Psoriasis Uncovered

Facing challenges presented by psoriasis can be an emotional roller coaster. From diagnosis, treatment choices, and the impact of bullying when a child has psoriasis can leave a parent feeling alone and helpless. Finding someone who's been on the same journey can be a benefit. Hear how parents Jessie Houston, Nadya Helt, and Emma Rhodes with moderator Michel Tarabocchia found the help and hope they needed through the NPF One to One Program.

Making an impact as a volunteer can happen in many different ways. Hear what it means to volunteer and come together to attend the NPF IMPACT Volunteer Leadership Summit as 3 fabulous volunteers, John Romano, Alena Chapman, and NPF Board Member Chris Lindsay, share their experiences and how they fundraise to make a difference in the psoriatic disease community with Carol Osterhaus, NPF Senior Regional Development Manager for the Central Region.

Having psoriasis may mean you're at risk for other diseases. Listen as moderators Alan Simmons and Kaleigh Welch explore cardiovascular disease, calcium build-up, NAFLD, sleep disorders, depression, anxiety, and the big question - does risk equal certainty with Dr. John Barbieri, Assistant Professor at Harvard Medical School, an investigator of the CP3 Study, and the Smart Phone Cognitive Behavioral Therapy Study.

Real patients share their personal journeys with plaque psoriasis, highlighting their struggles and triumphs in finding effective treatments. The conversation emphasizes the importance of building trust with healthcare providers and actively advocating for oneself. Emotional impacts and daily challenges are explored, revealing how self-acceptance and open communication can lead to better management. Listeners are encouraged to research treatment options and embrace a proactive approach to their health.

Jeffrey Cohen, Director of the Psoriasis Treatment Program at Yale University, shares his expertise on the challenging condition of inverse psoriasis. He clarifies its unique symptoms and how it can often be mistaken for other skin issues. The discussion delves into treatment options, highlighting the importance of personalized approaches. Cohen emphasizes the potential connection between inverse psoriasis and psoriatic arthritis. He also explores innovative therapies, including biologics and combination treatments, while advocating for greater communication between patients and healthcare providers.

Listen as Jeff Brown, LB Herbert, and Kaitlin Walden share their insights on partnering with doctors, advocating for your health, and navigating relationships - whether it's dating, family, or work. They also explore the challenges of living with a visible skin disease like psoriasis and the hidden struggles of psoriatic arthritis. As LB Herbert wisely puts it "We've all got baggage. It just might be a different type of luggage".

Listen to this unique episode that is so good it had to be split into two episodes! Hear our moderators Jeff Brown, LB Herbert, and Kaitlin Walden comment honestly on what it means to live with psoriasis and psoriatic arthritis from the challenge of not knowing what each day brings, feeling confident, coping with fears, medication changes, to advocating for your own health care. It's possible you may feel the same way and learn a few tips too.

Hear this inspiring conversation about living with psoriasis as a child, being diagnosed with PsA later, and treating with a biologic from teen Sophia and college student Jackie with moderator Kaleigh Welch. Listen to their treatment journey, overcoming fears of using a biologic, and what tips they use to live each day not defined by their psoriatic disease. This episode is provided with support from Bristol Myers Squibb.

Clinical studies are not always representative of the actual patient population, which can limit our understanding of patient outcomes. Join NPF moderator Takieyah Mathis as we hear from LaShell Robinson and Marygrace Corral with Takeda on why it's so important to ensure diversity in clinical research, what they are doing to improve racial diversity in their clinical studies, and how you can support these efforts. This episode is sponsored by Takeda.

On this episode, we'll talk about redefining remission - when a patient and their healthcare practitioner work together to discuss and create a personalized approach to psoriatic arthritis care with moderator Jeff Brown and guests Noelia Ferreyra, a patient advocate living with psoriatic disease, and Dr. Saakshi Khattri, a dermatologist/rheumatologist in New York who serves on the medical board of the NPF. This podcast is sponsored by UCB.