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New Books in Disability Studies

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Jul 8, 2022 • 1h 12min

Alison Macor, "Making The Best Years of Our Lives: The Hollywood Classic That Inspired a Nation" (U Texas Press, 2022)

Released in 1946, The Best Years of Our Lives became an immediate success. Life magazine called it “the first big, good movie of the post-war era” to tackle the “veterans problem.” Today we call that problem PTSD, but in the initial aftermath of World War II, the modern language of war trauma did not exist. The film earned the producer Samuel Goldwyn his only Best Picture Academy Award. It offered the injured director, William Wyler, a triumphant postwar return to Hollywood. And for Harold Russell, a double amputee who costarred with Fredric March and Dana Andrews, the film provided a surprising second act. Award-winning author Alison Macor illuminates the film’s journey from script to screen and describes how this authentic motion picture moved audiences worldwide. General Omar Bradley believed The Best Years of Our Lives would help “the American people to build an even better democracy” following the war, and the movie inspired broad reflection on reintegrating the walking wounded. But the film’s nuanced critique of American ideals also made it a target, and the picture and its creators were swept up in the anti-Communist witch hunts of the late 1940s. In Making The Best Years of Our Lives: The Hollywood Classic That Inspired a Nation (U Texas Press, 2022), Macor chronicles the making and meaning of a film that changed America.Joel Tscherne is an Adjunct History Professor at Southern New Hampshire University. His Twitter handle is @JoelTscherne. Learn more about your ad choices. Visit megaphone.fm/adchoices
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Jun 17, 2022 • 57min

Marga Vicedo, "Intelligent Love: The Story of Clara Park, Her Autistic Daughter, and the Myth of the Refrigerator Mother" (Beacon Press, 2021)

In the early 1960s, Massachusetts writer and homemaker Clara Park and her husband took their 3-year-old daughter, Jessy, to a specialist after noticing that she avoided connection with others. Following the conventional wisdom of the time, the psychiatrist diagnosed Jessy with autism and blamed Clara for Jessy's isolation. Experts claimed Clara was the prototypical "refrigerator mother," a cold, intellectual parent who starved her children of the natural affection they needed to develop properly.Refusing to accept this, Clara decided to document her daughter's behaviors and the family's engagement with her. In 1967, she published her groundbreaking memoir challenging the refrigerator mother theory and carefully documenting Jessy's development. Clara's insights and advocacy encouraged other parents to seek education and support for their autistic children. Meanwhile, Jessy would work hard to expand her mother's world, and ours.Drawing on previously unexamined archival sources and firsthand interviews, science historian Marga Vicedo illuminates the story of how Clara Park and other parents fought against medical and popular attitudes toward autism while presenting a rich account of major scientific developments in the history of autism in the US. Intelligent Love: The Story of Clara Park, Her Autistic Daughter, and the Myth of the Refrigerator Mother (Beacon Press, 2021) is a fierce defense of a mother's right to love intelligently, the value of parents' firsthand knowledge about their children, and an individual's right to be valued by society.Galina Limorenko is a doctoral candidate in Neuroscience with a focus on biochemistry and molecular biology of neurodegenerative diseases at EPFL in Switzerland. Learn more about your ad choices. Visit megaphone.fm/adchoices
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Jun 16, 2022 • 1h 11min

Jennifer Natalya Fink, "All Our Families: Disability Lineage and the Future of Kinship" (Beacon Press, 2022)

Disability is often described as a tragedy, a crisis, or an aberration, though 1 in 5 people worldwide have a disability. Why is this common human experience rendered exceptional? In All Our Families: Disability Lineage and the Future of Kinship (Beacon Press, 2022), disability studies scholar Jennifer Natalya Fink argues that this originates in our families. When we cut a disabled member out of the family story, disability remains a trauma as opposed to a shared and ordinary experience. This makes disability and its diagnosis traumatic and exceptional.Weaving together stories of members of her own family with sociohistorical research, Fink illustrates how the eradication of disabled people from family narratives is rooted in racist, misogynistic, and antisemitic sorting systems inherited from Nazis. By examining the rhetoric of genetic testing, she shows that a fear of disability begins before a child is even born and that a fear of disability is, fundamentally, a fear of care. Fink analyzes our racist and sexist care systems, exposing their inequities as a source of stigmatizing ableism.Inspired by queer and critical race theory, Fink calls for a lineage of disability a reclamation of disability as a history, a culture, and an identity. Such a lineage offers a means of seeing disability in the context of a collective sense of belonging, as cause for celebration, and is a call for a radical reimagining of carework and kinship. All Our Families challenges us to re-lineate disability within the family as a means of repair toward a more inclusive and flexible structure of care and community.Galina Limorenko is a doctoral candidate in Neuroscience with a focus on biochemistry and molecular biology of neurodegenerative diseases at EPFL in Switzerland. Learn more about your ad choices. Visit megaphone.fm/adchoices
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Jun 10, 2022 • 46min

