BloodStream

Amy and Patrick are joined by Believe Limited colleague and new BloodStream Podcast correspondent James Maple! Plus, Let's Talk is back with a segment of suffering that features interviews with community members Dwayne Whitis and Heather Hogan, and a follow-up interview with Dr. Hanny Al-Samkari on the 2nd most common bleeding disorder that you don't know about! Presenting Sponsor: Takeda (bleedingdisorders.com) Show Notes: Presenting Sponsor: Takeda. Visit bleedingdisorders.com to learn more. Learn more about HHT Subscribe to BloodStream Podcast Listen to the latest from BloodStream's FLOW podcast Listen in to Let's Talk, a monthly segment with your host, Josh Bragg. Let's Talk shares tips on how to care for your own or someone you love's mental health and strives to eliminate the stigma associated with this discussion within the bleeding disorders community. Visit Letstalkmh.com and click Resources. Brought to you by Sanofi Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Subscribe to The Final Summit Podcast

There is a women's movement a brewin' and Patrick & Amy have the scoop! Special guest Ashley Gregory is here to tell us all about it! Plus, Amy has a diagnosis of her own to talk about, and Jessica brings us back to The Well for a segment on growth featuring community member, Michelle Conde. Presenting Sponsor: Takeda (bleedingdisorders.com) Episode Advertiser: CSL Behring (portraitsofprogress.com) Learn more about FAIR! Contact ashley.gregory@hemofoundation.org. Show Notes: Presenting Sponsor: Takeda. Visit bleedingdisorders.com to learn more. Subscribe to BloodStream Podcast Listen to the latest from BloodStream's FLOW podcast To learn more about FAIR, Females Are Important to be Recognized, contact Ashley Gregory. The Bloodstream Podcast is also brought to you in part by a new campaign from CSL Behring called Portraits of Progress. To learn more, check out www.PortraitsofProgress.com Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

BloodStream welcomes Greig Blamey, a physiotherapist from Winnipeg, Canada and the lead investigator and author of Sexual Issues in People with Haemophilia: Awareness and Strategies for Overcoming Communication Barriers (A fantastic interview!). Plus, Patrick learned something at his recent HTC visit and the latest Let's Talk mental health segment, featuring Joshua Sterling Bragg, on growing, evolving, and taking baby steps. Show Notes: Subscribe to BloodStream Podcast Sexual Issues in People with Haemophilia: Awareness and Strategies for Overcoming Communication Barriers: Click HERE Listen in to Let's Talk, a monthly segment with your host, Josh Bragg. Let's Talk shares tips on how to care for your own or someone you love's mental health and strives to eliminate the stigma associated with this discussion within the bleeding disorders community. Visit Letstalkmh.com and click Resources. Brought to you by Sanofi Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Comedy writer Dru Johnston and mountaineer Chris Bombardier join Patrick and Amy for a discussion about the Making of The Final Summit, BloodStream Media's podcast exploring what it means to chase a dream, achieve a dream, and realize then that the work has only just begun. We'll also discuss the Celebration of Life for Val Bias and hemophilia A gene therapy approval for Europe. Show Notes: Subscribe to BloodStream Podcast Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Patrick is joined by dynamic duo, Dr. Kevin Kuo and Dr. Hanny Al-Samkari who share more about Alpha and Beta Thalassemia, a sister blood disorder to hemophilia. Plus, we'll get an update on Patrick's chronic pain & Amy's writing as well as a brand new Let's Talk segment on aging and changing. Show Notes: Let's Talk is brought to you by Sanofi Metal Heath Educational Resources Visit Shareyourwhy.com to meet the Sanofi CoRe team and hear from them and members of the community about their story and passion for the hemophilia community. Portraits of Progress Subscribe to BloodStream Podcast Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Patrick and Amy are joined by three of the most prolific and committed rare disease podcasters out there: Effie Parks from Once Upon A Gene, Kyle Bryant from Two Disabled Dudes, and Bo Bigelow from Stronger Every Day. Those three titans behind the mic join us for a candid discussion about patient centricity, we touch on some recent news, FLOW's Jessica Lauren Richmond is back with the latest installment of The Well. Show Notes: Subscribe to: Once Upon a Gene 2DD Stronger Everyday Recent novel therapy news: CSL Behring gene therapy makes comeback after hold for FDA priority review BioMarin delays planned FDA filing for hemophilia gene therapy FDA Grants Breakthrough Therapy Designation to BIVV001 for Hemophilia A Treatment Presenting Sponsor: Takeda. Visit bleedingdisorders.com to learn more. The Bloodstream Podcast is brought to you in part by a new campaign from CSL Behring called Portraits of Progress. To learn more, check out www.PortraitsofProgress.com Subscribe to BloodStream Podcast Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Women with mild hemophilia, vWD, and gene therapy were topics of discussion at The World Federation of Hemophilia's World Congress that took place earlier this month in Montreal, Canada and Patrick and Amy were there! Hear about it as well as planning for the summer and our latest Let's Talk mental health segment led by Believe Limited's Joshua Sterling Bragg on loss. Show Notes: Presenting Sponsor: Takeda. Visit bleedingdisorders.com to learn more. The Bloodstream Podcast is brought to you in part by a new educational gene therapy resource from CSL Behring called HemEvolution. To learn more, check out www.HemEvolution.com Subscribe to BloodStream Podcast Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Patrick and Amy hosted a LIVE Journey to Joint Health panel at HFA with eight blood brothers who shared their experience participating in the HFA led physical fitness challenge and now you can listen in! You'll also hear from HFA CEO Sharon Myers and Board Chair Allie Ritcey, and we'll cap today's episode off with our second installment of The Well, a holistic wellness segment led by FLOW podcast host Jessica Lauren Richmond. Show Notes: HFA Symposium 2022 Presenting Sponsor: Takeda. Visit bleedingdisorders.com to learn more. Segment Sponsored by Genentech: Visit https://www.hemlibra.com to learn more. Subscribe to BloodStream Podcast Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Join Patrick and Amy for another LIVE episode from HFA Symposium where we have the pleasure of speaking with keynote speaker, Zander Masser. Zander's father, Randy, lived with severe hemophilia B until he passed from AIDS-related illnesses in 2000 at the age of 52. Twenty years later, Zander unburied 10,000 slides from Randy's career as a professional photographer and explores his process of exploring grief through creativity. Hear his incredible story right here on BloodStream. Show Notes: Learn more about Randy Masser Unburying My Father, the book will be released on June 12, 2022. Learn more or pre-order HERE! HFA Symposium 2022 Presenting Sponsor: Takeda. Visit bleedingdisorders.com to learn more. Subscribe to BloodStream Podcast Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Patrick and Amy are LIVE from HFA Symposium! Listen in to keynote speaker, Adar Cohen, as he shares how the strength of our communities relies on our willingness and our ability to have the big, complicated conversations in our work, in our families, and in our civic lives.We'll also have a new Let's Talk segment with Josh Bragg. A great episode about those "big conversations" we often avoid. Show Notes: Learn more about Adar Cohen! HFA Symposium 2022 Presenting Sponsor: Takeda. Visit bleedingdisorders.com to learn more. Subscribe to BloodStream Podcast Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter