New Books in Disability Studies

Black people and people with disabilities in the United States are distinctively disadvantaged in their encounters with the health care system. These groups also share harsh histories of medical experimentation, eugenic sterilizations, and health care discrimination. Yet the similarities in inequities experienced by Black people and disabled people and the harms endured by people who are both Black and disabled have been largely unexplored. To fill this gap, Embodied Injustice: Race, Disability, and Health (Cambridge UP, 2022) uses an interdisciplinary approach, weaving health research with social science, critical approaches, and personal stories to portray the devastating effects of health injustice in America.Author Mary Crossley takes stock of the sometimes-vexed relationship between racial justice and disability rights advocates and interrogates how higher disability prevalence among Black Americans reflects unjust social structures. By suggesting reforms to advance health equity for disabled people, Black people, and disabled Black people, this book lays a crucial foundation for intersectional, cross-movement advocacy to advance health justice in America.Rachel Pagones is an acupuncturist, educator, and author based in Cambridge, England. Learn more about your ad choices. Visit megaphone.fm/adchoices

This episode of How To Be Wrong is about humility, beauty and the ways in which our society dictates the nature and boundaries of what is deemed beautiful. We talk with philosophy professor and Pulitzer Prize finalist Chloé Cooper Jones about desirability and the ways in which difference is constrained through our social interactions, as well as her own experience as a disabled person. We also discuss some of the ideas in her superb book, Easy Beauty: A Memoir, published by Simon & Schuster in 2022.John Kaag is Professor and Chair of Philosophy at UMass Lowell and External Professor at the Santa Fe Institute. John W. Traphagan, Ph.D. is Professor and Mitsubishi Heavy Industries Fellow in the Department of Religious Studies at the University of Texas at Austin, where he is also a professor in the Program in Human Dimensions of Organizations. Learn more about your ad choices. Visit megaphone.fm/adchoices

Claudia Garcia crossed the border because her toddler, Natalia, could not hear. Leaving behind everything she knew in Mexico, Claudia recounts the terror of migrating alone with her toddler and the incredible challenges she faced advocating for her daughter's health in the United States. When she arrived in Texas, Claudia discovered that being undocumented would mean more than just an immigration status—it would be a way of living, of mothering, and of being discarded by even those institutions we count on to care.Elizabeth Farfán-Santos spent five years with Claudia. As she listened to Claudia's experiences, she recalled her own mother's story, another life molded by migration, the US-Mexico border, and the quest for a healthy future on either side. Witnessing Claudia's struggles with doctors and teachers, we see how the education and medical systems enforce undocumented status and perpetuate disability. At one point, in the midst of advocating for her daughter, Claudia suddenly finds herself struck by debilitating pain. Claudia is lifted up by her comadres, sent to the doctor, and reminded why she must care for herself.A braided narrative that speaks to the power of stories for creating connection, Undocumented Motherhood: Conversations on Love, Trauma, and Border Crossing (University of Texas Press, 2022) reveals what remains undocumented in the motherhood of Mexican women who find themselves making impossible decisions and multiple sacrifices as they build a future for their families.Elizabeth Farfán-Santos is a medical anthropologist and the author of Black Bodies, Black Rights: The Politics of Quilombolismo in Contemporary Brazil.Reighan Gillam is Associate Professor in the Department of Anthropology at the University of Southern California. She is the author of Visualizing Black Lives: Ownership and Control in Afro-Brazilian Media (University of Illinois Press). Learn more about your ad choices. Visit megaphone.fm/adchoices

Jaipreet Virdi talks about her book Hearing Happiness: Deafness Cures in History with Peoples & Things host Lee Vinsel. The book details the long history of attempts to “fix” deaf people, including a great deal of quackery. Towards the end of the conversation, Virdi and Vinsel also talk about what a world beyond solutionist fantasies that disability can be “cured” would look like. Learn more about your ad choices. Visit megaphone.fm/adchoices

In The Lives of Jessie Sampter: Queer, Disabled, Zionist (Duke UP, 2022), Sarah Imhoff tells the story of an individual full of contradictions. Jessie Sampter (1883-1938) was best known for her Course in Zionism (1915), an American primer for understanding support of a Jewish state in Palestine. In 1919, Sampter packed a trousseau, declared herself "married to Palestine," and immigrated there. Yet Sampter's own life and body hardly matched typical Zionist ideals. Although she identified with Judaism, Sampter took up and experimented with spiritual practices from various religions. While Zionism celebrated the strong and healthy body, she spoke of herself as "crippled" from polio and plagued by sickness her whole life. While Zionism applauded reproductive women's bodies, Sampter never married or bore children; in fact, she wrote of homoerotic longings and had same-sex relationships. By charting how Sampter's life did not neatly line up with her own religious and political ideals, Imhoff highlights the complicated and at times conflicting connections between the body, queerness, disability, religion, and nationalism. Learn more about your ad choices. Visit megaphone.fm/adchoices

Is medical assistance in dying, or MAID letting the government off the hook from providing what they should be providing? Should we respect people's choices on harm reduction grounds, even if those choices are severely constrained by an unjust social and political context? Should we give doctors this power over the mentally ill and disabled, given the racist and ableist nature of our crumbling health care system?Gordon Katic debates this and more, with perspectives from either side. Professor Trudo Lemmens argues that MAID sends a disturbing message: disabled lives aren't worth living. Next, Dr. Derryk Smith (formerly of Dying with Dignity) says just the opposite: excluding certain people from this civil liberty is tantamount to stigmatization.SUPPORT THE SHOWYou can support the show for free by following or subscribing on Spotify, Apple Podcasts, or whichever app you use. This is the best way to help us out and it costs nothing so we’d really appreciate you clicking that button.If you want to do a little more we would love it if you chip in. You can find us on patreon.com/dartsandletters. Patrons get content early, and occasionally there’s bonus material on there too.ABOUT THE SHOWFor a full list of credits, contact information, and more, visit our about page. Learn more about your ad choices. Visit megaphone.fm/adchoices

