Bendy Bodies with Dr. Linda Bluestein

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Alan Hakim, a world-renowned rheumatologist and expert in Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). Dr. Hakim reveals for the first time something about his own health. Listen in to find out what Dr. Hakim really thinks about the Beighton Score and the 2017 hEDS Classification Criteria. He also shares when he feels genetic testing is indicated and how to interpret variants of uncertain significance (VUSs).  Takeaways:Difference Between Connective Tissue Disorders: Dr. Hakim clarifies the difference between hereditary connective tissue disorders like EDS and autoimmune connective tissue disorders such as lupus and rheumatoid arthritis.Evolving EDS Criteria: The 2017 classification of EDS has improved the understanding of conditions like hypermobile EDS, but there’s still ongoing research and work being done to refine the criteria. Dr. Hakim shares his thoughts on the criteria and the process. Comorbidities in EDS and HSD: Conditions such as POTS (Postural Orthostatic Tachycardia Syndrome) and GI disorders often accompany hypermobility-related disorders, though more research is needed to establish how these comorbidities are connected.The Importance of Instability: Joint instability, rather than just hypermobility, may play a more significant role in patient symptoms, making proper diagnosis and treatment plans essential.Future of Genetic Testing: While genetic markers for hypermobile EDS have not yet been identified, significant research is underway to find biomarkers and better understand the genetic components of these disorders. Dr. Hakim shares his thoughts on when genetic testing should be performed and covers red flags for more rare types of EDS and other hereditary connective tissue disorders.  Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.  Learn more about Human Content at http://www.human-content.comPodcast Advertising/Business Inquiries: sales@human-content.comYOUR bendy body is our highest priority! Learn about Dr. Alan Hakim:Instagram: @ehlers.danlosKeep up to date with the HypermobilityMD:YouTube: youtube.com/@bendybodiespodcastTwitter: twitter.com/BluesteinLindaLinkedIn: linkedin.com/in/hypermobilitymdFacebook: facebook.com/BendyBodiesPodcastBlog: hypermobilitymd.com/blogPart of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

Dr. Tina Wang, a board-certified specialist in physical medicine, shares her expertise on fascia's critical role in Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD). She discusses how fascial dysfunction can lead to myofascial pain and joint instability. Innovative ultrasound techniques are highlighted as a game changer for diagnosis and treatment. Dr. Wang emphasizes the value of a holistic approach and manual therapy, tailored to the unique needs of hypermobile patients, to effectively manage pain and improve quality of life.

