Researchers discuss a study on self-management interventions for systemic sclerosis patients to improve fatigue. Topics include resilience-building energy management program, peer mentorship, coaching training, participant randomization, remote recruitment, outcomes of peer health coaching, and plans for program expansion.
Resilience-building energy management program reduces fatigue in SSc patients, especially for those newly diagnosed.
Renew Program emphasizes self-management, setting realistic goals, and online support to enhance well-being in scleroderma patients.
Deep dives
Resilience Building Energy Management Program for Systemic Sclerosis
The Effects of a Resilience Building Energy Management Program on Fatigue and Other Symptoms in Systemic Sclerosis were discussed. Dr. Susan Murphy and Ms. Mary Allure, two authors of the manuscript, highlighted the importance of the program for managing chronic conditions like scleroderma. The program aimed to help individuals increase confidence in managing their symptoms and self-manage effectively. By providing online accessibility and support in areas such as exercise, relaxation, and healthy eating, the program sought to enhance overall well-being and resilience.
Designing the Renew Program
The Renew Program was developed as a team approach focused on self-management and enhancing individuals' ability to manage their symptoms effectively. The program emphasized empowering participants to take control of their health and well-being by setting realistic goals and fostering a sense of accountability. Through online accessibility and regular health coaching sessions, participants were guided in areas such as pacing, relaxation, and healthy lifestyle habits to optimize their symptom management and overall quality of life.
Results and Efficacy of the Renew Program
The Renew Program demonstrated positive outcomes, including a clinically meaningful reduction in fatigue, improved pain interference, mood, and increased resilience among participants. The study also revealed that individuals in the earlier stages of scleroderma experienced the most improvement in symptoms, indicating the program's efficacy in managing chronic conditions. The collaborative approach and tailored health coaching sessions contributed significantly to enhancing participants' overall well-being and quality of life.
Partnership and Future Research
The collaborative partnership between Dr. Susan Murphy and Ms. Mary Allure exemplified the impact of patient-oriented research in developing effective interventions for chronic conditions like scleroderma. The unique perspective and expertise brought by patient partners contributed to the success of the program and highlighted the importance of incorporating patient insights in clinical research. Future plans include expanding the Renew Program through partnerships with advocacy organizations to provide accessible support and interventions for individuals living with scleroderma worldwide.
Systemic Sclerosis (SSc) is a painful and debilitating disease that our patients suffer from. However, a newly published study has concluded that there are some self-management interventions patients can engage with that have shown to improve fatigue, particularly for those newly diagnosed with SSc. Today, we review the procedures, interventions, results and conclusions of this study, titled: Effects of a Resilience-Building Energy Management Program on Fatigue and Other Symptoms in Systemic Sclerosis: A Randomized Controlled Trial, along with two of its authors, Dr. Susan L Murphy and Ms. Mary Alore, and how your patients can benefit from its lessons.
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