Trust Their Gut: Family Level of Concern and Clinical Changes in Children with Medical Complexity

In this Complex Care Journal Club podcast episode, Dr. Nancy Murphy discusses the piloting of a home monitoring application for families of children with medical complexity and the associations between the level of parental concern and clinical status changes identified in secondary data analysis. She describes the key role families played in guiding the study, implications for clinical practice, and next steps from this work. SPEAKERS Nancy Murphy, MD Professor of Pediatrics and Chief, Division of Pediatric Complex Care Department of Pediatrics, University of Utah School of Medicine HOST Emily Goodwin, MD General Academic Pediatrics/Beacon Program Children’s Mercy Kansas City Broadway Associate Director of Medical Student Education Clinical Assistant Professor of Pediatrics University of Missouri Kansas City School of Medicine Clinical Assistant Professor of Pediatrics Kansas University Medical Center DATES Initial publication: June 28, 2023. CITATION Murphy N, Goodwin E. Trust Their Gut: Family Level of Concern and Clinical Changes in Children with Medical Complexity. 06/2023. OPENPediatrics. Online Podcast. Links: https://youtu.be/4RJAzlOnDo0, https://soundcloud.com/openpediatrics/trust-their-gut-family-level-of-concern-and-clinical-changes-in-children-with-medical-complexity. ARTICLES REFERENCED Nkoy F, Stone B, Sheng X, Murphy N. High Parental Concern in Children With Medical Complexity: An Early Indicator of Illness. Hosp Pediatr. 2023;13(3):250-257. doi:10.1542/hpeds.2022-006876 TRANSCRIPT https://op-docebo-images.s3.amazonaws.com/Transcripts/Trust+Their+Gut+-+Family+Level+of+Concern+and+Clinical+Changes+in+Children+with+Medical+Complexity_Murphy_062023.pdf Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6 Please visit: www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access and thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu