Autistic adults discuss their 'hidden histories' and the challenges of growing up undiagnosed. They share their struggles with fitting in, reading social situations, and not knowing how to interact with others. The chapter also highlights the strengths and special interests of autistic adults, challenging stereotypes. They discuss self-awareness, identity, and the importance of funding and support for autistic individuals.
The cultural understanding of autism has evolved, allowing more individuals who don't fit the traditional stereotype to recognize and understand their own autistic identity.
Obtaining a diagnosis as an adult has been life-changing for many undiagnosed individuals, providing an explanation for their experiences and a sense of self-acceptance.
Deep dives
Growing Cultural Understanding of Autism
Over the past few decades, our cultural understanding of autism has evolved dramatically. Initially, autism was predominantly associated with males, and the popular conception of autism was limited to non-speaking autistic boys with intellectual difficulties. However, as awareness has grown, more individuals who do not fit this traditional stereotype have come forward with their own experiences of autism. This shift in understanding has allowed many undiagnosed individuals to finally recognize and understand their own autistic identity.
Late Diagnosed Autistic People
Many autistic individuals, particularly those from older generations, went undiagnosed during their childhood and into adulthood. Their experiences of feeling different, struggling with social interactions, and constantly trying to fit in without understanding why they didn't quite fit the norm left them with a sense of not truly knowing themselves. However, as adults, obtaining a diagnosis has been life-changing, providing a long-awaited explanation for their experiences and a sense of self-acceptance.
The Importance of Diagnosing Adults
Diagnosing autism in adults presents numerous challenges, including limited awareness among general practitioners, lengthy waiting lists for specialists, and the financial costs associated with the diagnosis process. The Hidden Histories research project emphasizes the significance of timely and accessible diagnostic services. Understanding the impact of autism on physical and mental health, providing appropriate support, and allowing individuals to embrace their autistic identity earlier in life can greatly enhance their overall well-being.
Over the past two decades, our cultural understanding of autism and what it means to be autistic has grown - though we have a long way to go. But there are entire generations of people who grew up when the popular conception of autism was a far cry from how it’s now understood.
It meant a whole host of people who grew up feeling like they didn’t fit in, but never quite knowing why.
They were autistic, but undiagnosed. And when a diagnosis did come as an adult – it was often revelatory and life-changing.
On All in the Mind this week, 'hidden histories’ of late-diagnosed autistic adults.
First broadcast 8 August 2021.
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