Make Visible: Complex Chronic Illness Explored
Visible with Emily Kate Stephens
Shining a light on invisible illness.Emily Kate Stephens, journalist and Long Covid sufferer, discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, Ehlers Danlos (EDS), Fibromyalgia, POTS, MCAS, Chronic Lyme, IACCs and more, we dive into the science of energy-limiting, complex illness, whilst providing patients, caregivers and medical professionals with practical tools to diagnose, understand and manage their conditions.
Join us every two weeks.To find out more about the work that Visible is doing, using wearable technology to measure and manage complex chronic illness, visit our website at:
Make Visible
@visible_health
@visible.health
Join us every two weeks.To find out more about the work that Visible is doing, using wearable technology to measure and manage complex chronic illness, visit our website at:
Make Visible
@visible_health
@visible.health
Episodes
Mentioned books
6 snips
Nov 4, 2024 • 49min
#4 Balancing the autonomic nervous system with Dr Boon Lim (Part 2)
Dr. Boon Lim, a renowned cardiologist and electrophysiologist, returns to explore the autonomic nervous system's crucial role in chronic illness. He likens the body to a factory seeking an off-switch from Long Covid's stress. Using analogies like The Blind Man and the Elephant, he emphasizes the need for a holistic view of health. Dr. Lim discusses stress reduction techniques, including breathwork and mindfulness, backed by science, and highlights the importance of nurturing both mental and physical well-being to combat chronic stress.
12 snips
Oct 23, 2024 • 50min
#3 Brain Fog not ‘just in your mind’: new insights into physical markers of Cognitive Impairment with Dr William Hu
Dr. William Hu, a cognitive neurologist at Rutgers Institute for Health, specializes in treating cognitive impairments, particularly in Long Covid. He discusses the physiological basis of brain fog, revealing physiological changes through brain imaging and cerebrospinal fluid analysis. His groundbreaking research identified markers of persistent immune activation in patients, linking it to cognitive decline. The conversation highlights implications for treatments and sheds light on the connection between immune responses and cognitive health in post-viral conditions.
Oct 3, 2024 • 45min
#2 How heart rate and symptoms are connected with Cardiologist Dr Boon Lim
Dr. Boon Lim, a cardiologist and electrophysiology expert, shares his insights on Postural Orthostatic Tachycardia Syndrome (POTS). He highlights the complexities of diagnosing autonomic dysfunction and the importance of detailed patient history coupled with the tilt table test. Dr. Lim discusses how hydration impacts patients' ability to manage symptoms and stresses the significance of movement for those with POTS or long COVID. His humble approach and practical strategies aim to empower patients, making a significant impact on their daily lives.
Sep 18, 2024 • 41min
#1 Patient Power: scientific and policy progress with Patient Led Research Collaborative (PLRC)
Hannah Davis and Lisa McCorkell from the Patient Led Research Collaborative (PLRC) highlight their groundbreaking work in patient-driven research on Long Covid and related conditions. They discuss their advocacy achieved through collaborations with organizations like the CDC and WHO, including the introduction of the Long Covid Moonshot Act aimed at securing $1 billion for research annually. Additionally, they launch the Patient-Generated Hypotheses Journal to empower patients in shaping research questions, emphasizing the vital role of lived experiences in addressing chronic illnesses.
Sep 11, 2024 • 2min
Make Visible: Trailer
Introducing Make Visible, the podcast shining a light on complex chronic illness.
Join us every two weeks as journalist Emily Kate Stephens uses her experience of living with an energy limiting condition to bring us the latest research and insights from the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, EDS, Fibromyalgia, POTS, and more, we delve into the science of invisible illness.
makevisible.com