Danya Glabau, "Food Allergy Advocacy: Parenting and the Politics of Care" (U Minnesota Press, 2022)

A detailed exploration of parents' fight for a safe environment for their kids, interrogating how race, class, and gender shape health advocacy The success of food allergy activism in highlighting the dangers of foodborne allergens shows how illness communities can effectively advocate for the needs of their members. In Food Allergy Advocacy: Parenting and the Politics of Care (U Minnesota Press, 2022), Danya Glabau follows parents and activists as they fight for allergen-free environments, accurate labeling, the fair application of disability law, and access to life-saving medications for food-allergic children in the United States. At the same time, she shows how this activism also reproduces the culturally dominant politics of personhood and responsibility, based on an idealized version of the American family, centered around white, middle-class, and heteronormative motherhood. By holding up the threat of food allergens to the white nuclear family to galvanize political and scientific action, Glabau shows, the movement excludes many, including Black women and disabled adults, whose families and health have too often been marginalized from public health and social safety net programs. Further, its strategies are founded on the assumption that market-based solutions will address issues of social exclusion and equal access to healthcare. Sharing the personal experiences of a wide spectrum of people, including parents, support group leaders, physicians, entrepreneurs, and scientists, Food Allergy Advocacy raises important questions about who controls illness activism. Using critical, intersectional feminism to interrogate how race, class, and gender shape activist priorities and platforms, it shows the way to new, justice-focused models of advocacy.Danya Glabau is a medical anthropologist and science and technology studies scholar who researches patient activism, the political economy of the global pharmaceutical industry, and feminist cybercultures. She is a faculty member at the NYU Tandon School of Engineering and the Director of the Science and Technology Studies Program.Autumn Wilke works in higher education as an ADA coordinator and diversity officer and am also an author and doctoral candidate with research/topics related to disability and higher education. Learn more about your ad choices. Visit megaphone.fm/adchoices
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May 17, 2022 • 1h 18min

Jonathan Sterne, "Diminished Faculties: A Political Phenomenology of Impairment" (Duke UP, 2022)

Diminished Faculties: A Political Phenomenology of Impairment (Duke UP, 2022) begins by calling into question a fundamental principle of orthodox phenomenology (and, for that matter, a great deal of humanities research): that of a fully self-aware unchanging subject who can provide a coherent account of its own experience, one which is commensurable and legible to others. Having foregrounded that instead ‘living means changing’, and that ‘everything in the narration of experience is a distortion’, Sterne suggests that attending to the realities of a world that is full of impairments helps one to more fully understand, and perhaps fight against, the expected norms that structure the social world. After laying out his case for an ‘impairment phenomenology’, Sterne turns to three kinds of impairment: vocal impairment, hearing loss, and fatigue - or as he puts it in our interview, ‘not speaking well, not hearing well, and not feeling well’. Through a careful analysis of the history, treatment, and highly varied sets of cultural attitudes toward these impairments, Sterne makes a compelling case for considering impairment as central to all human experience, raising vital political questions for accommodating bodily variety. Diminished Faculties is written in a range of registers – containing a detailed guide to an imagined exhibition of ‘new vocalities’, a User Guide to impairment theory, and a personal account of vocal paralysis – and synthesises cutting-edge theory from disability studies, sound studies, queer theory and much more. The book is written with generosity and a sense of humour, and will leave any reader thinking differently about how to understand issues of experience, agency and disability.In our interview Jonathan mentions one of his favourite works ‘exhibited’ in the book’s imaginary exhibition, ‘Masque’ by Hodan Youssouf. Learn more about your ad choices. Visit megaphone.fm/adchoices
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Apr 22, 2022 • 38min

Megan Birk, "The Fundamental Institution: Poverty, Social Welfare, and Agriculture in American Poor Farms" (U Illinois Press, 2022)

