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ACR Journals On Air
Kids Get Lupus Too
Sep 19, 2023
Dr. Joyce Chang, recipient of the Lupus Foundation of America’s 'Mary Betty Stevens Young Investigator Award', discusses her study on improving outcomes of pediatric lupus care. Topics include using the pediatric Lupus Care Index and population management strategies, developing a multidisciplinary care model, challenges in obtaining clear information about print-as-own tapers, and managing time and focusing efforts in a rheumatology career.
27:51
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Quick takeaways
- The use of the Pediatric Lupus Care Index (PLCI) and population management strategies can improve outcomes in childhood SLE by benchmarking care processes and integrating them into electronic health records.
- Implementing a multidisciplinary care model that engages various stakeholders can address gaps in pediatric lupus care and improve timely follow-up for patients.
Deep dives
Composite Index of Pediatric Lupus Care Metrics: The PLCI
The Pediatric Lupus Care Index (PLCI) was developed as a composite index to benchmark the quality of care for pediatric lupus patients. It includes care processes related to routine assessment of disease control, minimizing disease and treatment-related comorbidity, and population management. The goal of publishing the manuscript was to showcase that measurement of care processes and care quality can be automated and integrated into electronic health records, making adoption more feasible for the pediatric community.
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