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New Books in Disability Studies

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Feb 23, 2022 • 58min

Gaye T. Lansdell et al., "Neurodisability and the Criminal Justice System: Comparative and Therapeutic Responses" (Edward Elgar, 2021)

Neurodisability and the Criminal Justice System: Comparative and Therapeutic Responses (Edward Elgar Publishing, 2021) delves into an under-researched and little understood but extremely pertinent issue in law; the prevalence of neurodisability within criminal justice systems. Considering the challenges faced by both juveniles and adults with neuorodisabilities who come into contact with the criminal justice system, a host of interdisciplinary international scholars examine the issue from multiple perspectives; from that of lawyers, magistrates, and through the lens of therapeutic and legal analysis, this contribution offers suggestions for reform of both legislation and practice. The book makes the case that criminal justice systems lack the accommodations required both within the institution and the community to adequately support those with neurodisabilities who come into contact with the criminal justice system. In this conversation, with one of the co-editors of the book, Anna Eriksson, we cover a broad range of ground - from the ways in which resources could be reallocated to better address issues of community safety, to how better with neurodisabilities may be better supported in a practical basis to bring more just, equitable and humane outcomes. This is an important book for criminal lawyers, policy makers, criminologists and members of the public who wish to understand and challenge the barriers that people with neurodisabilities face, not just as a result of the criminal justice system but on a day-to-day basis.   Gaye T. Lansdell is an Associate Professor in The Faculty of Law at Monash University. Bernadette J Saunders is a Senior Lecturer in the Department of Medicine, Nursing and Health Sciences at Monash University. Anna Eriksson is an Associate Professor in Criminology at Monash University. Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK Learn more about your ad choices. Visit megaphone.fm/adchoices
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Feb 9, 2022 • 44min

Sydney A. Halpern, "Dangerous Medicine: The Story Behind Human Experiments with Hepatitis" (Yale UP, 2021)

From 1942 through 1972, American biomedical researchers deliberately infected people with hepatitis. Government-sponsored researchers were attempting to discover the basic features of the disease and the viruses causing it, and develop interventions that would quell recurring outbreaks. Drawing from extensive archival research and in-person interviews, Sydney Halpern traces the hepatitis program from its origins in World War II through its expansion during the initial Cold War years, to its demise in the early 1970s amid outcry over research abuse. The subjects in hepatitis studies were members of stigmatized groups--conscientious objectors, prison inmates, and developmentally disabled adults and children. Dangerous Medicine: The Story Behind Human Experiments with Hepatitis (Yale UP, 2021) reveals how researchers invoked military and scientific imperatives and the rhetoric of common good to win support for the experiments and access to potential recruits. Halpern examines consequences of participation for subjects' long-term health, and raises troubling questions about hazardous human experiments aimed at controlling today's epidemic diseases.Claire Clark is a medical educator, historian of medicine, and associate professor in the University of Kentucky’s College of Medicine. Learn more about your ad choices. Visit megaphone.fm/adchoices
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Dec 23, 2021 • 36min

Sarah and Larry Nannery, "What to Say Next: Successful Communication in Work, Life, and Love with Autism Spectrum Disorder" (Tiller Press, 2021)

Today I talked to Sarah and Larry Nannery about their new book What to Say Next: Successful Communication in Work, Life, and Love with Autism Spectrum Disorder (Tiller Press, 2021).What’s it like to live a life where there’s a time delay as you process what others are saying, what it might mean, and how you feel in response? Sarah Nannery knows that experience intimately, gaining in ability over the years to navigate everything from office politics to her personal life more adeptly given her ASD Brain. As a “neurotypical brain” person, her husband Larry Nannery adds his “two-cents” perspective here in terms of observing and helping Sarah and himself navigate their experiences together. Highlights of this conversation include: what internalization means to Sarah in coping with being “bottled up inside” more than perhaps most people, and how one makes a “conversational sandwich” as a way of handling small talk when it looms large as a challenge.Sarah Nannery is the director of development for Autism Initiatives at Drexel University. Larry Nannery is a technology consultant who focuses on organizational change and life-coaching.Dan Hill, PhD, is the author of nine books and leads Sensory Logic, Inc. (https://www.sensorylogic.com). His new book is Blah, Blah, Blah: A Snarky Guide to Office Lingo. To check out his related “Dan Hill’s EQ Spotlight” blog, visit https://emotionswizard.com. Learn more about your ad choices. Visit megaphone.fm/adchoices
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Dec 2, 2021 • 1h 18min

