This podcast explores the 'hidden histories' of late-diagnosed autistic adults, discussing their challenges, struggles with social engagement, and lack of awareness during their upbringing. It highlights the challenges of obtaining a diagnosis, the resilience and strength of autistic adults, and the importance of early support and funding to improve their well-being.
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Quick takeaways
Late diagnosis of autism can be revelatory and life-changing for individuals who grew up feeling like they didn’t fit in.
Autistic adults need accessible diagnostic services, support, and connections with others who share similar experiences.
Deep dives
Growing up with outdated conceptions of autism
The podcast explores the experiences of individuals who grew up with outdated conceptions of autism. In the past, autism was primarily associated with males and the popular representation was based on the character in the movie 'Rain Man'. Many individuals who were actually autistic went undiagnosed, leading to feelings of not fitting in and struggling to understand why. Later diagnosis as adults proved to be life-changing, providing a sense of self-understanding and acceptance.
Challenges in receiving a late diagnosis
Many of the interviewees shared their challenges in receiving a late autism diagnosis. Lack of awareness among healthcare professionals, particularly in the cases of women, led to misdiagnosis or lengthy waiting times for proper evaluation. The cost of diagnosis also posed a barrier for some individuals. Late diagnosis often came after years of experiencing trauma, struggling to meet societal expectations, and feeling ashamed for being different. The diagnosis brought relief, allowing individuals to shed societal expectations and rediscover their true selves.
The importance of support and understanding
The podcast highlights the importance of support and understanding for autistic adults. The research project discussed in the episode aimed to explore what makes life easier, more fulfilling, and enjoyable for late-diagnosed autistic individuals. The presence of autistic researchers in the team brought authenticity and credibility to the research. Autistic participants expressed the need for accessible diagnostic services and support, as well as the importance of connecting with others who share similar experiences. The podcast also emphasized the higher prevalence of chronic and acute illnesses among autistic individuals, calling for increased focus on healthcare support for this population.
Over the past two decades, our cultural understanding of autism and what it means to be autistic has grown - though we have a long way to go. But there are entire generations of people who grew up when the popular conception of autism was a far cry from how it’s now understood.
It meant a whole host of people who grew up feeling like they didn’t fit in, but never quite knowing why.
They were autistic, but undiagnosed. And when a diagnosis did come as an adult – it was often revelatory and life-changing.
On All in the Mind this week, 'hidden histories’ of late-diagnosed autistic adults.
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