By the early 1900s, the poor farm had become a ubiquitous part of America's social welfare system. Megan Birk's history of this foundational but forgotten institution focuses on the connection between agriculture, provisions for the disadvantaged, and the daily realities of life at poor farms. Conceived as an inexpensive way to provide care for the indigent, poor farms in fact attracted wards that ranged from abused wives and the elderly to orphans, the disabled, and disaster victims. Most people arrived unable rather than unwilling to work, some because of physical problems, others due to a lack of skills or because a changing labor market had left them behind. Birk blends the personal stories of participants with institutional histories to reveal a loose-knit system that provided a measure of care to everyone without an overarching philosophy of reform or rehabilitation. In-depth and innovative, The Fundamental Institution: Poverty, Social Welfare, and Agriculture in American Poor Farms (U Illinois Press, 2022) offers an overdue portrait of rural social welfare in the United States.Stephen Pimpare is director of the Public Service & Nonprofit Leadership program and Faculty Fellow at the Carsey School of Public Policy at the University of New Hampshire. Learn more about your ad choices. Visit megaphone.fm/adchoices
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Apr 15, 2022 • 39min

A Conversation with Autumn Wilke about Disability in Higher Education

Today I talked to Autumn Wilke of Grinnell College about her book (co-authored with Nancy J. Evans, Ellen M. Broido, and Kirsten R. Brown) Disability in Higher Education: A Social Justice Approach (Jossey-Bass, 2017).Disability in Higher Education examines how disability is conceptualized in higher education and ways in which students, faculty, and staff with disabilities are viewed and served on college campuses. Drawing on multiple theoretical frameworks, research, and experience creating inclusive campuses, this text offers a new framework for understanding disability using a social justice lens. Many institutions focus solely on legal access and accommodation, enabling a system of exclusion and oppression. However, using principles of universal design, social justice, and other inclusive practices, campus environments can be transformed into more inclusive and equitable settings for all constituents.The authors consider the experiences of students, faculty, and staff with disabilities and offer strategies for addressing ableism within a variety of settings, including classrooms, residence halls, admissions and orientation, student organizations, career development, and counseling. They also expand traditional student affairs understandings of disability issues by including chapters on technology, law, theory, and disability services. Using social justice principles, the discussion spans the entire college experience of individuals with disabilities, and avoids any single-issue focus such as physical accessibility or classroom accommodations.The book will help readers: Consider issues in addition to access and accommodation Use principles of universal design to benefit students and employees in academic, cocurricular, and employment settings Understand how disability interacts with multiple aspects of identity and experience. Despite their best intentions, college personnel frequently approach disability from the singular perspective of access to the exclusion of other important issues. This book provides strategies for addressing ableism in the assumptions, policies and practices, organizational structures, attitudes, and physical structures of higher education.Marshall Poe is the founder and editor of the New Books Network. He can be reached at marshallpoe@newbooksnetwork.com. Learn more about your ad choices. Visit megaphone.fm/adchoices
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Apr 5, 2022 • 1h 27min

Jenifer L. Barclay, "The Mark of Slavery: Disability, Race, and Gender in Antebellum America" (U of Illinois Press, 2021)

Time and again, antebellum Americans justified slavery and white supremacy by linking blackness to disability, defectiveness, and dependency. In The Mark of Slavery: Disability, Race, and Gender in Antebellum America (University of Illinois Press, 2021), historian Jenifer L. Barclay examines the ubiquitous narratives that depicted black people with disabilities as pitiable, monstrous, or comical, narratives used not only to defend slavery but argue against it. As she shows, this relationship between ableism and racism impacted racial identities during the antebellum period and played an overlooked role in shaping American history afterward. Barclay also illuminates the everyday lives of the ten percent of enslaved people who lived with disabilities. Devalued by slaveholders as unsound and therefore worthless, these individuals nonetheless carved out an unusual autonomy. Their roles as caregivers, healers, and keepers of memory made them esteemed within their own communities and celebrated figures in song and folklore. Prescient in its analysis and rich in detail, The Mark of Slavery is a powerful addition to the intertwined histories of disability, slavery, and race.Jenifer L. Barclay is an Assistant Professor of History at SUNY Buffalo. Her research places African American history in conversation with the “new” disability history, a field that emphasizes disability as a lived human experience embedded in a set of socially constructed ideas that change over time, across cultures, and in relation to other categories of identity such as race, gender, class and sexuality. She earned her Ph.D. in African American History at Michigan State University. Jerrad P. Pacatte is a Ph.D. candidate and School of Arts and Sciences Excellence Fellow in the Department of History at Rutgers University-New Brunswick. A social historian of gender, slavery, and emancipation in early America and the Atlantic World, Jerrad is currently completing his dissertation, entitled “The Work of Freedom: African American Women and the Ordeal of Emancipation in New England, 1740-1840” which examines the everyday lives, labors, and emancipation experiences of African-descended women in late-colonial and early republic New England. Jerrad is also increasingly interested in the history of slavery and disability in the context of early America; his research examining the lives and physically-disabling nature of enslavement in early New England will be published in two peer-reviewed anthologies - one of which is co-edited by Jenifer L. Barclay and Stefanie Hunt Kennedy - early next year.  Learn more about your ad choices. Visit megaphone.fm/adchoices
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Mar 23, 2022 • 60min

