

1005: David Fajgenbaum | Leveraging AI to Cure Rare Diseases
Jun 18, 2024
David Fajgenbaum, author of 'Chasing My Cure' and founder of Every Cure, shares his compelling journey fighting Castleman disease and how he turned his experiences into a mission to help others. He discusses the inefficiencies in the healthcare system that hinder the discovery of treatments for rare diseases. Fajgenbaum explains how AI can be leveraged to match existing FDA-approved drugs with rare conditions, providing hope for patients. His innovative nonprofit aims to revolutionize drug repurposing, making a significant impact in the world of rare disease research.
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Sudden Illness
- David Fajgenbaum, a third-year medical student, experienced sudden organ failure.
- He was hospitalized, received last rites, and faced a grim prognosis.
ER Visit
- Fajgenbaum delivered his first baby while experiencing severe fatigue.
- After taking a medical exam, he went to the ER; his organs were shutting down.
Uncertainty of Diagnosis
- While doctors knew Fajgenbaum's organs were failing, they couldn't diagnose him.
- Uncertainty added to the already immense physical and emotional burden.