Life Changing
A White Christmas for Annabelle
Jan 15, 2025
In this episode, Lisa Hover shares her family's poignant journey as her daughter Annabelle bravely faces Batten disease. Lisa recounts the devastating moment of diagnosis and how it led to Annabelle's inspiring charity, Batten Fighters Forever. Their story is one of resilience, featuring Annabelle's determination to experience life fully, from skiing to pursuing Girl Guiding. Lisa highlights the family's emotional highs and lows, including the cherished dream of a White Christmas, capturing the essence of hope and love in adversity.
29:00
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Quick takeaways
- Annabelle's diagnosis of Batten disease transformed her family's outlook on life, motivating them to advocate for awareness and support for others affected by the condition.
- Despite her deteriorating health, Annabelle embraced life fully by engaging in various activities and creating cherished memories with her family, including a memorable last Christmas.
Deep dives
Annabelle's Journey with Macular Degeneration
Annabelle was diagnosed with macular degeneration at a young age, which led to her losing her eyesight by the age of ten. Initially, the diagnosis was surprising for her family as it is typically associated with older adults. Annabelle showed remarkable resilience throughout her challenges; despite her progressive blindness, she not only excelled academically but also adapted by learning braille quickly. Her determination shone through as she engaged in various activities such as skiing and girl guiding, showcasing her positive attitude and ability to overcome obstacles.
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