Science Weekly Can science crack the mystery of ME?
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Aug 21, 2025 Discover the groundbreaking genetic research linking genes to myalgic encephalomyelitis (ME/CFS), shedding light on this often-misunderstood illness. Personal testimonies reveal the emotional struggles and urgent need for recognition of ME/CFS. Dive into the promising findings on treatment options targeting neuroinflammation and immune disruptions. Learn about the complexities of symptom progression and the vital connection between research and patient experiences, opening new doors for understanding and management.
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From Athlete To Bedbound
- Nicky Proctor was an active mum and athlete who gradually lost energy and became mostly bedbound.
- She spent two years resting before slowly regaining basic abilities and later joined Decode ME to give DNA for research.
Genetic Signals Emerge
- Decode ME identified eight genomic regions that differ between people with and without ME-CFS.
- These regions point to genes linked to immune function, the nervous system and chronic pain, showing genetic vulnerability.
Family Impact And Hope
- Nicky's daughter also has ME and the illness has deeply impacted their family life.
- She described Decode ME as validating and bringing hope for future answers and support.