Each week, join Dr. Linda Bluestein (AKA The Hypermobility MD) on her quest to demystify the wide world of symptomatic joint hypermobility. Get ready to better understand your own bendy body in our newest season – available now! Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, chats with Katie and Andrew Dettelbach, founders of Whealth, a program dedicated to helping people with hypermobility and chronic pain. Both Katie and Andrew have hypermobile Ehlers-Danlos Syndrome (hEDS) and have turned their personal struggles into a platform that empowers others to manage their pain and regain strength. Katie, a critical care nurse, and Andrew, a kinesiologist, discuss their journeys, challenges with hypermobility, and the innovative methods they’ve developed to help thousands worldwide overcome chronic pain. Learn how movement, strength, and understanding your body can transform your life.Takeaways:Movement and Hypermobility: Finding the right type of movement is crucial for managing hypermobility and chronic pain, though it may take trial and error.Strength Training and Pain Relief: Tailored strength training can significantly reduce pain and improve function in hypermobile bodies.Listening to the Body: It’s essential to distinguish between good and bad pain, adjusting your activities accordingly.Holistic Approach: Programs like Whealth emphasize not just movement but also nutrition, stress management, and environment for better overall health.Self-Compassion: Managing chronic conditions requires patience and self-compassion, recognizing that healing and strength-building is a journey.Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.  Learn more about Human Content at http://www.human-content.comPodcast Advertising/Business Inquiries: sales@human-content.comYOUR bendy body is our highest priority! Learn about Whealth Founders Katie & Andrew Dettelbach:X / Twitter: @spreadwhealthInstagram: @whealthFacebook: @spreadwhealthYoutube: @whealthTiktok: @whealth_Andrew IG: @the.shirtlessdudeKeep up to date with the HypermobilityMD:YouTube: youtube.com/@bendybodiespodcastTwitter: twitter.com/BluesteinLindaLinkedIn: linkedin.com/in/hypermobilitymdFacebook: facebook.com/BendyBodiesPodcastBlog: hypermobilitymd.com/blogPart of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this insightful episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with Dr. Natasha Trujillo, a licensed sports psychologist specializing in grief, loss, and chronic illness. Dr. Trujillo and Dr. Bluestien both work with the Colorado Ballet. Dr. Trujillo discusses the complex emotional landscape of grieving when faced with chronic pain, disability, and the loss of identity. She shares valuable strategies for processing grief, moving towards acceptance, and navigating self-compassion. Whether you’ve experienced grief from illness, injury, or significant life changes, this episode provides tools and approaches to living a fuller, more resilient life.Takeaways:Grief Beyond Death: Grief can occur after any significant loss, not just death, especially when living with chronic illness and disability.Acceptance and Resilience: Acceptance is not about giving up; it’s about acknowledging reality while continuing to strive for personal growth and well-being.Grief is Nonlinear: The stages of grief do not always follow a predictable order and can vary widely from person to person.Processing Emotions: Identifying, expressing, and working through emotions are key steps in moving through grief and loss.Self-Compassion: Developing self-compassion is crucial when dealing with grief and loss, as it helps counteract self-blame and fosters emotional healing.Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      Learn more about Human Content at http://www.human-content.comPodcast Advertising/Business Inquiries: sales@human-content.comYOUR bendy body is our highest priority! 🧬🔬🦓Learn about Dr. Natasha Trujillo:Instagram: @npttherapyKeep up to date with the HypermobilityMD:YouTube: youtube.com/@bendybodiespodcastTwitter: twitter.com/BluesteinLindaLinkedIn: linkedin.com/in/hypermobilitymdFacebook: facebook.com/BendyBodiesPodcastBlog: hypermobilitymd.com/blogPart of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with Emily Rich, an occupational therapist specializing in POTS (Postural orthostatic tachycardia syndrome), Ehlers-Danlos syndromes, and other chronic conditions. Emily, who is also a patient with hypermobile EDS and POTS, shares her insights on how occupational therapy can help individuals regain control over their daily lives. From adaptive tools to fatigue management strategies, Emily provides practical advice and discusses her groundbreaking research on group rehabilitation programs for POTS. Tune in to learn how to manage symptoms and improve your quality of life with expert guidance.Takeaways:Occupational Therapy for POTS: Occupational therapy can play a crucial role in helping POTS patients manage daily tasks and improve their quality of life through adaptive tools and strategies.Group Rehabilitation Programs: Emily Rich has developed a group-based rehabilitation program that combines occupational therapy, physical therapy, and mindfulness to help POTS patients manage symptoms effectively.Managing Fatigue: Fatigue is a significant challenge for individuals with POTS and EDS. Techniques like pacing, energy conservation, and strategic rest breaks can help manage energy levels.The Role of Compression: Proper use of compression garments, including abdominal binders, can significantly help manage POTS symptoms by improving blood circulation and reducing symptoms like dizziness and fainting.Holistic Approaches: Emily emphasizes the importance of a holistic approach to managing POTS and EDS, incorporating lifestyle changes, movement, and psychological support to enhance overall well-being.Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      Learn more about Human Content at http://www.human-content.comPodcast Advertising/Business Inquiries: sales@human-content.comYOUR bendy body is our highest priority! 🧬🔬🦓Learn about Emily Rich:Instagram / YouTube: @emilyrichotLinkedin: @emilymrichKeep up to date with the HypermobilityMD:YouTube: youtube.com/@bendybodiespodcastTwitter: twitter.com/BluesteinLindaLinkedIn: linkedin.com/in/hypermobilitymdFacebook: facebook.com/BendyBodiesPodcastBlog: hypermobilitymd.com/blogPart of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

Kaitlin Touza is a renowned pain psychologist who delves into the intricacies of chronic pain and its management. She discusses how the brain interprets pain, emphasizing that it can act as a danger signal influenced by psychological factors like stress and anxiety. Dr. Touza explores effective pain management techniques, highlighting cognitive behavioral therapy and self-compassion's role in coping. The conversation also touches on the importance of understanding pain neuroscience to empower individuals in improving their quality of life.

