

Listener Week: MND and women, Not being a granny, Studying later in life
Aug 6, 2025
Diana Keys, recently diagnosed with Motor Neurone Disease, shares her impactful journey and highlights the lack of female representation in MND narratives. Dame Pamela Shaw, a leading MND researcher, discusses critical advancements in treatment. Sally Ruffles opens up about defying societal expectations around grandparenthood. Jo Bell, a former Canal Laureate, reflects on her life on a narrowboat, embracing a unique lifestyle. Join these voices as they navigate challenges, redefine roles, and celebrate diverse experiences.
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Woman's Personal MND Journey
- Diana Keys shared her personal experience being diagnosed with MND in May 2023 after struggling with symptoms for 18 months.
- She expressed the loss of her caregiving purpose and how connecting with other women with MND helped her cope.
Gender Gap in MND Awareness
- MND is about 1.5 times more common in men than women, explaining why male faces dominate media coverage.
- Prominent male figures with MND are often elite sportsmen or famous intellectuals, making them media-attractive spokespeople.
Challenges of No Grandchildren
- Sally Ruffles discussed societal expectations around becoming a grandparent and the awkwardness she experiences due to having no grandchildren.
- She highlighted the silence in conversations when people learn her daughter chooses not to have children.