"The Data Diva" Talks Privacy Podcast

Debbie Reynolds

Episodes

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Jan 9, 2024 • 44min

The Data Diva E166 - Emma Butler and Debbie Reynolds

Send us a textDebbie Reynolds, “The Data Diva” talks to Emma Butler, Creative Privacy (United Kingdom). We discuss a range of topics related to Data Privacy in an upcoming podcast. Emma shares her unique perspective on issues such as regulation, risk appetite, and the challenges small businesses face. We also discuss the importance of plain English and a people-centered approach to data protection, as well as the challenges of working in the field and the different roles of lawyers and non-lawyers. The role of a DPO in advising organizations is also discussed, emphasizing the importance of communicating what the law requires and working with the organization to achieve the right outcome. Emma stresses the importance of understanding the separation between the company and the data protection officer and that the decision and consequences of taking risks and noncompliance fall on the company. We also discuss professionalism in the privacy community on LinkedIn and the growing polarization in society. We also discuss the importance of maturity level and compliance within organizations, emphasizing the need for a realistic and sustainable approach that matches the organization's risk appetite and priorities. We highlight the importance of regulators and lawmakers adopting a people-centered approach to data protection and developing legislation that works for their context and culture. Overall, the conversation emphasizes the importance of a people-centered approach to data protection, the need for critical thinking and reasoned debate in the industry, and Emma’s wish for Data Privacy in the future.Support the show
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Jan 2, 2024 • 43min

The Data Diva E165 - Pamela Isom and Debbie Reynolds

Send us a textDebbie Reynolds, “The Data Diva” talks to Pamela Isom, Chief Executive Officer and Founder, IsAdvice & Consulting LLC, Former Executive Director the Artificial Intelligence and Technology Office, U.S. Department of Energy (DOE). We discuss Pamela’s extensive experience in various fields, including AI and cybersecurity. We discuss the evolution of AI from expert systems to Generative AI, with Pamela highlighting the need for accountability, bias mitigation, and ethical governance. We also discuss the limitations of AI and the importance of using it as a helper, not a replacement for humans. Pamela shared her experience of being kicked out of a group call because someone thought she was an AI, highlighting the lack of human judgment in relying solely on AI tools.The conversation then shifted to the risks and challenges associated with AI, including privacy concerns and the potential for AI to make judgments about people. Pamela drew attention to the alarming case of a 14-year-old girl whose photos were used in deepfakes, highlighting the serious risks posed by this technology. We also discuss the challenges of determining the authenticity of AI-generated content and the need for watermarking and content authenticity initiatives. Debbie Reynolds and Pamela Isom delved into the importance of data lineage and provenance in AI decision-making, emphasizing the need to know the origin and journey of data.We conclude the discussion on the importance of ethics in AI and the challenges of implementing them in government. We highlight the importance of networking and building relationships in the field of AI and technology. Pamela also expressed concern about children receiving scam calls that sound like their loved ones and emphasized the need to educate children about cybersecurity and privacy and her hope for Data Privacy in the future.Support the show
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Dec 26, 2023 • 31min

The Data Diva E164 - Vikram Koppikar and Debbie Reynolds

Send us a textDebbie Reynolds, “The Data Diva” talks to Vikram Koppikar, Senior Manager, Privacy - South Asia and Metropolitan Asia,  Kenvue  - Formally Johnson Consumer Health (Mumbai). We discuss challenges faced by multinational corporations in terms of privacy laws and the differences between GDPR and APAC laws. Vikram expresses concern about the contradiction between the express consent and legitimate use provisions in the recent Indian Data Protection Act and suggests that the provision needs to be clarified or made more similar to the legitimate interest concept in GDPR to address these concerns. We discuss fines and penalties for companies that violate privacy regulations, the rights of Indian citizens to sue, and the importance of privacy as a fundamental right.The conversation touches on data localization requirements, limited data transfer mechanisms, and criminal penalties for data protection infractions in Asia, with a suggestion that monetary penalties on corporates may be more effective than criminal punishment. Debbie and Vikram stress the importance of ethical and legal processing and utilization of personal information for both individual and corporate benefit. They agree that companies must understand that data belongs to people and that privacy is a fundamental right.Vikram shares his hope for a society that realizes the power of personal information and the benefits it can bring to citizens, and Debbie highlights the importance of empowering people to understand their rights. They also discuss the impact of data protection regulations on companies, emphasizing the need for a roadmap to know what is expected of them when doing business in different regions.Support the show
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Dec 19, 2023 • 35min

