Patient-Centered Solutions: Navigating challenges & unlocking value through patient engagement
Nov 2, 2023
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Sharon Winton, CEO of Lymphoma Australia and a passionate patient advocate, joins forces with industry leader Liz de Somer to dive into patient engagement. They discuss the urgent need for collaboration across healthcare, especially post-COVID-19. The conversation highlights how advancements in treatment options are empowering patients, while also addressing the complexities of engagement in the Australian pharmaceutical landscape. Winton emphasizes the importance of early patient involvement in clinical trials, ensuring patient values are at the forefront of care.
Achieving true patient centricity requires a collaborative effort among all healthcare stakeholders, considering patients' needs and systemic challenges.
Increased patient awareness post-COVID-19 has elevated engagement, pushing healthcare systems to prioritize equitable access to innovative treatments.
Deep dives
Defining Patient Centricity
The concept of patient centricity is often represented by a graphic placing the patient at the center, surrounded by various healthcare elements. However, this representation is seen as aspirational rather than fully realized. True patient centricity encompasses not only the patient's preferences and needs but also the complex web of healthcare systems, including healthcare providers, treatment plans, and financial considerations. Achieving a genuinely patient-centric environment necessitates extensive collaboration among all stakeholders in the healthcare system.
The Impact of COVID-19 on Patient Engagement
The COVID-19 pandemic has significantly heightened patient awareness and engagement in their own healthcare. As a result of increased communication, patients, caregivers, and the community have become more informed about available treatments and technologies. The emphasis on equitable access to innovative treatments has arisen from this new awareness, putting pressure on healthcare systems to provide access to the latest advancements. This shift reflects a move away from a passive patient role to one where patients actively seek better treatment options for their conditions.
Collaboration Between Industry and Patient Advocacy
Collaboration between the pharmaceutical industry and patient advocacy organizations is essential for ensuring patient-centric practices in healthcare. The industry must prioritize understanding patient needs and incorporating their perspectives into clinical trial designs and treatment outcomes. This includes gathering insights from patients about what matters most to them, and adapting clinical development processes accordingly. Additionally, improving methods for measuring patient-relevant outcomes will enhance the industry's ability to advocate for access to new treatments that align with patient values.
MAPS speaks with Liz de Somer, CEO of Medicines Australia and Sharon Winton, CEO of Lymphoma Australia to explore patient engagement from the perspectives of industry and patient associations. Liz and Sharon are also speaking about this topic at the MAPA/MAPS Medical Affairs Summit in Sydney, AU, Nov 8-10, 2023.
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