Jordan Lambropoulos is now thriving after fighting for her life just 3 months ago
Aug 22, 2023
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Jordan Lambropoulos, surviving Crohn's disease and living with an ostomy bag, shares her journey of a life-threatening stem cell transplant, life with an ostomy bag, and her feelings around dating. The hosts commend her raw and honest content on TikTok and discuss the process and purpose of a stem cell transplant for autoimmune diseases.
Jordy bravely shared her emotional journey of undergoing a life-saving stem cell transplant and filming a goodbye video for her family.
Jordy's openness about living with an ostomy bag challenges societal perceptions and empowers others with chronic conditions.
Deep dives
Introduction and Background
In this podcast episode, the hosts introduce Jordan Lambroppelis, a TikTok influencer known for her raw and honest content about her life with Crohn's disease. They praise Jordi for her ability to balance sharing the difficult moments of her journey while still showcasing her efforts to maintain a normal life. The hosts express their excitement to have Jordi on the podcast and highlight the importance of her story in providing inspiration and understanding for others facing similar challenges.
Jordi's Experience with Crohn's Disease
Jordi explains that Crohn's disease is an inflammatory bowel disease that causes the immune system to attack the digestive system. She shares that she has a severe case of Crohn's disease, which is unresponsive to traditional treatments. As a result, she experiences constant pain and daily bowel obstructions. Jordi mentions that she underwent a stem cell transplant as a last resort to preserve her small intestine, which was progressively being damaged. She describes the transplant process, its goal of resetting the immune system, and her hopes for achieving long-term remission.
Jordi's Emotional Journey and Perspective
Jordi reflects on the emotional aspects of her journey, including her fear for her life and the difficult decision-making process she went through. She shares that during her lowest point, she recorded a goodbye video for her family, determined to ensure they knew they were loved. She also discusses the challenges of dating with a colostomy bag and the stigma surrounding it. However, she remains confident in her own attractiveness and acknowledges the importance of being open about her condition to ease conversations and filter out potential partners who cannot accept her for who she is.
Jordi's Impact and Advocacy
The hosts commend Jordi for her openness in sharing her journey, raising awareness, and being the person she needed when she was diagnosed at a young age. They emphasize the positive influence she has on others facing similar circumstances. Jordi acknowledges that her transparency can at times become repetitive or tiring, but she finds purpose in helping others and being a source of support and inspiration. She hopes to empower young individuals dealing with chronic conditions and reshape societal perceptions of ostomies and life with illnesses.
You may have come across Jordy on Tiktok (@itsjordysworld) where she very openly shares the details of her life with a chronic illness and living with an ostomy bag.
At age 9, Jordy was diagnosed with a rare case of Crohn's disease - an incurable chronic inflammatory bowel condition where her body attacks her own digestive system. Only a few months ago, she was fighting for her life in the process of a stem cell transplant, but after a successful surgery (and the first of its kind in Australia) she is now thriving and things are looking up for the 25 year old.
In today’s KICPOD episode, Jordy so eloquently shares her journey of what led her to the transplant, how it felt thinking her time was up, and what it was like filming a goodbye video for her family. She also explains what life is like with an ostomy bag, how she is confident to be 100% herself on social media, and her feelings around the prospects of dating.