“Radical Rethink” Needed in NHS on Autism and ADHD
Apr 4, 2024
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Emma Tracey, Thea Stein, and Ellie Middleton discuss the alarming rise in autism and ADHD cases, long NHS waiting lists, and the need for better support. The podcast also covers US support for Israel amid the Gaza conflict and arms sales evaluation challenges faced by the UK government.
Increasing awareness and diagnosis of ADHD and autism highlight the need for improved support systems.
Outdated diagnostic criteria and long waiting lists in the NHS underscore the necessity for cultural and policy changes.
Deep dives
Growing Waiting List for Autism and ADHD Diagnoses in the NHS in England
There is a significant increase in the waiting list for autism and ADHD assessments in the NHS in England. In December 2023, there were 172,022 open referrals, a fivefold increase since 2019. The waiting times have also extended, with most individuals waiting over nine months, well exceeding the target of 13 weeks. The data shows a 51% rise in prescriptions for ADHD medication between 2019-2020 and 2022-2023, particularly among young adults aged 30-34. The increase in diagnoses reflects a growing awareness and the challenges faced by individuals without timely support.
Personal Journey with ADHD and Autism Diagnosis and Treatment
Individuals like Ellie Middleton share their experience of receiving diagnoses for ADHD and autism later in life, indicating missed opportunities for support in childhood. Ellie's journey involved private diagnosis for ADHD, highlighting the need for a formal diagnosis to access essential support and medication. The impact of receiving a diagnosis led to transformative changes in Ellie's life, from struggling with academics and mental health to pursuing writing, work she loves, and overall improved self-support systems. The journey underscores the importance of understanding one's neurodivergence for effective self-care and support.
Challenges and Theories Surrounding Diagnosis of Autism and ADHD
Challenges exist in the diagnostic process for autism and ADHD, with historical criteria geared towards younger white boys, presenting limitations for adult diagnosis. Ellie discusses the identification of nuances in diagnostic questions, influenced by personal experiences and shared narratives on platforms like TikTok. The lack of nuanced criteria and broader understanding of neurodiversity hinder timely diagnoses, especially for individuals like Ellie, who did not fit traditional diagnostic profiles. This highlights the necessity for updated diagnostic approaches that consider diverse experiences.
Policy and Systematic Changes for Improved Autism and ADHD Support
Long waiting lists for autism and ADHD assessments reveal systemic inadequacies in the NHS to meet the increasing demand for neurodivergence assessments. Calls for policy changes emphasize the need for broader cultural shifts beyond the NHS, encompassing education and workplaces to accommodate neurodiverse individuals. Transforming diagnostic criteria to represent diverse demographics and updating training programs for teachers and healthcare providers can enhance support for neurodivergent individuals. The shift towards inclusive practices and comprehensive support systems aims to foster greater understanding and empowerment for those with autism and ADHD.
Today, we look at a new report which says the NHS cannot meet “avalanche” of demand for autism and ADHD services.
Why has there been a five-fold rise in people waiting to see an autism specialist? Why has there been a 51% increase in prescriptions for ADHD medication? Adam is joined by Access All presenter, Emma Tracey, Chief Executive of the Nuffield Trust, Thea Stein and autistic and ADHD creator, writer and consultant, Ellie Middleton.
And US President Joe Biden tells Israeli Prime Minister Benjamin Netanyahu that US support for Israel depends on 'steps to address civilian harm and suffering' after seven aid workers were killed in Gaza. But what more pressure are the US and UK willing, and able, to put on Israel? BBC US special correspondent, Katty Kay and diplomatic correspondent, James Landale, bring us up to date.
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Newscast brings you daily analysis of the latest political news stories from the BBC. It was presented by Adam Fleming. It was made by Jack Maclaren with Gemma Roper and Joe Wilkinson. The technical producer was Michael Regaard. The assistant editor is Chris Gray. The senior news editor is Sam Bonham.
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