Challenges in Patient Identification for Rare Diseases

Identifying and segmenting patients with rare or niche conditions poses significant challenges for commercial leaders in healthcare. Traditional raw claims data often falls short in accurately defining these smaller patient populations, making it difficult to find individuals actively diagnosed with specific diseases such as certain types of cancers. The process typically involves navigating multiple data sources to gather insights, often hampered by incomplete datasets from labs and healthcare providers that do not comprehensively cover the entire population. Such limitations create obstacles in ensuring effective therapeutic interventions for patients who stand to benefit the most from specialized care.