BloodStream

BloodStream Media
undefined
Oct 27, 2023 • 36min

Rugby & Hemophilia and Treatment Transitions w/ Mosi Williams

Mosi Williams, blood brother and social worker at an HTC in Northern California joins Patrick for the latest I'm Fine segment with a candid discussion about treatment transitions. And we have UK rugby player, Jess Page, who is living with hemophilia on our Elite Athletes with Hemophilia, the companion segment to the new film REDEFINING IMPOSSIBLE from Believe Limited. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. I'm Fine and Elite Athletes with Hemophilia are presented by @SanofiUS Sanofi seeks to expand the idea of what's possible for the hemophilia community. Take a deeper look at the science behind hemophilia and an important connection between factor activity levels and potential activities at LevelsMatter.com Sanofi aims to raise the bar for the patients living with hemophilia. Reimagine what's possible by visiting Rareblooddisorders.com to hear more about Sanofi's dedication to the bleeding disorder community. Watch "I'm Fine": A panel discussion webinar led by Patrick with The National Bleeding Disorders Foundation WFH statement on the Israel-Palestine crisis Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
undefined
Oct 13, 2023 • 55min

Sexual Intimacy, Artificial Intelligence in Healthcare, and Mindset

We're back with another episode of BloodStream featuring Maya Bloomberg's 5 tips for sexual health with a bleeding disorder and AI in Healthcare with Kevin Mills and Pat Mancini. Plus a new SHEmophilia segment and a I'm Fine segment with Mark Skinner. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. To support CHES's program for women with bleeding disorders, to attend CHES events for individuals and families in the inhibitor community. Or simply to get in touch with comments and ideas please reach out to us at www.ches.education Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
undefined
Sep 25, 2023 • 54min

Dr. Akshat Jain and NHL coach David Quinn

Dr. Akshat Jain, Director Inherited Bleeding Disorders at the Loma Linda University Children's Hospital, is here with a wide-ranging conversation, including gene therapy access and affordability in low resource areas. Plus, a new Elite Athletes segment featuring San Jose Sharks Head Coach, David Quinn and another installment of I'm Fine with a spotlight on–leadership. Be careful, leaders, we're coming for ya! Show Notes: Subscribe: The BloodStream Podcast Watch Redefining Impossible for free HERE Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Elite Athletes and I'm Fine segments presented by @Sanofi Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
undefined
Sep 8, 2023 • 32min

Embracing Change in Hemophilia Care and Back to School

Amy is with guest co-host Joshua Sterling Bragg with Back to School & Sickle Cell Awareness Month resources and a new I'm Fine segment about embracing change in hemophilia care. Plus Maya (@theHEMENP!) is back with thoughts on sports and fitness and author Tim Ryan join us! Show Notes: Subscribe: The BloodStream Podcast Back to School Resources at Steps for Living Sickle Awareness Month Resources Mental Health Matters Too Watch Redefining Impossible for free HERE Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Elite Athletes segment presented by @Sanofi Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
undefined
Aug 25, 2023 • 36min

Patrick and Amy's BDC Recap!

Patrick and Amy recap all the happenings at the recent Bleeding Disorder Conference in DC live from The Science Fair! We'll discuss the rebrand to The National Bleeding Disorder Foundation (NBDF) and several sessions that caused interest, including two gene therapy patients with wildly different experiences. Also, we'll premiere the first Elite Athletes segment that highlights community members from the Redefining Impossible film. Show Notes: Subscribe: The BloodStream Podcast Watch Redefining Impossible for free HERE Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Elite Athletes segment presented by @Sanofi Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
undefined
Aug 11, 2023 • 27min

Taylor Swift changes Amy's life, plus a new segment, and other stuff.

Don't worry, Amy was given only 3 minutes to share her experience of The Eras Tour and then we get to the good stuff! Maya Bloomberg, the @TheHemeNP, shares four specific pillars of successful disclosure and we debut our new segment, I'm Fine. This new segment aims to challenge our "normals" and truly consider the possibilities. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. I'm Fine presented by @Sanofi Take a deeper at LevelsMatter.com. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
undefined
Jul 27, 2023 • 36min

NHF rebrand w/ Len Valentino & SHEmophilia w/ Priscilla Oren

The National Hemophilia Foundation has a major rebrand coming up and we spoke with outgoing CEO and President Len Valentino about that AND SHEmophilia is back with a story from community member Priscilla Oren. We also share some important Medicaid information - don't miss this one! Show Notes: Subscribe: The BloodStream Podcast You can do three practical things to help further the campaign for better treatment for women with bleeding disorders: 1) sign the petition at change.org: Demand Equity in Healthcare for Women 2) Head over to CHES to submit your recommendations for good doctors and hospitals 3) Sign the 'MASAC Document 264' recommendations at hemophilia.org Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
undefined
Jul 14, 2023 • 44min

It's here: Gene Therapy for Hemophilia A

Patrick calls in to discuss the first gene therapy for Hemophilia A approved in the United States, while Amy chats with Chris Bombardier and Dru Johnston about season 2 of The Final Summit and Maya Bloomberg shares 5 Tips for a Safe and Fun summer with a bleeding disorders. Show Notes: Subscribe: The BloodStream Podcast Listen to The Final Summit Season 2 Podcast! Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
undefined
Jun 23, 2023 • 45min

Music w/ Max Feinstein and FLOW with Jessica Lauren Richmond

Jessica Lauren Richmond, co-host of the popular FLOW podcast, joins us to discuss all things menstrual health and Amy finally gets to ask –So, how's your FLOW? We also have James Maple back with a music and self-expression segment that spotlights on community member, Max Feinstein. Show Notes: Subscribe: The BloodStream Podcast Listen and Subscribe to the FLOW podcast! Share your FLOW story with us! How's Your Flow Calendly Tik Tok @howsyourflow Instagram @howsyourflow Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
undefined
Jun 9, 2023 • 35min

World Sickle Cell Day & Sing Me A Story

Join us as we celebrate World Sickle Cell day on June 19th with contributor Maya Bloomberg, the HemeNP and a conversation with hematologist Dr. Mike Callaghan. Great stuff about equity in healthcare, clinical trial participation, the Sing Me a Story organization, and the Denver Nuggets in the finals. Don't miss it! Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Sing Me A Story Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

The AI-powered Podcast Player

Save insights by tapping your headphones, chat with episodes, discover the best highlights - and more!
App store bannerPlay store banner
Get the app