New Books in Disability Studies

In our age of biomedicine, society often treats sickness and disability as problems in need of solution. Phenomena of embodied difference, however, have not always been seen in terms of lack and loss. Where Paralytics Walk and the Blind See: Stories of Sickness and Disability at the Juncture of Worlds (Princeton UP, 2022) explores the case of early modern Catholic Canada under French rule and shows it to be a period rich with alternative understandings of infirmity, disease, and death. Counternarratives to our contemporary assumptions, these early modern stories invite us to creatively imagine ways of living meaningfully with embodied difference today.At the heart of Dunn's account are a range of historical sources: Jesuit stories of illness in New France, an account of Canada's first hospital, the hagiographic vita of Catherine de Saint-Augustin, and tales of miraculous healings wrought by a dead Franciscan friar. In an early modern world that subscribed to a Christian view of salvation, both sickness and disability held significance for more than the body, opening opportunities for virtue, charity, and even redemption. Dunn demonstrates that when these reflections collide with modern thinking, the effect is a certain kind of freedom to reimagine what sickness and disability might mean to us.Reminding us that the meanings we make of embodied difference are historically conditioned, Where Paralytics Walk and the Blind See makes a forceful case for the role of history in broadening our imagination.Brenna Moore teaches in the Department of Theology at Fordham University and works in the areas of Catholic Intellectual History, particularly in modern Europe. Learn more about your ad choices. Visit megaphone.fm/adchoices

In Black Madness :: Mad Blackness (Duke UP, 2019), Therí Alyce Pickens rethinks the relationship between Blackness and disability, unsettling the common theorization that they are mutually constitutive. Pickens shows how Black speculative and science fiction authors such as Octavia Butler, Nalo Hopkinson, and Tananarive Due craft new worlds that reimagine the intersection of Blackness and madness. These creative writer-theorists formulate new parameters for thinking through Blackness and madness. Pickens considers Butler's Fledgling as an archive of Black madness that demonstrates how race and ability shape subjectivity while constructing the building blocks for antiracist and anti-ableist futures. She examines how Hopkinson's Midnight Robber theorizes mad Blackness and how Due's African Immortals series contests dominant definitions of the human. The theorizations of race and disability that emerge from these works, Pickens demonstrates, challenge the paradigms of subjectivity that white supremacy and ableism enforce, thereby pointing to the potential for new forms of radical politics.Clayton Jarrard is a Research Project Coordinator at the University of Kansas Center for Research, contributing to initiatives that bridge research, policy, and community efforts. His scholarly engagement spans the subject areas of Cultural Anthropology, Queer Studies, Disability Studies, Mad Studies, and Religious Studies. Learn more about your ad choices. Visit megaphone.fm/adchoices

The Resistance, Persistence and Resilience of Black Families Raising Children with Autism (Peter Lang, 2020) presents nuanced perspectives in the form of counternarratives of what Black families who have children with autism experience at the intersection of race, class, disability and gender. It intentionally centers the expertise of Black parents, challenging what is considered knowledge, whose knowledge counts, and how knowledge can be co-generated for learning, sharing and advocacy. The book speaks directly to Black parents on the autism journey. To right systemic racial inequities and to cultivate culturally responsive practices, it is critical for practitioners and professionals to understand what is known about Black families' experiences with autism in general and how these experiences differ because of our intersecting identities. University faculty and students in programs involving medicine, speech and language pathology, occupational therapy, nursing, political science, school psychology, teaching, special education and leadership can benefit from the wisdom offered by these parents. This text is perfect for several courses, including those in departments of anthropology, women and gender studies, health sciences, psychology, special education, teacher education and administrative leadership. In addition, given the uniquely Black perspective presented in the text, this text is relevant to other fields, including ethnic studies, cultural studies, urban studies and African American studies. It is relevant to individuals who wish to better understand how issues of race and intra-racial differences shape lived experiences with disability in American society. Learn more about your ad choices. Visit megaphone.fm/adchoices

