NETs Get Real with NCAN

This episode highlights NET Basics & The Top 5 Issues to Discuss with Your Doctor presented by Dr. Thor Halfdonnarson and recorded at NCAN’s NET Patient Conference on June 19, 2025 in Minneapolis, MN.Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Dr. James Howe, a surgical oncologist at the University of Iowa, shares insights on neuroendocrine tumors and the vital role of mentorship in his field. He discusses the MEN1 genetic test for assessing cancer risk and the intricacies of diagnosing small bowel tumors. The conversation shifts to histotripsy as a non-invasive treatment for liver lesions and highlights advancements in PRRT for neuroendocrine tumors, emphasizing personalized treatment strategies. Howe also addresses patient concerns about medication transitions and the challenges of participating in clinical trials.

Dr. J. Bart Rose, a leading expert in hepatopancreatobiliary disease at The University of Alabama at Birmingham, shares his inspiring journey in treating neuroendocrine tumors. He highlights the significance of tumor donation for research, shedding light on ethical considerations and patient empowerment. The discussion also dives into the importance of collaborative care among medical professionals and emphasizes the value of mental health resources for patients. Tune in for insights into ongoing surgical and pharmaceutical research aimed at enhancing cancer treatment!

In this discussion, Rachel C. Miller, an Oncology Dietitian from the University of Kentucky, shares her expertise in nutrition for cancer patients, specifically those with neuroendocrine tumors (NET). She emphasizes the importance of personalized dietary strategies to improve treatment outcomes and dispels common myths about healthy eating. The conversation also highlights the necessity of patient involvement in their own care, self-compassion throughout the health journey, and the crucial link between mental health and nutrition.

Dr. Sarah White is a professor and a leading interventional radiologist at the Medical College of Wisconsin, specializing in interventional oncology. She shares her journey in treating metastatic neuroendocrine tumors, emphasizing the importance of building long-term patient relationships. Dr. White discusses innovative techniques for managing localized cancer and the benefits of a multidisciplinary approach. Additionally, she highlights the necessity of seeking second opinions and the role of mental health in treatment, enriching the conversation around comprehensive cancer care.

This episode we speak to NET Patient and Advocate, Kris Brazen. He discusses his diagnosis, getting involved with the community, navigating moving all around the country for work while still keeping his treatment regiment, keeping busy, mental health and so much more!Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak to NET Patient and Advocate, Julie DeClercq. She discusses her diagnosis, getting involved with the community, tips for staying positive and mental health! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak to NET Patient, Rosemary Wellner. She discusses the little tweaks she does with her life to stay on a positive track after her diagnosis especially the mental health side of navigating her journey! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak the husband and caregiver for past guest Alexandria Jungling, PJ Jungling! He talks about his perspective on being the support system for a patent going through their NET journey and what he does to keep positive! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Dr. Charles Nutting, an interventional radiologist from Image Guided Therapy in Colorado, shares his expertise on liver-directed therapies for neuroendocrine tumors. He discusses groundbreaking innovations in interventional radiology, including AI integration aimed at minimizing treatment side effects. The conversation delves into the synergy between Peptide Receptor Radionuclide Therapy (PRRT) and liver treatments. Additionally, Dr. Nutting emphasizes the significance of patient involvement in treatment decisions, advocating for informed engagement with specialists.