Jan Nisbet and Nancy Weiss, "Pain and Shock in America: Politics, Advocacy, and the Controversial Treatment of People with Disabilities" (Brandeis UP, 2021)

Amid a string of fall 2021 news reports about past-due exonerations and (white) self-defense that document the limits of racial justice within the U.S. legal system, Pain and Shock in America: Politics, Advocacy, and the Controversial Treatment of People with Disabilities (Brandeis University Press, 2021) becomes an even more relevant and timely book. Dr. Jan Nisbet, who authored the book with contributions from Nancy Weiss, introduces it succinctly: “The story is long, complicated, and filled with questions about society and its ability to care about, protect, and support the most vulnerable citizens. It is a story that calls into question the degree to which people who do not have disabilities can separate themselves from those who do, allowing painful interventions that they themselves would not likely tolerate” (2021, p. 8). If justice is central to evaluations of the social policies and public institutions charged with administering it, disability–as core issue theorized in philosophies of justice–must be centered as well (Putnam et al., 2019).To this end, Pain and Shock in America “intentionally highlights the hard-fought battles of disabled survivors like Jennifer Msumba and disabled-led advocacy organizations like the Autistic Self-Advocacy Network,” as “disabled self-advocates (who also happen to be lawyers)” (Nisbet 2021, p. vii-viii) Shain M. Neumeier and Lydia X.Z. Brown write in the Foreword––themselves appearing in the book as leaders with critical roles. The volume chronicles a nearly half-century saga involving the law, education, psychology, and medical fields as they converge in methods and culture of The Judge Rotenberg Center, a privately-run facility in Massachusetts which, despite six student deaths and consistent frequent citations for abuse and neglect, has been funded by taxpayers from about a dozen states and our nation’s capital as a placement for students with disabilities. Though its use of a self-made electric shock device makes the Judge Rotenberg Center unique in the country and perhaps the world, its institutional history provides a broader if extreme “lens through which we can understand the societal issues facing people with disabilities and their families” (Nisbet 2021, p. 10)Jan Nisbet is professor emeritus at the University of New Hampshire, where she served for ten years as the senior vice provost for research. Before assuming that position, she was the founding director of the Institute on Disability and professor in the Department of Education. She has been principal investigator on many state- and nationally-funded projects related to children and adults with disabilities.Nancy R. Weiss is a faculty member and the Director of the National Leadership Consortium on Developmental Disabilities at the University of Delaware. She is the former Executive Director of TASH, an international advocacy association committed to the full inclusion of people with disabilities. She has more than forty years of experience in the field of intellectual and developmental disabilities and has worked extensively providing community living and positive behavioral supports.Christina A. Bosch is an assistant professor of special education in the Literacy, Early, Bilingual and Special Education Department of the Kremen School of Education and Human Development at California State University Fresno; on Twitter as @DocCABosch Learn more about your ad choices. Visit megaphone.fm/adchoices
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Nov 22, 2021 • 1h 9min

Michelle R. Nario-Redmond, "Ableism: The Causes and Consequences of Disability Prejudice" (John Wiley and Sons, 2019)