Reframing Disability in Manga (University of Hawaii Press, 2020) analyzes popular Japanese manga published from the 1990s to the present that portray the everyday lives of adults and children with disabilities in an ableist society. It focuses on five representative conditions currently classified as shōgai (disabilities) in Japan―deafness, blindness, paraplegia, autism, and gender identity disorder―and explores the complexities and sociocultural issues surrounding each. Author Yoshiko Okuyama begins by looking at preindustrial understandings of difference in Japanese myths and legends before moving on to an overview of contemporary representations of disability in popular culture, uncovering socio-historical attitudes toward the physically, neurologically, or intellectually marked Other. She critiques how characters with disabilities have been represented in mass media, which has reinforced ableism in society and negatively influenced our understanding of human diversity in the past.Okuyama then presents fifteen case studies, each centered on a manga or manga series, that showcase how careful depictions of such characters as differently abled, rather than disabled or impaired, can influence cultural constructions of shōgai and promote social change. Informed by numerous interviews with manga authors and disability activists, Okuyama reveals positive messages of diversity embedded in manga and argues that greater awareness of disability in Japan in the last two decades is due in part to the popularity of these works, the accessibility of the medium, and the authentic stories they tell.Scholars and students in disability studies will find this book an invaluable resource as well as those with interests in Japanese cultural and media studies in general and manga and queer narrative and anti-normative discourse in Japan in particular.Yoshiko Okuyama is Professor of Japanese studies at the University of Hawai’i at Hilo, USA. Her recent publications include Japanese Mythology in Film: A Semiotic Approach to Reading Japanese Film and Anime (2015) and Reframing Disability in Manga (2020).Shu Wan is currently matriculated as a doctoral student in history at the University at Buffalo. As a digital and disability historian, he serves in the editorial team of Digital Humanities Quarterly and Nursing Clio. Learn more about your ad choices. Visit megaphone.fm/adchoices

Dr Lucy Series Deprivations of Liberty in The Shadows of the Institution (Bristol University Press, 2022) is one that I have long been looking forward to reading, and it did not disappoint. Series provides a rich historical and socio-legal context to bring new understanding of the post-carceral era, and the legacies of the institutions which continue to shape the contemporary era of social care detention. She provides an in-depth analysis of the very odd legal landscape that has been imported into the British care system, to draw out the specific logics, locus and temporality of a complex social problem, for which the legal solution has produced anomalous results. Her key concern goes beyond bringing new understanding of the ways that individuals are regulated and controlled. Crucially, Series delves into what we should be aiming for. Dr Lucy Series is a lecturer in the school for policy studies at the University of Bristol. She also writes a fabulous blog, The Small Places. Learn more about your ad choices. Visit megaphone.fm/adchoices

As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness--much to the confusion of the world around her. While she cannot see well enough to operate without a guide dog or cane, she can see enough to know when someone is reacting to the visible signs of her blindness and can hear when they're whispering behind her back. And she certainly knows how wrong our one-size-fits-all definitions of disability can be.As a media studies professor, she's also seen the full range of blind and deaf portrayals on film, and here she deconstructs their impact, following common tropes through horror, romance, and everything in between. Part memoir, part cultural criticism, part history of the Deafblind experience, Being Seen: One Deafblind Woman's Fight to End Ableism (Simon Element, 2021) explores how our cultural concept of disability is more myth than fact, and the damage it does to us all. Learn more about your ad choices. Visit megaphone.fm/adchoices

In Black Disability Politics (Duke UP, 2022) Sami Schalk explores how issues of disability have been and continue to be central to Black activism from the 1970s to the present. Dr. Schalk shows how Black people have long engaged with disability as a political issue deeply tied to race and racism. She points out that this work has not been recognized as part of the legacy of disability justice and liberation because Black disability politics differ in language and approach from the mainstream white-dominant disability rights movement. Drawing on the archives of the Black Panther Party and the National Black Women’s Health Project alongside interviews with contemporary Black disabled cultural workers, Dr. Schalk identifies common qualities of Black disability politics, including the need to ground public health initiatives in the experience and expertise of marginalized disabled people so that they can work in antiracist, feminist, and anti-ableist ways. Prioritizing an understanding of disability within the context of white supremacy, Dr. Schalk demonstrates that the work of Black disability politics not only exists but is essential to the future of Black liberation movements.Dr. Sami Schalk is Associate Professor of Gender and Women’s Studies at the University of Wisconsin-Madison and is the author of Bodymind Reimagined: Disability, Race, Gender in Black Women’s Speculative Fiction (Duke University Press, 2018).Sohini Chatterjee is a PhD Candidate in Gender, Sexuality, and Women's Studies at Western University, Canada. Her work has recently appeared in Women's Studies: An inter-disciplinary journal, South Asian Popular Culture and Fat Studies. Learn more about your ad choices. Visit megaphone.fm/adchoices

In Queer and Trans Madness: Struggles for Social Justice (Palgrave Macmillan), Merrick D. Pilling urges those invested in social justice for 2SLGBTQ people to interrogate the biomedical model of mental illness beyond the diagnoses that specifically target gender and sexual dissidence. In this first comprehensive application of Mad Studies to queer and trans experiences of mental distress, Pilling advances a broad critique of the biomedical model of mental illness as it pertains to 2SLGBTQ people, arguing that Mad Studies is especially amenable to making sense of queer and trans madness. Based on empirical data from two qualitative research studies, this book includes analyses of inpatient chart documentation from a psychiatric hospital and interviews with those who have experienced distress. Using an intersectional lens, Pilling critically examines what constitutes mental health treatment and the impacts of medical strategies on mad queer and trans people. Ultimately, Queer and Trans Madness: Struggles for Social Justice explores the emancipatory promise of queer and trans madness, advocating for more resources to respond to crisis and distress in ways that are non-coercive, non-carceral, and honour autonomy as well as interdependence within 2SLGBTQ communities.Clayton Jarrard works at the University of Kansas Center for Research, contributing to initiatives that bridge research, policy, and community efforts. His scholarly engagement spans the subject areas of cultural anthropology, queer studies, disability studies, mad studies, and religious studies. Learn more about your ad choices. Visit megaphone.fm/adchoices

In Confidence Culture (Duke UP, 2022), Shani Orgad and Rosalind Gill argue that imperatives directed at women to “love your body” and “believe in yourself” imply that psychological blocks rather than entrenched social injustices hold women back. Interrogating the prominence of confidence in contemporary discourse about body image, workplace, relationships, motherhood, and international development, Orgad and Gill draw on Foucault’s notion of technologies of self to demonstrate how “confidence culture” demands of women near-constant introspection and vigilance in the service of self-improvement. They argue that while confidence messaging may feel good, it does not address structural and systemic oppression. Rather, confidence culture suggests that women—along with people of color, the disabled, and other marginalized groups—are responsible for their own conditions. Rejecting confidence culture’s remaking of feminism along individualistic and neoliberal lines, Orgad and Gill explore alternative articulations of feminism that go beyond the confidence imperative.Louisa Hann recently attained a PhD in English and American studies from the University of Manchester, specialising in the political economy of HIV/AIDS theatres. She has published work on the memorialisation of HIV/AIDS on the contemporary stage and the use of documentary theatre as a neoliberal harm reduction tool. She is currently working on a monograph based on her doctoral thesis. You can get in touch with her at louisahann92@gmail.com. Learn more about your ad choices. Visit megaphone.fm/adchoices

In 1988, Sandi and Larry Zobrest sued a suburban Tucson, Arizona, school district that had denied their hearing-impaired son a taxpayer-funded interpreter in his Roman Catholic high school. The Catalina Foothills School District argued that providing a public resource for a private, religious school created an unlawful crossover between church and state. The Zobrests, however, claimed that the district had infringed on both their First Amendment right to freedom of religion and the Individuals with Disabilities Education Act (IDEA).In Disability Rights and Religious Liberty in Education: The Story Behind Zobrest V. Catalina Foothills School District (U Illinois Press, 2020), Bruce J. Dierenfield and David A. Gerber use the Zobrests' story to examine the complex history and jurisprudence of disability accommodation and educational mainstreaming. They look at the family's effort to acquire educational resources for their son starting in early childhood and the choices the Zobrests made to prepare him for life in the hearing world rather than the deaf community. Dierenfield and Gerber also analyze the thorny church-state issues and legal controversies that informed the case, its journey to the U.S. Supreme Court, and the impact of the high court's ruling on the course of disability accommodation and religious liberty.D​​​​avid A. Gerber taught American History at the University at Buffalo (SUNY) from 1971 to his retirement in 2012. He was founding Director of the Center for Disability Studies at UB, and served in that capacity from 2009 through 2012. His interests in History have been grown over the course of years to encompass manifestations of personal and social identity in a wide variety of groups and individuals including during the course of his career: African Americans; American Jews; American Catholics; European immigrants, and people with disabilities.Bruce Dierenfield has long been interested in the history of American race relations, and has written a popular textbook on the civil rights movement and another on African-American leadership since enslavement. As Peter Canisius Distinguished Teaching Professor, Dierenfield organized the “African-American Experience,” led student trips to West Africa and the Deep South, and invited distinguished historians and many influential activists of the 1960s to speak on campusShu Wan is currently matriculated as a doctoral student in history at the University at Buffalo. As a digital and disability historian, he serves in the editorial team of Digital Humanities Quarterly and Nursing Clio. Learn more about your ad choices. Visit megaphone.fm/adchoices