The Data Diva E163 - Karen Habercoss and Debbie Reynolds

Send us a textDebbie Reynolds, “The Data Diva” talks to Karen Habercoss, Chief Privacy Officer, University of Chicago. We discuss the challenges of operationalizing privacy and security concepts within organizations and the need for strategic partnerships. Karen shares her unique trajectory in privacy and healthcare compliance, emphasizing the importance of having a diverse skill set and being able to interpret laws and regulations in a relevant way for stakeholders. We discuss the limitations of HIPAA and the need for a more comprehensive approach to privacy risk in healthcare.The conversation also delved into the complexities of electronic interoperability and marketing in healthcare. They discussed the potential benefits of interoperability, such as improved patient experiences and more seamless connections between healthcare providers, but also acknowledged the risks involved, including the need for transparency and the potential for data breaches. We also explore the challenges of marketing in the healthcare space, particularly in regard to protecting sensitive information and being transparent with patients.We discuss the importance of transparency and privacy in-app permissions, the need for transparency and patient permission when using identifiable data for research purposes, and the importance of privacy and security working together to mitigate risks for the organization. We also explored the risks and opportunities of AI in healthcare privacy, emphasizing the need for education around the risks and opportunities of AI and the importance of assessing its impact on privacy. Finally, Karen shared her wish for increased transparency in healthcare, believing that transparency is important in helping people make informed decisions for themselves and reducing paternalism in the industry.Support the show
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Dec 12, 2023 • 34min

The Data Diva E162 - Justin Daniels and Debbie Reynolds

Send us a textDebbie Reynolds, “The Data Diva” talks to Justin Daniels, Corporate Mergers & Acquisitions Counsel and Cybersecurity Expert, Baker Donelson LLP. We discuss the importance of privacy and security awareness in the context of increasing digitization and regulation. Justin explained the new cybersecurity regulation passed by the SEC that requires publicly traded companies to report material data breaches to the SEC within four days and talk about how they manage security risk in their annual reports.We discuss the challenges companies face in cybersecurity, including the lack of awareness among C Suite executives and the credibility gap between what leaders say in public and allocating resources towards privacy and security. We emphasize the need for education and building general awareness to prevent human error in cyber breaches. We also discussed the double-edged sword of emerging technologies and the need for education and awareness to mitigate cybersecurity risks.The conversation also touches on the importance of balancing public safety with privacy and cybersecurity concerns, particularly in using digital cameras and facial recognition technology in public spaces and schools. We explore the limitations of current remedies for privacy violations and suggest that more severe consequences, such as criminal penalties, may be necessary to incentivize companies to prioritize privacy and security. Overall, the conversation highlights the importance of proactive measures to address cybersecurity threats rather than accepting the status quo of frequent hacks and breaches and his hope for Data Privacy in the future.Support the show
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Dec 5, 2023 • 43min

The Data Diva E161 - Vivek Kumar and Debbie Reynolds

Send us a textDebbie Reynolds, “The Data Diva” talks to Vivek Kumar, Assistant Vice President, Data Protection, EXL Service Holdings, Inc. We discuss various topics related to data privacy and protection. Vivek emphasizes the importance of catering to a broad audience and explaining acronyms. The conversation highlights the challenges faced by both large and small companies in ensuring compliance and building effective risk assessment frameworks. We discuss the importance of accountability and transparency in AI development, the need for regulations to ensure fairness and transparency in AI, and the importance of privacy by design. We also discuss the growing importance of consent management in data protection, the challenges of managing consent life cycles, and the need for communication and awareness across departments to avoid missed touchpoints and ensure compliance with data protection regulations. We also discuss the challenges of implementing privacy compliance within organizations and the need for privacy-enhancing technology to address these challenges. Finally, we discuss the importance of privacy in data governance and the challenges of implementing effective privacy programs, emphasizing the need for a pragmatic and balanced approach to privacy in the face of evolving technologies and regulations and his hope for Data Privacy in the future.Support the show
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Nov 28, 2023 • 38min

The Data Diva E160 - Kimberly Gold and Debbie Reynolds

Send us a textDebbie Reynolds, “The Data Diva” talks to Kimberly Gold, Chief Privacy Officer, Senior Associate General Counsel, and Executive Director, Privacy Law,  Genentech (BioTech). We discuss her unique journey into the world of privacy. Starting as a corporate attorney, she gradually developed a keen interest in the intersection of healthcare and technology. The discussion revolves around the intricate realm of privacy within the biotech industry, governed by a complex web of regulations, including HIPAA, state privacy laws, clinical trial regulations, and consumer protection laws. Kimberly underscores the significant impact of artificial intelligence (AI) on healthcare privacy and stresses the importance of its responsible and ethical use.Throughout the episode, Kimberly dispels misconceptions surrounding HIPAA, emphasizing that it is not a comprehensive privacy law and covers only a limited scope of healthcare-related information. State privacy laws, she notes, play a crucial role in filling the gaps left by HIPAA, with a focus on protecting health data not covered by federal law. Kimberly also highlights specific state initiatives, such as the My Health, My Data Act in Washington state, designed to safeguard health privacy, particularly in reproductive healthcare.The conversation resonates with notable quotes from Kimberly, including her belief in the abundant opportunities for those interested in privacy and technology-related work. She also advocates for a federal privacy law in the United States as a forward-looking step in safeguarding privacy rights. In conclusion, this podcast episode offers valuable insights into the evolving landscape of privacy in biotech, the challenges posed by AI, and the importance of responsible data practices to protect patient privacy and her wish for Data Privacy in the future.Support the show
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Nov 21, 2023 • 36min