Of the dozens of juicy questions for future inquiry that Dr. Michelle Nario-Redmond provides at the end of Ableism: The Causes and Consequences of Disability Prejudice (Published by Wiley in 2021), the following stands out the most to me, in my various group-membership roles:How do we build common ground between disadvantaged groups for effective cross-impairment coalitions?Though it seemed impossible for this question to feel any more urgent after over a year and a half of COVID-19 and the parallel prominence of social movements to make Black Lives Matter, a recent article by my latest author crush unpacking a profoundly intersectional moment in the meme culture of what we should be calling (thanks to Neal Stephenson’s 30-year old book) Metaverse 1.0 – AKA social media, especially those platforms now owned by the maybe-monopoly formerly known as Facebook – reminded me again of the immense possibilities of disability as a political identity (see Annamma & Morrison, 2018, particularly the footnotes for more background on this). Nicole Froio’s article-that-should-become-a-book extrapolates from a celebrity’s (whack!) Instagram post as an exemplification of what the writer dubs the masculine “performativity of doing the least,” in which the “‘model’ heterosexual family consists of an all-sacrificing mother, a paternalistic father, and children free from disability.”The timing of Froio’s deft analysis and the 34,000 likes it has garnered–compared to the upwards of 2 million bestowed upon the post in question—remind me of beloved if nuclear boomer Bill Maher’s synchronous editorial segment comparing “model citizen” Greta Thunburg (who is autistic), with 13 million followers, to the “model” (capitalist straight femme normate) Kylie Jenner, with 279 million.Christina Anderson Bosch is an assistant professor of special education at the California State University, Fresno, also on Twitter @DocCABosch. Learn more about your ad choices. Visit megaphone.fm/adchoices
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Nov 18, 2021 • 31min

Aaron J. Jackson, "Worlds of Care: The Emotional Lives of Fathers Caring for Children with Disabilities" (U California Press, 2021)

Vulnerable narratives of fatherhood are few and far between; rarer still is an ethnography that delves into the practical and emotional realities of intensive caregiving. Grounded in the intimate everyday lives of men caring for children with major physical and intellectual disabilities, Worlds of Care: The Emotional Lives of Fathers Caring for Children with Disabilities (U California Press, 2021) undertakes an exploration of how men shape their identities in the context of caregiving. Anthropologist Aaron J. Jackson fuses ethnographic research and creative nonfiction to offer an evocative account of what is required for men to create habitable worlds and find some kind of “normal” when their circumstances are anything but. Combining stories from his fieldwork in North America with reflections on his own experience caring for his severely disabled son, Jackson argues that care has the potential to transform our understanding of who we are and how we relate to others.Aaron J. Jackson is a Lecturer in Anthropology at Victoria University. His research focuses on fatherhood, care, and disability.Alize Arıcan is a Postdoctoral Associate at Rutgers University's Center for Cultural Analysis. She is an anthropologist whose research focuses on urban renewal, futurity, care, and migration in Istanbul, Turkey. Her work has been featured in Current Anthropology, City & Society, Radical Housing Journal, and entanglements: experiments in multimodal ethnography. Learn more about your ad choices. Visit megaphone.fm/adchoices
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Nov 12, 2021 • 44min

Julia Bahner, "Sexual Citizenship and Disability: Understanding Sexual Support in Policy, Practice and Theory" (Routledge, 2021)

What does ‘sexual citizenship’ mean in practice for people with mobility impairments who may need professional support to engage in sexual activity? Sexual Citizenship and Disability: Understanding Sexual Support in Policy, Practice and Theory (Routledge, 2021) explores this subject through empirical investigation based on case studies conducted in four countries – Sweden, England, Australia and the Netherlands – and develops the abstract notion of ‘sexual citizenship’ to make it practically relevant to disabled people, professionals in disability services and policy-makers. Through a cross-national approach, it demonstrates the variability of how sexual rights are understood and their culturally specific nature. It also shows how the personal is indeed political: states’ different policy approaches change the outcomes for disabled people in terms of support to explore and express their sexualities. By proposing a model of sexual facilitation that can be used in policy development, to better cater to disabled service users’ needs as well as furthering the theoretical understanding of sexual rights and sexual citizenship, this book will be of interest to professionals in disability services and policy-makers as well as academics and students working in the following subject areas: Disability Studies, Sociology, Social Policy, Sexuality Studies/Sexology, Social Work, Nursing, Occupational Therapy and Public Health.Julia Bahner is a postdoctoral fellow at the School of Social Work, Lund University, Sweden, and was formerly Marie Curie Individual Fellow at the Centre for Disability Studies, School of Sociology, University of Leeds, UK. She holds a PhD in social work and has worked extensively with disabled people’s organisations, sexual rights organisations and disability service organisations to develop better policies and practices around sexuality, disability and support.Sohini Chatterjee is a PhD Student in Gender, Sexuality, and Women's Studies at Western University, Canada. Her work has recently appeared in South Asian Popular Culture and Fat Studies. Learn more about your ad choices. Visit megaphone.fm/adchoices
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Nov 8, 2021 • 1h 13min

