Life Changing A White Christmas for Annabelle
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Jan 15, 2025 In this episode, Lisa Hover shares her family's poignant journey as her daughter Annabelle bravely faces Batten disease. Lisa recounts the devastating moment of diagnosis and how it led to Annabelle's inspiring charity, Batten Fighters Forever. Their story is one of resilience, featuring Annabelle's determination to experience life fully, from skiing to pursuing Girl Guiding. Lisa highlights the family's emotional highs and lows, including the cherished dream of a White Christmas, capturing the essence of hope and love in adversity.
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Annabelle's Early Challenges
- Annabelle's early sight loss due to macular degeneration was initially thought to limit her life drastically.
- Despite this, she learned Braille quickly, went skiing with a one-on-one instructor, and embraced life's challenges.
Annabelle's Achievements
- By age 10, Annabelle was registered blind but continued to thrive.
- She excelled in Girl Guiding, going on expeditions, camping trips, and even high ropes courses.
Diagnosis
- After a routine blood test and some concerning Google searches, Lisa and Andy suspected Annabelle might have Batten disease.
- A follow-up appointment at Moorfields confirmed their fears, delivering the devastating news.