Ravi Malhotra and Benjamin Isitt, "Able to Lead: Disablement, Radicalism, and the Political Life of E. T. Kingsley" (U British Columbia Press, 2021)

People with disabilities have always struggled to make ends meet. Finding a job you can actually do, a housing situation you can afford that meets your needs, and simply going about the various daily tasks most of us take for granted all compound to make life under capitalism especially challenging. This makes the many disabled people who not only rise to meet their life-circumstances but go beyond them particularly inspiring.One such figure in this category would be E.T. Kingsley, a socialist activist at the turn of the 20th century. After an injury working on railway lines in Montana left him a double-amputee, Kingsley traveled west, first to California and then eventually to British Columbia where he would work as a political speaker, candidate for office, editor and writer in the radical left.His life is the focus of the book under discussion today, Able to Lead: Disablement, Radicalism, and the Political Life of E.T. Kingsley (U British Columbia Press, 2021) coauthored by Ravi Malhotra and Benjamin Isitt. Pooling their combined academic backgrounds and intellectual resources, the authors are able to tease out a number of quiet yet profound elements of Kingsley’s life and times, from the legal status of injuries and workers compensation to discussions around freedom of speech and the changing nature of the security-state. In all this contextual discussion, the authors still never allow Kingsley to disappear as a dynamic and passionate activist, one who managed to stand as a unique example of what it means to tirelessly fight for a better world. Drawing from a number of fields, the book will be of interest to a number of people, from labor historians and disability activists to legal scholars and political theorists, showing us that even as we are flung into circumstances not of our choosing, we can still rise above our circumstances and change the world.Ravi Malhotra is a professor in the Faculty of Law at the University of Ottawa. Benjamin Isitt is a historian and legal scholar based in Victoria, British Columbia. Learn more about your ad choices. Visit megaphone.fm/adchoices
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Feb 25, 2022 • 1h 5min

Piers Gooding, "A New Era for Mental Health Law and Policy: Supported Decision-Making and the UN Convention on the Rights of Persons with Disabilities" (Cambridge UP, 2017)

This book cuts new ground by applying a human rights lens of analysis to domestic mental health laws. It makes a timely contribution into the discourse regarding mental health, supported decision-making and disability rights in the post CRPD era. In A New Era for Mental Health Law and Policy: Supported Decision-Making and the UN Convention on the Rights of Persons with Disabilities (Cambridge University Press, 2017) Research Fellow Dr Piers Gooding challenges law makers to bring domestic laws into compliance with the CRPD. At the same time, Gooding confronts the pragmatic concerns which continue to shape these same laws, such as the case where a person's mental impairment is perceived as a risk to self or others.  I had a great chat with Dr. Gooding in this hour; we spoke about arguments for and against coercive interventions, the right to and meaning of autonomy, tensions between rights based legalism and clinical governance, and more. We spoke about how domestic mental health laws have evolved since the 1980s, and especially since the introduction of the CRPD, and where to go from here. Some of the scholarship mentioned in our conversation included that of Tina Minkowitz, John Fanning, and the collaborative work of Piers himself with Bernadette McSherry, Cath Roper, and Flick Grey.   Dr Piers Gooding is a Research Fellow at the Melbourne Social Equity Institute and Melbourne Law School, and is currently an Open Science Fellow at the Mozilla Foundation. His work focuses on the law and politics of disability and mental health, with a special interest in issues of legal capacity, decision-making, technology, and human rights.Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK Learn more about your ad choices. Visit megaphone.fm/adchoices

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