OPENPediatrics Telling Their Stories: Discrimination at the Doctor for Children with Disabilities
Sep 6, 2023
21:33
In this Complex Care Journal Club podcast episode, Dr. Stefanie Ames discusses a qualitative study that explores family experiences of discrimination in health care for children with medical complexity and disability. She describes the value of partnering with people with lived experience in research, implications for clinical practice, and important next steps from this work.
SPEAKER
Stefanie Ames, MD, MS
Assistant Professor, Division of Critical Care
Department of Pediatrics, University of Utah School of Medicine
HOST
Kristina Malik, MD
Assistant Professor of Pediatrics
University of Colorado School of Medicine
Medical Director, KidStreet
Pediatrician, Special Care Clinic,
Children's Hospital Colorado
DATES
Initial publication: September 6, 2023
CITATION
Ames SG, Malik K. Telling their Stories: Discrimination at the Doctor for Children with Disabilities. 09/2023. OPENPediatrics. Online Podcast. Links: https://youtu.be/xkoS0qhCtiE, https://soundcloud.com/openpediatrics/telling-their-stories-discrimination-at-the-doctor-for-children-with-disabilities.
JOURNAL ARTICLE REFERENCED
Ames SG, Delaney RK, Houtrow AJ, et al. Perceived Disability-Based Discrimination in Health Care for Children With Medical Complexity. Pediatrics. 2023;152(1):e2022060975. doi:10.1542/peds.2022-060975
OTHER ARTICLES REFERENCED
Cook S, Mauskar S, Berry JG. Discriminating Against Children With Medical Complexity. Pediatrics. 2023 Jul 1;152(1):e2023061604. doi: 10.1542/peds.2023-061604. PMID: 37357723.
Marshall W. Improving care for CMC is also a systems issue. [Comment on the article ""Perceived Disability-Based Discrimination in Health Care for Children With Medical Complexity""]. Pediatrics July 2023.
TRANSCRIPT
https://op-docebo-images.s3.amazonaws.com/Transcripts/Discrimination+at+the+Doctor_Ames_090623.pdf
Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6
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