Luke Clements, "Clustered Injustice and The Level Green" (Legal Action Group, 2020)

In Clustered Injustice and The Level Green (Legal Action Group, 2020), Professor Luke Clements tackles the problem of the way in which "our legal system generates and exacerbates disadvantage." Examining the interconnectedness of disadvantage faced by many minorities - such as people who are homeless, Roma, Gypsies and Travelling people, disabled people, those within the criminal justice system, people who are chronically poor and more - he makes an argument that law segregates individuals' problems into isolated incidences, but rather than solving problems, this segregation exacerbates disadvantage. Injustice is clustered, it is interconnected and law, policy and bureaucracies'  failure to recognise this keeps people in positions of relative disadvantage and limits their opportunities to flourish in their own conception of the good life. However, it is not all bad news. building on a wealth of professional experience and theoretical insight, Luke offers a roadmap for reform. He seeks to imagine a better system which would be better not just for those who face disadvantage, but for all members of the community. Luke is the Cerebra Professor of Law and Social Justice at the School of Law, Leeds University. He practised as a solicitor between 1981 and 2021 and in that capacity had conduct of a number of cases before the European Commission and Court of Human Rights. In 1996 he was the solicitor who took the first Roma case to reach the Strasbourg Court Buckley v. UK (1996)Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK Learn more about your ad choices. Visit megaphone.fm/adchoices
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Nov 2, 2021 • 57min

Anthony Ianni, "Centered: Autism, Basketball, and One Athlete's Dreams" (Red Lightning Books, 2021)

"They don't know me. They don't know what I'm capable of." Diagnosed with pervasive developmental disorder, a form of autism, as a toddler, Anthony Ianni wasn't expected to succeed in school or participate in sports, but he had other ideas. As a child, Ianni told anybody who would listen, including head coach Tom Izzo, that he would one day play for the Michigan State Spartans.Centered: Autism, Basketball, and One Athlete's Dreams is the firsthand account of a young man's social, academic, and athletic struggles and his determination to reach his goals. In this remarkable memoir, Ianni reflects on his experiences with both basketball and the autism spectrum. Centered, an inspirational sports story in the vein of Rudy, reveals Ianni to be unflinching in his honesty, generous in his gratitude, and gracious in his compassion.Sports fans will root for the underdog. Parents, teachers, and coaches will gain insight into the experience of an autistic child. And everyone will triumph in the achievements of Centered.Galina Limorenko is a doctoral candidate in Neuroscience with a focus on biochemistry and molecular biology of neurodegenerative diseases at EPFL in Switzerland. To discuss and propose the book for an interview you can reach her at galina.limorenko@epfl.ch. Learn more about your ad choices. Visit megaphone.fm/adchoices
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Oct 22, 2021 • 1h 3min

Jacki Edry, "Moving Forward: Reflections on Autism, Neurodiversity, Brain Surgery, and Faith" (2021)

Jacki Edry's Moving Forward: Reflections on Autism, Neurodiversity, Brain Surgery, and Faith (2021) is a journey between the worlds of autism, neurodiversity, brain surgery recovery, and faith. It provides a rare glimpse into how sensory and neurological processing affect functioning and thought, through the eyes of a professional, parent, and woman who has experienced them firsthand.This book presents an informative, emotional, and empowering account of the challenges and struggles on the road to recovery ‒ as well as the search for understanding, meaning, and faith. It enables you to step into the shoes of someone who has endured the types of sensory irregularities common in people with neurodiversity; including autism, ADHD, dyslexia, Irlen Syndrome, Auditory Processing Disorder, and more, and to gain understanding as to how to cope with these challenges and to compensate for them.Moving forward will enlighten parents, professionals, and family members to better understand and assist the neurodivergent people whom they work with and love.Galina Limorenko is a doctoral candidate in Neuroscience with a focus on biochemistry and molecular biology of neurodegenerative diseases at EPFL in Switzerland. To discuss and propose the book for an interview you can reach her at galina.limorenko@epfl.ch. Learn more about your ad choices. Visit megaphone.fm/adchoices

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