This book cuts new ground, challenging the assumption of law as an objective concept. It draws out the way that binary frameworks situate and create the notion of the individual in law, delininating responsibilities and rights between concepts such as the state / individual, public / private, care / disability and capacity / incapacity. In The Spaces of Mental Capacity Law: Moving Beyond Binaries (Routledge, 2022) Dr. Beverley Clough draws into question spatial dynamics of law and disability. While she does so through the lens of analysis of the Mental Capacity Act 2005, this liminal work will be cause for broader application in all areas of law which function on "common-sense" understandings of autonomy and law. It will be useful for lawyers, policy makers, practitioners, and any person who wishes to understand the law and the way that it constructs subjectivity. Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK Learn more about your ad choices. Visit megaphone.fm/adchoices

While the loss of sight—whether in early modern Japan or now—may be understood as a disability, blind people in the Tokugawa period (1600–1868) could thrive because of disability. The blind of the era were prominent across a wide range of professions, and through a strong guild structure were able to exert contractual monopolies over certain trades. Blind in Early Modern Japan: Disability, Medicine, and Identity (U Michigan Press, 2022) illustrates the breadth and depth of those occupations, the power and respect that accrued to the guild members, and the lasting legacy of the Tokugawa guilds into the current moment.The book illustrates why disability must be assessed within a particular society’s social, political, and medical context, and also the importance of bringing medical history into conversation with cultural history. A Euro-American-centric disability studies perspective that focuses on disability and oppression, the author contends, risks overlooking the unique situation in a non-Western society like Japan in which disability was constructed to enhance blind people’s power. He explores what it meant to be blind in Japan at that time, and what it says about current frameworks for understanding disability.Glossary of foreign words/names: Zatōichi (a blind fictional hero) Kyokutei Bakin (a writer/author) Heike (a genre)  Biwa (a musical instrument) Koto< (a musical instrument)  Shamisen (a musical instrument) Ogino Chiichi (a blind musician) Jingyi Li is a PhD Candidate in Japanese History at the University of Arizona. She researches about early modern Japan, literati, and commercial publishing. Learn more about your ad choices. Visit megaphone.fm/adchoices

In queer culture, silence has been equated with voicelessness, complicity, and even death. Queer Silence: On Disability and Rhetorical Absence (U Minnesota Press, 2022) insists, however, that silence can be a generative and empowering mode of survival. Triangulating insights from queer studies, disability studies, and rhetorical studies, J. Logan Smilges explores what silence can mean for people whose bodyminds signify more powerfully than their words.Queer Silence begins by historicizing silence’s negative reputation, beginning with the ways homophile activists rejected medical models pathologizing homosexuality as a disability, resulting in the silencing of disability itself. This silencing was redoubled by HIV/AIDS activism’s demand for “out, loud, and proud” rhetorical activities that saw silence as capitulation.Reading a range of cultural artifacts whose relative silence has failed to attract queer attachment, from anonymous profiles on Grindr to ex-gays to belated gender transitions to disability performance art, Dr. Smilges argues for silence’s critical role in serving the needs of queers who are never named as such. Queer Silence urges queer activists and queer studies scholars to reconcile with their own ableism by acknowledging the liberatory potential of silence, a mode of engagement that disattached queers use every day for resistance, sociality, and survival.J. Logan Smilges is Assistant Professor of English Language and Literatures at the University of British Columbia.Sohini Chatterjee is a PhD Candidate in Gender, Sexuality, and Women's Studies at Western University, Canada. Her work has recently appeared in Women's Studies: An inter-disciplinary journal, South Asian Popular Culture and Fat Studies. Learn more about your ad choices. Visit megaphone.fm/adchoices

In Disability in Contemporary China: Citizenship, Identity and Culture (Cambridge UP, 2022), Sarah Dauncey offers the first comprehensive exploration of disability and citizenship in Chinese society and culture from 1949 to the present. Through the analysis of a wide variety of Chinese sources, from film and documentary to literature and life writing, media and state documents, she sheds important new light on the ways in which disability and disabled identities have been represented and negotiated over this time. She exposes the standards against which disabled people have been held as the Chinese state has grappled with expectations of what makes the 'ideal' Chinese citizen. From this, she proposes an exciting new theoretical framework for understanding disabled citizenship in different societies - 'para-citizenship'. A far more dynamic relationship of identity and belonging than previously imagined, her new reading synthesises the often troubling contradictions of citizenship for disabled people - the perils of bodily and mental difference and the potential for personal and group empowerment.Professor Sarah Dauncey is a China specialist with 30 years' experience in visiting and studying China. She joined the School of Sociology and Social Policy in 2016 at the University of Nottingham, having previously served as Deputy Head and Director of Teaching at the School of Contemporary Chinese Studies.Shu Wan is currently matriculated as a doctoral student in history at the University at Buffalo. As a digital and disability historian, he serves in the editorial team of Digital Humanities Quarterly and Nursing Clio. Learn more about your ad choices. Visit megaphone.fm/adchoices