Respectful Parenting: Janet Lansbury Unruffled It Had to Be You - The Struggles and Joys of Raising a Child with Disabilities (with Loryn Brantz)
Dec 1, 2021
AI Snips
Chapters
Transcript
Episode notes
Newborn Feeding Crisis Sparks Diagnosis Hunt
- Loryn Brantz recounts her newborn daughter Dalia's early feeding struggles and frantic search for answers.
- She describes rocking Dalia around the clock and hiring night nurses before genetic testing revealed a rare condition.
Discovering A Rare Genetic Diagnosis
- At three and a half months geneticists identified Dalia's Tetrasomy 14 mosaicism, a diagnosis with only ~50 known cases.
- Loryn and her husband dove into medical journals and community searches to understand the rare condition.
Diagnosis As A Descriptor, Not A Destiny
- Loryn sees diagnoses as neutral descriptors rather than limiting labels, shaped by her family's history with medical conditions.
- She prioritizes Dalia's happiness and celebrates every milestone regardless of typical expectations.