Asher and Cam discuss the challenges of seeking understanding and support in a world quick to judge ADHD. They address media misrepresentation, the lived experience gap, and the importance of self-advocacy. They also explore disclosing ADHD at work and compare advocating for oneself to being an activist.
Advocacy involves acknowledging the lived experience gap and educating others.
Disclosing ADHD can lead to assumptions and blanket opinions, creating challenges in the workplace.
Deep dives
Advocating for oneself in a world that misunderstands ADHD
Advocacy is challenging when ADHD is constantly misunderstood and discounted. The media often reinforces misconceptions, causing fear and skepticism. However, it's crucial to advocate in a world that challenges the lived experience of individuals with ADHD. Understanding the overlap with the trans experience, both face similar misinformation and sensationalism in the media. Advocacy involves acknowledging the lived experience gap and educating others. It's important to separate self-advocacy from activist efforts and focus on getting the support and resources needed to live a fulfilling life.
Navigating the assumptions and challenges of disclosing ADHD
Disclosing ADHD can lead to assumptions and blanket opinions, creating challenges in the workplace. Assumptions and misinformation often come from a lack of understanding and fear. Some individuals choose not to disclose ADHD to avoid confounding conversations and responses. The choice of disclosing ADHD is highly individual and depends on the environment and support available. Educating others about productivity, setting clear expectations, and highlighting strengths can be effective ways of advocating without triggering pushback or distracting from the main objective.
Setting boundaries and prioritizing self-care in advocacy
Advocacy for oneself is distinct from being an activist. It focuses on receiving necessary support and resources. Individuals are not obligated to educate others about their lived experience and may set boundaries to protect their own well-being. Trying to educate every person without ADHD in one's life can be exhausting and lead to burnout. It is essential to differentiate self-advocacy from activism and prioritize self-care while recognizing that not everyone will fully understand or appreciate the lived experience of individuals with ADHD.
Asher and Cam stay with the being misunderstood with ADHD theme and take a big step back to look at the larger context of trying to seek understanding and support in a world quick to judge everything ADHD. Cam shares how a recent BCC investigative news story on private ADHD clinics in the UK unleashed a torrent of follow up stories - common fear-based themes that ADHD is overdiagnosed, that the medicines are not beneficial and stories that call into question the very existence of ADHD.
Seeking support personally and professionally is an ever changing obstacle course when people and organizations have such strong opinions about something they know very little about. Everything we’ve known about ADHD has been reinforced by research and advances in neuroimaging - that ADHD is cognitive in nature, that it is a neuro-developmental condition and that it is hereditary, that it impacts the executive function center of the brain and that it can have a dramatic effect on our ability to have agency and fulfillment in our lives.
Asher makes a key distinction between advocating for oneself and advocacy, where the latter is about general education to create greater systemic change and the former is about identifying specific areas of support for a specific situation. Ash also discusses the meaning of a label, and how ADHD is a starting place to create change. He also discusses the misunderstanding gap and compares the ADHD lived experience with his trans lived experience - that as a trans ally he made assumptions about what it is to be trans. No one can know your lived experience like you, so don’t let their strong feelings define your reality.