram @howsyourflow Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Join us as we celebrate World Sickle Cell day on June 19th with contributor Maya Bloomberg, the HemeNP and a conversation with hematologist Dr. Mike Callaghan. Great stuff about equity in healthcare, clinical trial participation, the Sing Me a Story organization, and the Denver Nuggets in the finals. Don't miss it! Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Sing Me A Story Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

We've got a new "SHEmophilia" audio segment brought to us by CHES, as well as Saverio Cimino featured in today's music and expression segment. Then, Patricks catches up with community member, Michael Bishop. A great episode! Show Notes: Subscribe: The BloodStream Podcast Saverio Cimino's Instagram Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. To support CHES's program for women with bleeding disorders, to attend CHES events for individuals and families in the inhibitor community. Or simply to get in touch with comments and ideas please reach out to us at www.ches.education Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Dr. Guy Young joins us for an overview on the newest non-factor replacement therapy for hemophilia A and B, still in clinical trials–Fitusiran. Maya Bloomberg, the HemeNP, is back and so is James Maple with a segment featuring community member and musical artist, Shelby Smoak. We'll also get a sneak peak of a brand new documentary featuring members of our community! Show Notes: Subscribe: The BloodStream Podcast Follow Maya Bloomberg @thehemenp Check out https://shelbysmoak.com/ to listen to more of Shelby Smoak Listen to PV Pod: Stories from the Marrow Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Segment is brought to you by Genentech. To read about the efficacy and safety profile of this treatment, visit http://treathemophilia.com Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Gunnar Esiason, son of NFL legend Boomer Esiason, shares his story of living with cystic fibrosis and becoming the advocate he is today. We also speak with Rich Gorman: ethicist (!) on the ethics of gene therapy. Josh reflects on the connection between physical and mental health on Let's Talk. A packed episode! Show Notes: Subscribe: The BloodStream Podcast Learn more about Gunnar Esiason and cystic fibrosis here! Listen to PV Pod: Stories from the Marrow! Check out the Elite Athletes documentary, REDEFINING IMPOSSIBLE trailer here! Follow the newest BloodStream contributor, Maya Bloomberg: @thehemenp Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

A stacked episode with a new Maya Bloomberg (@TheHemeNP !) segment, music from community member Tamar Mitchell, and Patrick sits down with Dr. Z (Zolotnitsky !) to discuss his PT work it the hemophilia community. All that, and more, on this World Hemophilia Day episode of BloodStream Podcast! Show Notes: Subscribe: The BloodStream Podcast Celebrate World Hemophilia Day on social media! Check out the Elite Athletes documentary, REDEFINING IMPOSSIBLE trailer here! Listen here to Tamar Mitchell's new EP: Instagram Apple Music Spotify Follow the newest BloodStream contributor, Maya Bloomberg: @thehemenp Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter