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14min chapter
A White Christmas for Annabelle
Life Changing
Resilience in Darkness: Annabelle's Journey
This chapter follows the inspiring story of Annabelle, a young girl confronting the challenges of macular degeneration and later, CLN3 juvenile Batten disease. Through her determination and familial support, Annabelle learns to adapt, excel in braille, and pursue enriching activities such as skiing. The narrative explores the emotional complexities faced by her family as they navigate diagnosis, adaptation, and ultimately, advocacy for change and awareness regarding Batten disease.
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Discover
highlights
Listen to the best highlights from the podcasts you love and dive into the full episode