Hypermobility Spectrum Disorders with Dr. Linda Bluestein
Oct 14, 2022
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Dr. Linda Bluestein discusses hypermobility spectrum disorders, including Ehlers-Danlos Syndrome, education and empowerment for individuals with these disorders, potential relationship between endometriosis and connective tissue disorders, role of mast cells in pain sensitivity, recommendations for physical activity, surgeons' different approaches to surgery, importance of stability, and joint-friendly movement for long-term mobility.
Hypermobility syndromes have different phases including the fun phase, mystery phase, pain phase, and optimization phase.
Prioritizing joint stability and proper alignment can reduce the risk of injury in individuals with hypermobility syndromes.
Optimizing health for individuals with hypermobility syndromes involves a comprehensive approach including movement, nutrition, sleep, and personalized care plans.
Deep dives
Understanding Hypermobility Syndromes and Connective Tissue Disorders
Hypermobility syndromes and connective tissue disorders can cause various symptoms and challenges for individuals. These conditions can lead to joint instability and increased range of motion. It is important to be aware of the different phases individuals may experience, including the fun phase where hypermobility is celebrated, the mystery phase where symptoms begin to arise, the pain phase where chronic pain may develop, and the optimization phase where individuals can focus on optimizing their health. Optimizing health may involve modifying activities to avoid injury, working with healthcare professionals, and focusing on muscle strength, nutrition, and quality sleep. By taking proactive steps and working with experts in the field, individuals with hypermobility syndromes can have improved outcomes and live well for decades.
The Role of Joint Instability and the Importance of Slow and Controlled Movements
Joint instability is a key aspect of hypermobility syndromes and connective tissue disorders. It is important to prioritize joint stability and proper alignment when engaging in physical activities. Slow and controlled movements can provide better feedback and reduce the risk of injury. Weight-bearing exercises and closed-chain exercises are beneficial for joint stability. Carefully considering modifications and avoiding overuse can also help prevent injuries.
Taking a Holistic Approach to Health and Well-being
Optimizing health for individuals with hypermobility syndromes involves a comprehensive approach. This includes movement, education, nutrition, sleep, psychosocial support, medications, and supplements. It is essential to work with healthcare professionals who understand and specialize in these conditions to create personalized care plans. Building muscle strength, maintaining optimal nutrition, and prioritizing quality sleep are key components of overall well-being.
Knowing the Phases and Seeking Early Intervention
Understanding the different phases individuals may experience with hypermobility syndromes is crucial. Recognizing the fun phase, where hypermobility is celebrated, the mystery phase, where symptoms arise, the pain phase, where chronic pain can develop, and the optimization phase, where individuals work to improve their overall health, helps individuals take appropriate action. Seeking early intervention, modifying activities, and making informed choices can lead to better long-term outcomes.
Finding Hope and Empowerment Through Education
While hypermobility syndromes and connective tissue disorders present challenges, it is important to remember that there is hope and empowerment in understanding and managing these conditions. Education plays a critical role in enabling individuals to make informed choices about their health and well-being. By gaining knowledge, working with healthcare professionals, and taking proactive steps, individuals with hypermobility syndromes can lead fulfilling lives and avoid unnecessary pain and injury.
“Being bendy” often starts as a party trick where you impress your friends with how flexible you are and they applaud your ability to put your foot behind your head. But hypermobility and the conditions associated are not only poorly understood within the standard healthcare system, they are also potentially very dangerous to those who live with them.
In this episode, Dr. Linda Bluestein of Hypermobility MD speaks with Lara about the full hypermobility spectrum disorders including Marfan Syndrome, Loeys-Dietz syndrome, and the most common, the Ehlers-Danlos syndromes, or EDS. Listen in to hear all about Dr. Bluestein’s journey with EDS, her thoughts on surgeries, and her approach to movement within the world of hypermobility.
In this episode, you’ll learn:
* How to spot hypermobility and potential serious conditions related
* The phases of hypermobility
* How you should adjust your workouts and activities for safer movement with these types of connective tissue disorders