Dr. Karen Herbst, a leading expert on lipedema and connective tissue diseases, discusses the misdiagnosis of lipedema, often confused with obesity. She explains how hormonal changes impact the condition and highlights the role of inflammation and fibrosis in symptom severity. The conversation covers diet, supplements, and the benefits of intermittent fasting for managing lipedema. Dr. Herbst also shares insights on surgical and non-surgical treatment options, including the significance of customized approaches and the use of compression garments.

In this episode, Dr. Linda Bluestein, the Hypermobility MD, delves into the intricate connections between the immune system and hypermobility disorders with Dr. Kara Wada. A quadruple board-certified physician and Sjogren's patient, Dr. Wada shares her expertise on mast cell activation syndrome, autoimmunity, and the role of inflammation. Discover holistic approaches to managing these conditions and gain valuable insights into the latest research and treatments. Don't miss the special hypermobility hacks at the end!Takeaways:Interplay Between Immune System and EDS: The immune system plays a significant role in hypermobility disorders, with conditions like mast cell activation syndrome and autoimmunity frequently seen in patients with EDS.Differences in Allergy and Mast Cell Activation: Allergy involves the immune system's memory of proteins, whereas mast cell activation syndrome can be triggered by various factors, often without the presence of traditional allergies.Inflammation's Role in Chronic Conditions: Chronic inflammation is a core issue in many modern diseases, including EDS and autoimmune disorders. It's the body's prolonged response to injury or infection that can lead to various health issues.Impact of Hormones: Hormones, particularly estrogen and progesterone, significantly influence immune system functioning and can affect conditions like POTS, often seen in EDS patients.Holistic and Lifestyle Approaches: Managing EDS and related conditions can benefit from holistic approaches, including anti-inflammatory diets, regular movement, adequate sleep, and stress management techniques such as meditation and journaling.Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      Learn more about Human Content at http://www.human-content.comPodcast Advertising/Business Inquiries: sales@human-content.comYOUR bendy body is our highest priority! 🧬🔬🦓Learn about Kara Wada:Website: https://www.drkarawada.com/Instagram: @immuneconfidentmdYoutube: @drkarawadaKeep up to date with the HypermobilityMD:YouTube: youtube.com/@bendybodiespodcastTwitter: twitter.com/BluesteinLindaLinkedIn: linkedin.com/in/hypermobilitymdFacebook: facebook.com/BendyBodiesPodcastBlog: hypermobilitymd.com/blogPart of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic criteria. Tune in to learn about the challenges, successes, and future directions in EDS research and patient care.Takeaways:Global Progress: The Ehlers-Danlos Society has significantly advanced global awareness and research on EDS and HSD.Diagnosis Challenges: Misdiagnosis and lack of understanding among doctors persist; re-education efforts are ongoing.Bloom's Journey: Lara Bloom's path from volunteer to CEO highlights the impact of lived experience in advocacy.Diagnostic Criteria Update: The 2017 criteria for hypermobile EDS will be revisited by 2026, involving extensive research and collaboration.Movement and Self-Care: Regular physical activity is crucial for managing EDS and HSD symptoms, as emphasized by both Bloom and Bluestein.Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      Learn more about Human Content at http://www.human-content.comPodcast Advertising/Business Inquiries: sales@human-content.comYOUR bendy body is our highest priority! 🧬🔬🦓Learn about Lara Bloom:Website: https://www.larabloom.com/Twitter: @larabloomInstagram: @lara.bloomYoutube: @LaraBloomKeep up to date with the HypermobilityMD:YouTube: youtube.com/@bendybodiespodcastTwitter: twitter.com/BluesteinLindaLinkedIn: linkedin.com/in/hypermobilitymdFacebook: facebook.com/BendyBodiesPodcastBlog: hypermobilitymd.com/blogPart of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices