

Living with long Covid when the world has moved on
Mar 25, 2025
Explore the emotional and physical toll of long Covid through personal stories. Hear about James’s challenges with chronic symptoms and sensory overload, highlighting the search for diagnosis and treatment. The podcast dives into resilience, as couples adapt their communication and share intimate moments despite adversity. Caregivers face significant emotional and financial strains while navigating private healthcare costs. Discover the struggles for acknowledgment from government support and the hope for recovery through specialized care and community.
AI Snips
Chapters
Transcript
Episode notes
James's Long COVID Experience
- James, Emma's partner, has long COVID and is bedbound due to light and noise sensitivity.
- He communicates using ten words or less and has learned braille despite vision impairment.
James's Deterioration
- James caught COVID in April 2022, initially experiencing flu-like symptoms.
- Months later, his condition worsened, leading to light sensitivity, limited conversation, and eventual bed confinement.
James's Diagnoses
- James has been diagnosed with ME and Lyme disease, possibly reactivated by COVID.
- Many ME patients also receive Lyme disease diagnoses.