The Data Diva E159 - Julie Schroeder and Debbie Reynolds

Send us a textDebbie Reynolds, “The Data Diva” talks to Julie Schroeder, General Counsel/Chief Legel Officer, AI/ML Thought Leader. We discuss the misconceptions surrounding AI and the importance of understanding its limitations and risks. We emphasize the need to differentiate between AI and data sets and the importance of understanding the ethics and bias issues related to AI. They also discussed the complexities of data and AI, including the potential for bias and limitations in the data used and the need for a comprehensive and integrated approach to data and AI analysis.Julie shared her career journey, including becoming a tech founder and General Counsel with expertise in AI and data. She emphasizes the importance of understanding data ownership, Data lineage, and risk management in the healthcare industry and the need to move away from the idea of a company being like Santa's workshop with fragmented roles. It is important to have people like Julie in the future of corporations who can understand and communicate with different groups. We discuss Julie’s extensive expertise in artificial intelligence (AI) and machine learning (ML) and engage in a deep exploration of the intricate relationship between law and Data Privacy within the context of AI and ML technologies. Julie begins by dispelling the common misconception that AI is a recent development, tracing its evolution back to the 1950s and 60s. She emphasizes that AI is not a singular technology but rather a category encompassing various subfields, including machine learning and natural language processing. Throughout the episode, the significance of understanding data lineage and ownership is underscored, particularly for companies seeking to leverage AI effectively. Julie also highlights the inherent limitations of AI, emphasizing that it cannot replace human judgment in complex and nuanced tasks. Moreover, she acknowledges the persistent challenge of bias in AI systems, shedding light on the complexities of mitigating bias entirely. The discussion concludes by stressing the importance of comprehensive data collection, as the absence of data can lead to skewed results and erroneous conclusions. This episode offers valuable insights into the legal and ethical dimensions of AI and Data Privacy, encouraging a more nuanced understanding of these technologies in today's evolving landscape and her hopes for Data Privacy in the future.Support the show
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Nov 14, 2023 • 30min

The Data Diva E158 - Pádraig O'Leary and Debbie Reynolds

Send us a textDebbie Reynolds, "The Data Diva" talks to Pádraig O'Leary, Co-founder and CEO of Trust Works. We discuss Data Privacy issues in the enterprise, and the challenges organizations face in Data Privacy and protection, including the need for a more proactive approach to tackling these challenges. We delve into the difficulties of dealing with right-to-be-forgotten requests, including the lack of accurate data mapping and the need for flexibility in finding the right solutions. Additionally, we touch on the challenges of dealing with unstructured data and the need for a risk-based approach to Data Privacy, as well as the importance of considering the limitations of automation in Data Privacy and protection.We discuss how Trust Works differentiates itself in the crowded privacy space. Padraig explains that the company emphasizes collaboration and automation and that its approach to privacy tool design drives certain choices in how the solution is designed. We also discuss the challenge of AI creep, where companies may unknowingly adopt AI-powered tools without considering the risks associated with them.We suggest that companies must build a second data map specifically for AI-powered tools and that privacy professionals must be involved in this process. Additionally, they propose the idea of a kill switch functionality to turn off AI capabilities if necessary.Finally, we discuss the challenges of building diverse and skilled privacy teams. Padraig emphasizes that privacy professionals need to have a unique set of skills that bring together legal, technical, operational, and ethical considerations. Debbie agrees and highlights the benefits of having a well-rounded team of people who understand data and the different angles data challenges take. They both believe that more people from diverse backgrounds and industries must be brought into privacy to build diversity in the field and his wish for the future.Support the show
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Nov 7, 2023 • 39min

The Data Diva E157 - Kim Emiru and Debbie Reynolds

Send us a textDebbie Reynolds, “The Data Diva” talks to Kim  Emiru, Vice President, Privacy, Sony Pictures Entertainment. We discuss the importance of considering privacy first when approaching a job, especially in multinational corporations where privacy laws and cultural expectations vary. We discuss the complexities of hiring for privacy positions and the impact of data collection on minority populations. We stress the importance of diverse viewpoints in improving businesses and the need for more opportunities for people of color in the privacy field. We also discussed the importance of privacy in the workplace and how it can impact career prospects, as well as the rise of Generative AI and the need for sensible policies and guidelines to be put in place to ensure that employees are aware of the risks and benefits of using new technologies.We discuss the challenges of navigating the complex privacy laws in the US and the potential impact of AI on privacy legislation and the importance of being mindful about sharing information on social media, especially when it comes to children, and the upcoming changes in child privacy laws, including the California Age Appropriate Design Code. We emphasize the importance of building relationships and supporting each other in the workplace and the need for clear definitions and consistency in privacy legislation to protect individuals while making it as easy as possible for businesses to comply and her hope for Data Privacy in the future.Support the show

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